yup My preggy is going great. I remind myself just "relax" there's a lot of doctors that will be there for all of us. I have to call my OB again tomorrow to change appt for the 3rd time.. cuz I had it set for Wed I should have wait till my son's appt was finish on last fri but I told the OB's office nevermind waiting just lets go for wed since I know they want my son in either Mon or Tues but turn out They want my son on Wed LOL grr soo will see if my doc will do Mon as of tomorrow ( They might have no choice but squeeze me in cuz after Wed we will be " impossible busy " for me in here but I want to discuss with doctor for "Plans" since I only have about 9 weeks left Hehe.
Anyway, My son is doing great. This coming wed he will have another surgery during day. We got to be there 8:30 AM for his surgery (more like 8:00 to arrive). He will have a port put in his chest, Spinal Tap and bone marrow biospy (bilateral hip) so they can do more test on my son's spinal fluid if it was spread or not. and also for his blood thru bone for the future. So, We know the hospitals and doctors are doing everything. The Dr asked for MRI for 3rd time two Wednesday ago it shows None in his brain has anymore tumors but their concern was if a little tiny piece of tumor fell off when they remove tumor may fell in spinal fluid so It is more safe that if they do Radiations and chemo to make sure it was all kills.. So I know many of people are concern about my son and me! of course both of us! next week We will go back to Boston again. Monday for meeting about his spinal tap and bone marrow result, Friday the 28th Back to Dr for his chemo plans. His radiations will be Everyday as in Mon to Fri not on weekend and holidays for 6 half weeks. Chemo plans will be once a week, if it is NOT spread out 4 weeks "break" after radiations were done for Chemo plans then Once a month 2 days stay in boston. If it spread out they won't take a break! I figure I would wait till I all information but I have feeling that's what they will be doing it anyway! so We all should know if its spread or not. yes it is malignant on Medulloblastoma and they still want to know if it s spread or not so we will wait and see.
Ciao all,
Wendy