sedated abr testing reliable?

frankiesmom said:
oh i mean..i KNOW he has hearing stuff going on..but i didnt want to pop off about a test being the gold standard of testing or whatever, and then find out its not that reliable. its ok though..i had someone ask me for the second time this week.. "cant or wont?"


:blah: sooo rude...like the guy at the convenience store who was gawking at his hearing aids..and asking if they were hearing aids and then asking "so have you thought about the implant yet?"

I love these tube riders but oh man, i have had 80 thousand people asking if his little firetrucks/turtles are the hearing aid, followed up with an autism/implant remark..
:roll: :lol:
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How wonderful that you get to walk in Frankie's shoes. Not wonderful, that's not what I mean, but I do not know right words.

Are you frustrated yet? With the ignorance that is out there?:roll:

Frankie has been a gift to you and your family. He open a whole new world for you that you probably do not know exist before he come into your life.

What I really *really* like about you is how firey you are. Like me. Firey mothers need to support one another.:hug:
 
frankiesmom said:
hes a sweet pea! but oh my god, everyone is on with the autistic thing..seriously, that has got to be the latest diagnosis, much like the adhd thing from the 90s.
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You are a smart woman and a smart Mum. Use *your* intuition, as I know you will, to tell these people they are wrong. Nothing that you have written tells me autism and two of my best buddies have autistic child.

His symptoms might *seem* autistic but I don't think it's that either.

I *know* you will find the answer to the mystery. You and me same. Answer is out there and you will find it.
 
CSign said:
I would say a sedated ABR is more reliable than not sedated. As he gets older, there will be other tests they can use. The tests are all relative, and give you a sense of where he's at.

If he is not responding to sound with his HA's it could be for various reasons.
1) his hearing loss is so profound HA's don't benefit him (Not necessarily your son, I don't know the degree of loss)
2) since he recently got them, perhaps he hasn't figured out what these sounds are... Doesn't know or understand yet to respond to sound...
3) Auditory neuropathy where access to sound is intermittent and lies within the brain rather than the cochlea etc. Much more to AN than that though...

I'd say trust your audiologist, and know that there are different tests that can measure hearing loss.
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I disagree. A Mum should trust her own knowledge and instincts and not an audiologist who is there to *sell* fixtures to make deaf children hearing.
 
rebeccalj said:
I disagree. A Mum should trust her own knowledge and instincts and not an audiologist who is there to *sell* fixtures to make deaf children hearing.
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I get your point. However, as laypeople we have to trust someone. Therefore, the audi's imput would be of value. Then, Frankie'sMom can form her own opinion from there.

Afterall, that's what really matters here. FrankiesMom is the one who is going to make the final determination on how much his hearing loss is mitigated or not. She's already teaching him ASL, I believe. He's aided, but she's refused the CI. So, she's already making decisions for her child.... Frankie'sMom knows what's she's doing.
 
Yowza.

Have you been to an audi?

Personally, I love mine. She's a fantastic lady. She makes my new earmolds when I need new ones. She repairs my tubing when needed.

BUT ! They are indeed biased. They need to make money in order to keep their office open. They will push for certain products. They don't necessarily have the parents' (or child, for that matter) best interests in mind. Earmolds don't make them money. Tubing replacement doesn't make them money. Certain HAs and CIs do. I'm 100% positive that the HAs I have are based solely off what manufacturers they work with, and not necessarily what are the BEST HAs for me. I'm already wanting to change them. (This is not necessarily just MY personal opinion. Many of us deafies here have said the same.)

So until you visit an audi, I'm not so sure you should be telling someone an audi's input is of value.
 
Oceanbreeze said:
I get your point. However, as laypeople we have to trust someone. Therefore, the audi's imput would be of value. Then, Frankie'sMom can form her own opinion from there.

Afterall, that's what really matters here. FrankiesMom is the one who is going to make the final determination on how much his hearing loss is mitigated or not. She's already teaching him ASL, I believe. He's aided, but she's refused the CI. So, she's already making decisions for her child.... Frankie'sMom knows what's she's doing.
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Ocean, that is pretty much what I'm getting at. I suppose I should have elaborated a bit more. I don't think you should just do what a "professional" says- you should ask them questions, do research and form your opinion.

As Beachgirl (I think) mentioned, AllDeaf isn't really the place to get this sort of information. We all have opinions and experience, but we are not "professionals".

