Mary Gorton
New Member
- Joined
- Jul 27, 2016
- Messages
- 14
- Reaction score
- 3
Hi, my name is Mary. I'm 36 years old and I lost hearing in my left ear due to a partial tumor resection on my 8th cranial nerve. I lost my hearing, had facial paralysis, and balance issues. My face has gotten a lot better, but will never be the same. My balance is better, but it's not the same either. I was diagnosed with Neurofibromatosis type 2. So I have another tumor on the other side that is stable and we are watching it for now. I know when we deal with it, I will be completely deaf at some point. I had a cochlear implant put in 3 1/2 weeks ago, and went in for activation last week. No luck. My auditory nerve is too damaged. I meet with my surgeon tomorrow and will discuss explantation. It's pretty bulky and it sits right under the arm of my glasses. If it's not functioning, I don't really want it there. I have a daughter who is 10, and I am a tennis professional. My tennis has suffered since surgery, but I'm not going to give up. I don't know how long I'll be competing, but plan on teaching, specifically to the hearing impaired. I just started ASL, but need a lot more education before I can be competent with it