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Hi, All! You may remember from my previous posts that I was recently diagnosed with Otosclerosis. I am having some new problems recently and want your advice on whether they could be related to Otosclerosis, be Meniere's, or something else like migraines. Twice now I have gotten a headache...

Hello there! I was recently diagnosed with otosclerosis at the age of 32. So far, I have just a mild loss, tinnitus, balance, and infrequent vertigo. I have read that otosclerosis can cause profound, sensorineural loss if chemical by-products of the decalcification/recalcification damage the...

Krissy, I saw in your intro that you lost hearing at 14, do you have Otosclerosis?

Well, suddenly I feel significantly less crazy! I don't get the head pounding though. I like your theory about the tinnitus, I wonder if it is burning out the sounds it plays.

Is it like a "ZAP" noise/feeling like a painless electrical short or current? I get that sometimes when I am lying in bed at night in the quiet. It jolts my whole body for a split second. Usually it feels like it comes from the ceiling... very weird. (I do not have MS and it doesn't happen...

I am going to learn ASL starting in January, and my fiance will learn it with me. So hopefully that will help at home. It will be a major transition, especially for him. I imagine I will have no choice but to be exhausted from work, for as long as I want to stay in my career.

I think they would give me a headache, too. I get headaches from being in places with loud backgrounds, usually a busy train car or restaurant/bar where many conversations happen at once.

Interesting. I certainly would not take the medication as my tinnitus isn't bad. I might try out the CDs, my mom said they did not make much of a difference for her. The crackling sounds more physical rather than a tone or whooshing noise. It's like the difference between your ears popping in...

Wow, that is really expensive and sounds really frustrating. I hope he can find a good deal soon.

What are tinnitus relaxers? :hmm:

So was it easier for your husband with the HAs than the CI? I know that wasn't your point, but I'm just curious. By the time I get home from work, I just want to watch TV and relax. I imagine it will get more tiring as my hearing gets worse. I kind of wish it would either get better or...

I think I have had every blood test done that exists. Thats why I thought maybe it was related to losing my hearing. I never thought about food allergies. I am highly allergic to environmental allergens, so that may be a possibility. I will look into it. Thanks!

I have had my fasting blood sugar testing and was told it was fine. Due to various symptoms, I've also been tested for thyroid dysfunction, rhuematoid arthritis, lupus, dysautonomia, sleep apnea, lyme disease, etc, etc, etc. Every one of them was negative. My bloodwork looks great excelt for a...

I have had my fasting blood sugar testing and was told it was fine. Due to various symptoms, I've also been tested for thyroid dysfunction, rhuematoid arthritis, lupus, dysautonomia, sleep apnea, lyme disease, etc, etc, etc. Every one of them was negative. My bloodwork looks great excelt for a...

That makes sense. I definitely notice that I get tired and cranky when it is hard for me to hear. I wonder if it also contributes to being tired overall. I don't know if I am also worn out from balancing. I still need to make my vestibular rehab appointment. Maybe that doctor will know...

Are you consistently tired, or is it worse at certain times? I am most tired first thing in the morning and late afternoon. Could it be "residual sound" you are hearing? (I don't know if you were ever hearing.) Also, could it be sounds from inside your head/body - like you are hearing body...

I don't think I'm depressed, I have actually been tired for 2 years now (along with a lot of intermittent illnesses) but I just found out about otosclerosis recently and generally life is pretty good to me. From everything I've read, otosclerosis is localized just to the ear, but...

I am wondering if losing hearing makes you really tired. I mean this in 3 ways: 1. Most obvious: tired from working/straining to hear 2. General sleepiness and feeling tired almost all day, sleeping a lot 3. Physical exhaustion where your muscles are fatigued after doing very little It...

Thanks, Jazzberry! I would certainly hire Detective Naisho again! Highly recommended! :lol:

MissBass, thanks! My aunt did seem happy to hear from me, which was a big relief! She sent me an update on where she has been living and other details. She and her husband have been through some tough times, but they are doing great now. :)