Deaf patient was dying, but no one told her

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Deaf patient was dying, but no one told her | StarTribune.com

The dead woman's husband settled a suit with North Memorial over the absence of interpreters.

David Nelson got the bad news about his wife in December 2005. He just didn't know it.

For three months, the Nelsons met with doctors at North Memorial Medical Center, but they weren't aware Mary Ann was dying of cancer. In fact, they thought she was doing well enough in her battle with the disease that she could go to her retirement party. So they were stunned in March 2006 when her oncologist abruptly put an end to their hopes -- and their request -- with a terse note saying, "We can't cure the cancer!"

It was the first time the Nelsons, both deaf, understood the cancer was terminal, according to the Minnesota Department of Human Rights. Mary Ann Nelson died in May 2006.

The agency pointed to the incident as an example of the medical team's failure to communicate effectively with the Nelsons. This week, state regulators announced that North Memorial agreed to pay $105,000 to settle charges that Nelson and another patient were not provided access to qualified sign language interpreters. Often, David Nelson had to read lips or write notes to communicate with doctors and nurses, despite his repeated requests for an interpreter.

"It was extremely difficult and painful for them," said Rick Macpherson, Nelson's attorney. "They couldn't ask any questions. They couldn't have any discussion. They couldn't get any kind of comfort."

For decades, the deaf and hearing impaired didn't know if they would get an interpreter when going to a hospital. The landscape changed in 2004 after federal officials accused Fairview Health Services of violating the Americans with Disabilities Act. The lawsuit led to a settlement and improved local compliance with the law, as state and federal officials started visiting other Minnesota hospitals to make sure they were providing properly trained interpreters.

But the problems haven't gone away. Macpherson, an attorney with the Minnesota Disability Law Center, has pursued cases in recent years against hospitals, nursing homes, jails, police departments and other organizations.

No system in place

Nelson and another deaf patient, Mark Epstein, filed complaints with the Department of Human Rights in 2007 over treatment at North Memorial.

Epstein was hospitalized at North Memorial in March 2007 for inflammation in his intestines, according to the state investigation. He requested an interpreter every day, but he never received one. When he was given a medication, he didn't understand what it was or why he had to take it. When he was discharged five days later, he didn't know what kind of shape he was in.

Initially, North Memorial employees maintained that Epstein didn't ask for an interpreter and relied on his wife, who had partial hearing in one ear. But state regulators said the medical records showed that an interpreter was needed in this case.

By relying on family members and others to interpret complicated medical information, the hospital jeopardized the health of both Epstein and Mary Ann Nelson, investigators concluded.

In the settlement, North Memorial agreed to put someone in charge of coordinating services for patients who are deaf or hard of hearing, and make sure interpreters show up for meetings.

Macpherson said that's important, because nobody at the hospital followed through on the oncologist's request for an interpreter at an important family conference with the Nelsons. Instead, the request went unfilled.

In a statement, North Memorial said it has been working with the Department of Human Rights and members of the deaf community to implement changes, including the use of portable electronic devices that connect patients with qualified interpreters via video. Staff training on the needs of deaf and hard-of-hearing patients is expected to be completed by the end of March. North Memorial must show it is complying with the terms of the agreement for two years.

Macpherson said such settlements send an important message to public and private entities.

"Money talks," he said. "It causes the hospital and other institutions to take this seriously."


That's terrible!
 
The medical community should be ashamed of themselves for being so insensitive to their needs at a vulnerable time!
 
Deaf patient was dying, but no one told her | StarTribune.com

The dead woman's husband settled a suit with North Memorial over the absence of interpreters.

David Nelson got the bad news about his wife in December 2005. He just didn't know it.

For three months, the Nelsons met with doctors at North Memorial Medical Center, but they weren't aware Mary Ann was dying of cancer. In fact, they thought she was doing well enough in her battle with the disease that she could go to her retirement party. So they were stunned in March 2006 when her oncologist abruptly put an end to their hopes -- and their request -- with a terse note saying, "We can't cure the cancer!"

It was the first time the Nelsons, both deaf, understood the cancer was terminal, according to the Minnesota Department of Human Rights. Mary Ann Nelson died in May 2006.

The agency pointed to the incident as an example of the medical team's failure to communicate effectively with the Nelsons. This week, state regulators announced that North Memorial agreed to pay $105,000 to settle charges that Nelson and another patient were not provided access to qualified sign language interpreters. Often, David Nelson had to read lips or write notes to communicate with doctors and nurses, despite his repeated requests for an interpreter.

"It was extremely difficult and painful for them," said Rick Macpherson, Nelson's attorney. "They couldn't ask any questions. They couldn't have any discussion. They couldn't get any kind of comfort."

For decades, the deaf and hearing impaired didn't know if they would get an interpreter when going to a hospital. The landscape changed in 2004 after federal officials accused Fairview Health Services of violating the Americans with Disabilities Act. The lawsuit led to a settlement and improved local compliance with the law, as state and federal officials started visiting other Minnesota hospitals to make sure they were providing properly trained interpreters.

