Courtneydang
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- Joined
- Dec 29, 2012
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hi guys! my story is kinda long.
My daughter is now 6 years old and has been losing her hearing since she was 3. no doctors, ENT or audiologist seems to be able to tell me why or if she will eventually loose all of her hearing.
she first saw an ENT when she was almost 3 years old,(for recurring strep throat) he said she had about a 30% hearing loss in her right ear and 10 in her left, it was probably caused by an ear infection that got left untreated and scared her ear drum. he said tubes may or may not help, and it would probably resolve its self before she started kindergarten. so i opted not to do the tubes, mostly because i couldnt come up with the money to do it. insurance only covered $11 of the entire surgery. thats another story for another day.
the beginning of her kindergarten year was fine, she would occasionally get in trouble for "not listening" or being loud, but nothing outrageous. she was an only child that had never been to day care so being rambunctious was to be expected i suppose. towards the end of the year it was noticeably worse, she was constantly asking me to repeat my self and cupping her hand around her ears. so we were back in the doctor who really didnt say anything, we couldnt get a referral to an ENT because she wasnt getting ear infections.
so in the past six months its alot worse. she cant hear unless im directly in her face and speaking quite loud and shes lip reading as best she can. if she cant see me, unless im yelling, she doesnt even know im speaking. her spelling is far behind, shes spelling what out lips say "wet" when you say "went" and her speech is starting to sound the same. she has the volume on the tv all the way up and with the sub titles. we were in the audiologist this week and he offered no explanation or solution. he said she had "moderate conductive hearing loss, abnormal acoustic reflex and abnormal outer hair cell function". but didnt explain what any of that meant or what i need to do now. i left with more questions then answers. now im trying to get her to an ENT to try to figure out what we need to do.
its been a not fun adventure.
we are trying to learn how to sign to make communicating a little easier at home. and i have no idea about what to do at school. shes a brilliant girl, but she cant display that at school because she cant hear the instructions. and the teacher just gets short with her and she ends up in trouble when shes asking for instructions to get repeated. ive already had to switch he teacher once.
so here i am. where do i start, learning how to sign in adulthood, and teaching her? any advice or where to start with anything would be greatly appreciated.
My daughter is now 6 years old and has been losing her hearing since she was 3. no doctors, ENT or audiologist seems to be able to tell me why or if she will eventually loose all of her hearing.
she first saw an ENT when she was almost 3 years old,(for recurring strep throat) he said she had about a 30% hearing loss in her right ear and 10 in her left, it was probably caused by an ear infection that got left untreated and scared her ear drum. he said tubes may or may not help, and it would probably resolve its self before she started kindergarten. so i opted not to do the tubes, mostly because i couldnt come up with the money to do it. insurance only covered $11 of the entire surgery. thats another story for another day.
the beginning of her kindergarten year was fine, she would occasionally get in trouble for "not listening" or being loud, but nothing outrageous. she was an only child that had never been to day care so being rambunctious was to be expected i suppose. towards the end of the year it was noticeably worse, she was constantly asking me to repeat my self and cupping her hand around her ears. so we were back in the doctor who really didnt say anything, we couldnt get a referral to an ENT because she wasnt getting ear infections.
so in the past six months its alot worse. she cant hear unless im directly in her face and speaking quite loud and shes lip reading as best she can. if she cant see me, unless im yelling, she doesnt even know im speaking. her spelling is far behind, shes spelling what out lips say "wet" when you say "went" and her speech is starting to sound the same. she has the volume on the tv all the way up and with the sub titles. we were in the audiologist this week and he offered no explanation or solution. he said she had "moderate conductive hearing loss, abnormal acoustic reflex and abnormal outer hair cell function". but didnt explain what any of that meant or what i need to do now. i left with more questions then answers. now im trying to get her to an ENT to try to figure out what we need to do.
its been a not fun adventure.
we are trying to learn how to sign to make communicating a little easier at home. and i have no idea about what to do at school. shes a brilliant girl, but she cant display that at school because she cant hear the instructions. and the teacher just gets short with her and she ends up in trouble when shes asking for instructions to get repeated. ive already had to switch he teacher once.
so here i am. where do i start, learning how to sign in adulthood, and teaching her? any advice or where to start with anything would be greatly appreciated.