Deaf/Blind

Cain Marko

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Inspirational read...



http://www.e-accessibility.com/news.html

08: BIONIC BLISS
by Patricia 'Trout' Livingstone.

I was born with Usher's Syndrome, a combination of blindness and deafness. While my eye disease, Retinitis Pigmentosa, deteriorated, so did my residual hearing loss. The struggle of reading my computer monitor with the aid of magnification became increasingly obscure and impossible.

When my ability to use my computer waned because of my diminished sight and hearing, so did my desire to write and communicate, because I felt the isolation, the void of sight and hearing, a most oppressive and daunting weight in my connection with the world. At the time, I could not rely on audio aids, nor could I rely on visual aids in efforts to write at my computer. The despair and frustration at the closing of my sight and hearing were undeniably exhausting. Yet, with a smattering knowledge of Braille, I knew it was time to learn more Braille as a first step toward connecting with literature. I learned the basic alphabet in Braille, and in sign language, finger spelling. I never thought I would need Braille since I was able to use a small portion of my sight in one eye for lip reading, relying on readers, and reading large print. I suppose I thought I would never lose the rest of my sight and hearing. I was wrong.

I began teaching myself Braille by reading 'To the lighthouse' by Virginia Woolf in Braille, though it took me six months to read the three volumes since I was unfamiliar with many Braille contractions. I focused on the contractions and punctuations throughout the book. I read very slowly, with intermittent pauses to each word and punctuation. I tried to unravel and work through each sentence. It was probably the longest time I have spent reading a novel. No doubt, the experience of reading and learning, in my chosen fashion, was fraught with headaches and anxiety. Yet my effort to learn to read and learn Braille was unwittingly indispensable: I had no idea how effective and powerful the offerings of Braille could be in my life.

After completing 'To the Lighthouse', I ordered another book with much anticipation and curiosity. My initial dislike of Braille diminished as I began to devour novel after novel, reading voraciously and with delight. Though, many books on my list of requests were unavailable in Braille catalogues of books listings, over two thousand books are available at Braille libraries: an ample selection of books to help me stay in practice and enjoy reading. Reading filled the silence I'd previously experienced.

One day, I was introduced to a 'Braille Display', a keyboard attached to my computer allowing me to read forty or fifty characters in Braille format. With this ingenious tool, I am able to write and read anything displayed in computer programs such as Microsoft Word, Internet Explorer or Outlook Express. Thanks to computer Braille training instructor Peter Tighe from the Carroll Center for the Blind in Newton, Massachusetts (http://www.carroll.org), I have been introduced to a world of new technology, to new modes of communication, and to using the Braille display along with keystrokes which take the place of the mouse relied on by most sighted users.

It is astonishing how much information scurries quickly by my fingertips, dots that connect me to people, to the world news online, to life! Through hard work with a good computer Braille training specialist, and a lot of patience, the reality of communication continues to flourish and augment the window of the world to me.

While I was in the initial process of learning how to use my Braille display and its copious new features and techniques, I stepped into another new technological phenomena: I choose to have a cochlear implant. My cochlear implant is essentially a 'bionic ear'. I am a novice at being an 'implantee'; as time goes on, I hear new sounds. I hear birds chirping, a dripping tap (or 'faucet', as we say in the States), and winds gusting through leaves on a tree . . .

All this from a gift of technology. I am able to use a telephone, something I like very much. The bliss of hearing is astounding. There is light in the world that once seemed utterly dark and blatantly morose by the gulf of loneliness caused by the loss of hearing and sight.

It is without doubt that technology, in all its genius, will bedazzle the medical, educational, and assistive aid fields. There is reason to have faith that the impossible will become a possibility. Will technology one day succeed in making a 'bionic retina'? Will technology make television viewing possible in Braille? Will I become the next bionic woman? All I know is that when I hear the birds singing and feel the Braille dots as I write these words, I am grateful and thankful.
 
Give me deafness anyday, I never want to lose my sight. I could handle myself becoming deaf.
 
IM completely speechless whilist techology has helped , information hasn't in some areas, We'll see as time goes by....
and IM not going to comment on a certain subject.
 
Good for this person. I'm grateful my parents didn't implant me. I'm grateful I don't have to hear all the crap in this world. Silence is beautiful.
 
Wow...

I would rather be deaf than blind.. Not being able to see things with my own eyes would be hell for me.
 
I'm glad that ur fighting the bad and make it good out of it. I'm sorry to say this but I'm totally against cochlear inplant. I dont believe operations and stuff for people to go though then dislike them afterward or near death crap. I believe that something goes to ur ear should not go though operations would be hearing aids or something related. :D

With ur sight, I'm really glad that ur loving the reading because it actually helps ur english/grammer. I can tell by reading ur post. :D I hope i can hear more of it and learn more from you. :D

Just curious, have u got teased about it? I know alota peeps does get tease, I'm curious about you.
 
