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Here (Pendred Syndrome [NIDCD]) is the National Institutes of Health page on Pendred Syndrome. It says that up to 40% of individuals with this syndrome will have "some vestibular weakness when their balance system is tested. ... Some babies with Pendred syndrome may start walking later than...

I agree... too much was made about the "hearing for the first time" bit. I'm not going to complain too much about the Starkey promotion, as Extreme Makeover is ALL about the product placement & sponsor promotion (Sears, the lumber companies, the cabinet companies, the tile companies, etc). I...

I completely understand what you mean by getting nothing but stress out of social events. So go to deaf/signing events! I'm HoH (not due to loss, but due to Auditory Processing Issues), and I try to avoid most large social events. But deaf/signing events I really enjoy! No struggling to...

I was lucky, my insurance paid 100% for my (c)APD diagnosis! :D Why they won't pay for hearing aids though is beyond me!

I submitted a new introductory post! Hopefully this one won't get lost in mod-approval land. ::crosses fingers::

I'll retype it, then! And I'll put up an avatar pic, but it won't be of me! (I'm paranoid about real-life people finding me online). Thanks for the prompt answer to my question!

I wrote a rather lengthy introductory post (in the introduce yourself forum). I seem to recall something about a message popping up that said my post would appear after being reviewed by a mod. How long is that process supposed to take? I'm hoping my post is still out there somewhere, as...

I know I'm resurrecting an old(ish) thread, but I was wondering if you could tell me more about what you like about the Hit Pros. How do they do in noisy situations? These are one the kinds of aids my audi recommends for her adult patients who have APD. (the Vigo Pros & Agil Pros are the...

Hi Rachel! I'm from Oregon too! (my Intro post should be up soon). I'm down in the Southern Willamette Valley area. :) Where are you at?

I registered a while ago, but never got around to doing an introduction post (as far as I can tell). The last few years I've started to have significant trouble with hearing in anything but quiet with only a few people in the conversation. In March 2009 I went to get my hearing tested...