But the problems haven't gone away. Macpherson, an attorney with the Minnesota Disability Law Center, has pursued cases in recent years against hospitals, nursing homes, jails, police departments and other organizations.

No system in place

Nelson and another deaf patient, Mark Epstein, filed complaints with the Department of Human Rights in 2007 over treatment at North Memorial.

Epstein was hospitalized at North Memorial in March 2007 for inflammation in his intestines, according to the state investigation. He requested an interpreter every day, but he never received one. When he was given a medication, he didn't understand what it was or why he had to take it. When he was discharged five days later, he didn't know what kind of shape he was in.

Initially, North Memorial employees maintained that Epstein didn't ask for an interpreter and relied on his wife, who had partial hearing in one ear. But state regulators said the medical records showed that an interpreter was needed in this case.

By relying on family members and others to interpret complicated medical information, the hospital jeopardized the health of both Epstein and Mary Ann Nelson, investigators concluded.

In the settlement, North Memorial agreed to put someone in charge of coordinating services for patients who are deaf or hard of hearing, and make sure interpreters show up for meetings.

Macpherson said that's important, because nobody at the hospital followed through on the oncologist's request for an interpreter at an important family conference with the Nelsons. Instead, the request went unfilled.

In a statement, North Memorial said it has been working with the Department of Human Rights and members of the deaf community to implement changes, including the use of portable electronic devices that connect patients with qualified interpreters via video. Staff training on the needs of deaf and hard-of-hearing patients is expected to be completed by the end of March. North Memorial must show it is complying with the terms of the agreement for two years.

Macpherson said such settlements send an important message to public and private entities.

"Money talks," he said. "It causes the hospital and other institutions to take this seriously."


That's terrible!

:mad: That's criminal. Something stinks here.
 
The big word for the hearing professionals in the medical hospital is AUDISTS. And they are not aware about the deafness and they think that a person had to be a good lipreader or speechreader to understand what the doctors or specialists said. They need to get a Deafness workshop to teach them about our deafness and why we need ASL interpreters. This is sickening and terrible for Mary Nelson and Mr. Mark Epstein not getting the interpreters that they need very badly for important meetings. I guess both Mr. Nelson and Mr. Epstein forgot about ADA if they keep asking for an interpreter. :dunno2:
 
In New Zealand, one of my friend, works for Deaf Aotearoa is teaching the Deaf Awareness workshop. She teaches them about general for example, how to book interpreters, what Deaf people prefer to have, and understand where we are coming from, teach them the basic sign language for three days. It is really huge benefit for them. Not just the hospital, she is also teaching the organizations like Air New Zealand staff to understand the Deaf needs. It is very important that hearing people who works in the company to know about Deaf awareness. Because we have NZSL is official language.
 
not only the patient. When a family member have cancer, the doctor have to deal with the whole family. They are the ones who make sure their loved ones are remembering their pills, have a ride to a chemo treatment, eat right, etc. I had to do all that for my mom. even though she was scared and confused, I couldn't help her because my lack of communication with her doctor (which she have given permission).
 
I know here in WPB, FL, there is a big push for the medical professionals, from doctors and nurses, to the hospitals, and all related types of business here in town to learn Deaf Awareness. We have a lot of people who winter here ad who retire here mostly hearing, but a lot of deaf and hoh as well. So the medical community is looking to improve their continuing services to the public, whether it's a deaf, hoh or hearing person. They are also having arrangements in place for the blind as well. Our local Lighthouse for the Bind is taking care of that.

They are also beginning to train ALL teachers in the public and private school systems in ASL. They will begin to offer ASL classes to the elementary school up to high school and the local college is also having classes. (The college was a 2 year Junior College, and is now becoming a 4 year College.)
 
This is sad and it continues to happen. My husband (hearing) woke up early one morning and could barely walk. He communicated that he needed to go to the hospital. This was a shocker because my husband does not like going to the hospital. As soon as we arrived, we informed the clerks that I need an interpreter. We were there for about 3-4 hours, doctors came in and out the room, gave him different medications and just completely ignored me. I understood about 20% of what was going on. No interpreter showed. This hospital is one of the well known hospitals in Massachusetts so if it happened at that hospital, sad to say, I know it is happening at many other places. VERY SAD. We will not be going back there.
 
I am SO fortunate to have doctors that sign. In the clinic, half of doctors and nurses sign well to communicate with me.
 
This kind of things scares me. I'm lucky enough to have several family members (all hearing) who look out for me and make sure I'm comfortable, but I still often feel clueless. I'm a person who needs to know every single detail before venturing out to try something new (something at a bank, for example, or going to the doctor for the first time on my own, etc.). If something happened that took my family away, then this sort of thing scares me, if I had something happen that required me to be at the hospital. I do wear hearing aids which helps me hear nearly to the same degree as hearing people, but things happen and there's always a chance I wouldn't have hearing aids in my ears when a doctor is telling me something important. I get confused and stressed just having X-rays taken of my teeth (gotta take the hearing aids out, and then try my best to understand the technician when she's trying to tell me to place my chin on this support, place my forehead against that support, etc.)
 
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