I have a old friend from church who's deaf and blind. She recognizes very few people by feeling their hands and I'm one of them. Once, I didn't see her for two years and one day at Six Flags for Deaf Awareness Day, I saw her passing by. I stopped her and her guide and I told him that I wanted to say hi to her. The guide asked me what my name was and I said, "No, just watch." and let her touch my hands. Within five seconds, "Shawn! It's been two years! How are you!?" and then hugged me. The guide was shocked to see that she could recognize me like that. Heh!
 
Originally posted by VamPyroX
I have a old friend from church who's deaf and blind. She recognizes very few people by feeling their hands and I'm one of them. Once, I didn't see her for two years and one day at Six Flags for Deaf Awareness Day, I saw her passing by. I stopped her and her guide and I told him that I wanted to say hi to her. The guide asked me what my name was and I said, "No, just watch." and let her touch my hands. Within five seconds, "Shawn! It's been two years! How are you!?" and then hugged me. The guide was shocked to see that she could recognize me like that. Heh!

Wow, so amazin abt that as deaf/blind can be very clever!
 
I do recall that when i was in 8 or 9th grade i can't remmy which one ... but It is true story that happen to me that hit me big time to face the real experiences for two weeks ... I have left eye blind and one eye are totally good vision. OFC u already know that I am deaf. lol ... Anyway, When I took gym class and play Field Hockey. One guy hit the ball too high and the ball flew and hit my right eye. I got blood all over my face. end up into Hospital and lucky nothing serious like break the bones or etc. but I had to use the patch cover my eye for two weeks and It change my life forever. My mom used to knew what is my favorite foods so she did cook some favorite foods of mine. but all sudden i hate these foods. and i had to crawl around to find where i want to go .. it ain't that fun at all even my mom told me that i had allot of company was round and i never knew they were there also told me about these foods. so i can see again and try eat favorite foods but still hate it ... so the DR said Thats ball hit my nerves of senses that cause change tastes and senses. so My mom give up and let me whatever i want to cook since i eat allot of weird foods to eat .. I am telling u that blind and deaf is totally no fun at all !!! Thanks Lord for give me the chance to see again !! so i had to be very careful with myself to avoid these happen again..
 
Originally posted by knightwolf68
I do recall that when i was in 8 or 9th grade i can't remmy which one ... but It is true story that happen to me that hit me big time to face the real experiences for two weeks ... I have left eye blind and one eye are totally good vision. OFC u already know that I am deaf. lol ... Anyway, When I took gym class and play Field Hockey. One guy hit the ball too high and the ball flew and hit my right eye. I got blood all over my face. end up into Hospital and lucky nothing serious like break the bones or etc. but I had to use the patch cover my eye for two weeks and It change my life forever. My mom used to knew what is my favorite foods so she did cook some favorite foods of mine. but all sudden i hate these foods. and i had to crawl around to find where i want to go .. it ain't that fun at all even my mom told me that i had allot of company was round and i never knew they were there also told me about these foods. so i can see again and try eat favorite foods but still hate it ... so the DR said Thats ball hit my nerves of senses that cause change tastes and senses. so My mom give up and let me whatever i want to cook since i eat allot of weird foods to eat .. I am telling u that blind and deaf is totally no fun at all !!! Thanks Lord for give me the chance to see again !! so i had to be very careful with myself to avoid these happen again..

:shock: YOU WHAT?! I'm glad that you're okay now and seeing things. Whew. Are you still blind in one eye now?

I prefer to be deaf instead of being blind because I feel that I can do almost everything except hear out there. Living in a silence world is so much fun for me (less headaches! :lol: )
 
Originally posted by knightwolf68
I do recall that when i was in 8 or 9th grade i can't remmy which one ... but It is true story that happen to me that hit me big time to face the real experiences for two weeks ... I have left eye blind and one eye are totally good vision. OFC u already know that I am deaf. lol ... Anyway, When I took gym class and play Field Hockey. One guy hit the ball too high and the ball flew and hit my right eye. I got blood all over my face. end up into Hospital and lucky nothing serious like break the bones or etc. but I had to use the patch cover my eye for two weeks and It change my life forever. My mom used to knew what is my favorite foods so she did cook some favorite foods of mine. but all sudden i hate these foods. and i had to crawl around to find where i want to go .. it ain't that fun at all even my mom told me that i had allot of company was round and i never knew they were there also told me about these foods. so i can see again and try eat favorite foods but still hate it ... so the DR said Thats ball hit my nerves of senses that cause change tastes and senses. so My mom give up and let me whatever i want to cook since i eat allot of weird foods to eat .. I am telling u that blind and deaf is totally no fun at all !!! Thanks Lord for give me the chance to see again !! so i had to be very careful with myself to avoid these happen again..

whoaaaaaaaaaaaaaaaa :shock: lucky you are still alive.
 
