Recent content by echo77

Anyone here have hearing loss because of Ehlers Danlos Syndrome?

I wish my reactions were just hives. Instead for me my white blood cells (eosinophils) attack my esophagus. I have to go in for surgery every 3-5 months to get the eosinophils removed and my esophagus stretched so I can swallow. That is just one of my reactions.

So I saw the ENT. He said that he could put tubes in my eardrums, but that it probably would not get rid of the vertigo or the tinnitus. It would get rid of the feeling of fullness I have in my ears though. So I told him I would think about it. Everytime anyone goes in for surgery we have the...

Thanks everyone. I do go in to the room and just feel inferior, and so I forget what I need to say because of that. I am only 4'10 in height so I'm always looking up at people. I like my Primary Doc, she teases me a lot. Such as I've been with her for 2 years now and in the beginning I told her...

MMcC- I have written down my questions in the past for my other specialists, but no one seems to pay attention to them. Nic- I do use my right ear for everything and try to place myself (if in a room of people) where the most talkative person would be on my right side. I have gotten to the point...

Hi thanks for responding. I see my ENT next week, and I know I have a lot to tell them. But, once I get in a room I totally get "white coat" syndrome and freeze up. Do you have any suggestions on what I should bring up. I'm going to try to bring up the issue that I had the other night with my...

I sleep, clean the house, hand wash the laundry, prepare for the kids day, and try to sleep some more.

Ok so back in March my PCP thought I had menierre's disease (sorry if I spelled it wrong). In April I saw the audiologist and she said that my hearing was below average. That I had some loss in my right ear, and more in my left ear. She also said that I can hear words just fine, but that I need...

So in March I finally gave in and told my Primary doctor about the funny sounds I hear in my ears, we already knew about my vertigo issues. She thought I might have Mennieres and sent me to Audiology after I failed the in clinic hearing test. I see Audiology and they say I have Eustachian Tube...

I'm trying to learn ASL. I would love to join in on Skype.

I went to download it on my tablet, and it asked for a cell phone number. I don't have a cell phone. But I downloaded Skype and so far it hasn't asked me to use a phone number. Just a persons ID.

is glide free like Skype?

Looking for people out there who have Meniere's Disease or Menierre's Disease. My Primary is sending me to an Audiologist because she thinks I have it. I would like to get some info on a more personal touch then blah blah blah from the internet. Thank you.

where should I post a thread about Meniere's?

Thank you everyone. Are there any members on here that have Menierre's? When I put it in the search area it comes back with nothing.