Originally posted by VamPyroX
I have a old friend from church who's deaf and blind. She recognizes very few people by feeling their hands and I'm one of them. Once, I didn't see her for two years and one day at Six Flags for Deaf Awareness Day, I saw her passing by. I stopped her and her guide and I told him that I wanted to say hi to her. The guide asked me what my name was and I said, "No, just watch." and let her touch my hands. Within five seconds, "Shawn! It's been two years! How are you!?" and then hugged me. The guide was shocked to see that she could recognize me like that. Heh!
:shock: what a Amazing Deaf/Blind person is so brillant !!!
 
Originally posted by VamPyroX
I have a old friend from church who's deaf and blind. She recognizes very few people by feeling their hands and I'm one of them. Once, I didn't see her for two years and one day at Six Flags for Deaf Awareness Day, I saw her passing by. I stopped her and her guide and I told him that I wanted to say hi to her. The guide asked me what my name was and I said, "No, just watch." and let her touch my hands. Within five seconds, "Shawn! It's been two years! How are you!?" and then hugged me. The guide was shocked to see that she could recognize me like that. Heh!

Wow! Amazing and awesome! I'm curious... do you carry on a conversation with her? If so, what's it like? I have never met a deaf/blind person before and I have always wonder what it is like to communicate with these neat people. Any advices for me to know, just in case I find someone?
 
ive met a few Deaf/Blind individuals -- personally i would prefer to be deaf over being blind yikes -- i would be forced to give up my love for driving and other things that a deaf person are able to do except hear (silence IS golden!!!!!)

i have a pal whos half blind as well as deaf and it doesnt bother me
 
wow!!!

I have been gone to eye drs lately.. to update my examinations.. since catracts run in family.. dr said i have that, but dont need to have surgery right now... but I told dr that i have trouble seeing in the dark.. or.. if i am in dark and come in light room, the black spots floating around my eyes.. (like you taken a pic, the flasher flashed, see those spots).. it takes long time to go away.. its like i have been blinded for while.. :ugh:.... dr said.. its normal for catracts.. ahh!
 
YIKES!!! I'm curious, what is it like to be half blind or full blind? I have some of my friends who are half blind but will turn into full blind in their later life. They were upset to find out for the fact but i am not sure if they're accepting the fact now. I didnt talk with their "blindness" because I feel I should respect them and if they brought up then I'll talk about it. That how i feel. :D
 
Originally posted by VamPyroX
I have a old friend from church who's deaf and blind. She recognizes very few people by feeling their hands and I'm one of them.

When I worked for the deaf camp, we had two deafblind campers. At that time, I used to have cyst on my right hand, so they always knew who it was. "Marc! How are you?" The guy was really funny, made ma laugh all the time. Anyway, talking with deafblind is no different than talking to a deaf person. The campers used their hand on my signing and knew what I was saying. I was really amazed how it was, 'cos I tried it in darkness with deaf friends and whoa, so tough. Guess it takes a lot to get used to it. Amazes me how they can understand your fingerspelling, as if you were spelling normally.

You're really lucky Knightwolf, that your right eye healed back fine. I remember one time, someone had a camera too close to me and flash made me so blind, I couldn't see anything. I just went to bed and next morning I woke up, being able to see again. I was really afraid.
 
I NEVER met a person who is both deaf and blind before, but sure I have met some who are blind and some who are deaf...and i'm sure most of you know Helen Keller, the girl who had a high fever and came deaf and blind for the rest of her life...my great grandmother met her in school before i was born. To me, it just seems that while being deaf and blind, it gives you special kind of senses like Shawn said, who can remember people by feeling their hands or faces, even if they haven't met eachother in a year or so. They could also have excellent sense of smelling, even half a mile away. You see, when you lose a sense or two, special sense are included to the person...not to the hearing/seeing person. They proably do have better senses than hearing and seeing people do. I would rather be deaf than blind so i could see where i'm going and what is about to happen etc...but most hearing people told me they rather be blind than deafness...i don't know why. Just because you are deaf or blind doesn't mean you are stupid...there are even some animals who are deaf and blind...even red-eyed white mice are blind, but very intellent creatures who can climb onto wires, smell and locate the cheese, and feel something and remember what it is before...etc. Deaf creatures can feel virbration better than hearing creatures, and has better sight than seeing people, etc but don't always has the good sense of smelling...and i don't have the great sense of smelling lol but i could feel vibrations and see things better with my glasses though.

lol that story is just like DareDevil, the superhero who is blind, can fight very well and "sense" when the attack is coming in, and stuff like that. very cool.
 
Originally posted by Steel
lol that story is just like DareDevil, the superhero who is blind, can fight very well and "sense" when the attack is coming in, and stuff like that. very cool.

:squint: I thought you said Daredevil sucked!
 
no i said the movie was OKAY...but i liked the comics better lol
 
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