My sons sedated ABR was comparable to his behavioral testing when he was younger. So, I do believe they are reliable- but I; as well as others, am not an audiologist. You should express your concerns to your Audi.
 
I think even Beach Girl mentioned something along the same lines of what I was saying. She (if I'm referring to the wrong person, I apologize) was testing new HAs. She wasn't able to test all manufacturers because her audi didn't carry them all. So that audi was pushing certain products that may not necessarily be the MOST or BEST choices for her trials.
 
AlleyCat said:
Yowza.

Have you been to an audi?

Personally, I love mine. She's a fantastic lady. She makes my new earmolds when I need new ones. She repairs my tubing when needed.

BUT ! They are indeed biased. They need to make money in order to keep their office open. They will push for certain products. They don't necessarily have the parents' (or child, for that matter) best interests in mind. Earmolds don't make them money. Tubing replacement doesn't make them money. Certain HAs and CIs do. I'm 100% positive that the HAs I have are based solely off what manufacturers they work with, and not necessarily what are the BEST HAs for me. I'm already wanting to change them. (This is not necessarily just MY personal opinion. Many of us deafies here have said the
same.)
So until you visit an audi, I'm not so sure you should be telling someone an audi's input is of value.
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I guess I'm not sure where you're going with this... On one hand your saying you like your audiologist, which would mean you have some level of trust in them. On the other hand your speaking out against placing value on the audiologists position... It seems somewhat contradictory.

I don't have any experience with Cardiologists, but if someone were to come here and discuss heart problems, I'd recommend they go see a cardiologist. Just because I don't personally have experience with one doesn't make my statement any less true, nor does it make the Cardiologists professional input null and void.

A cardiologist went to school to study something specific, just as an audiologist went to school to specialize in a very specific field as well.

Not all "specialists" are trying to make a buck. They are trying to help people. If a person doesn't want HA's, an audiologist cannot (and most would not) force it on a person. They take the clues from the patient.
 
AlleyCat said:
I think even Beach Girl mentioned something along the same lines of what I was saying. She (if I'm referring to the wrong person, I apologize) was testing new HAs. She wasn't able to test all manufacturers because her audi didn't carry them all. So that audi was pushing certain products that may not necessarily be the MOST or BEST choices for her trials.
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Hmmmm, interesting. I haven't thought about it, but what should a person do before seeing an audi? Research all makes and models and narrow down what would best suit you? It seems so sad.
 
CSign said:
I guess I'm not sure where you're going with this... On one hand your saying you like your audiologist, which would mean you have some level of trust in them. On the other hand your speaking out against placing value on the audiologists position... It seems somewhat contradictory.

I don't have any experience with Cardiologists, but if someone were to come here and discuss heart problems, I'd recommend they go see a cardiologist. Just because I don't personally have experience with one doesn't make my statement any less true, nor does it make the Cardiologists professional input null and void.

A cardiologist went to school to study something specific, just as an audiologist went to school to specialize in a very specific field as well.

Not all "specialists" are trying to make a buck. They are trying to help people. If a person doesn't want HA's, an audiologist cannot (and most would not) force it on a person. They take the clues from the patient.
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I do love my audiologist, personality wise. When I first started with her, I told her about my concerns with previous audi's where I was getting awful earmolds made (constant feedback). She gave me all kinds of samples to look at and I said "I want to try this one", and boy, did I make the right choice. Love them!

That has nothing to do with trust level in determining whether she's choosing the right HAs for me. I just pointed out an example about BG (if I"m referring to the right person). She's (the audi) is going to make thousands of dollars off whatever purchase I would make, and if she's giving me recommendations based on the manufacturers she works with (and not necessarily what would be the best products for me, but only the best she has because she chooses not to work with other manufacturers, that's biased.)

SO many of us have said the same about our audi's. I'm by far NOT the only person to say what I've said. Not remotely close.
 
Beowulf said:
Hmmmm, interesting. I haven't thought about it, but what should a person do before seeing an audi? Research all makes and models and narrow down what would best suit you? It seems so sad.
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That was why I was asking her if she could go see other audi's. Have something to compare to.
 
I was MISdianosed with Autism for 4 years. In reality I just could not hear.
 
CSign said:
I guess I'm not sure where you're going with this... On one hand your saying you like your audiologist, which would mean you have some level of trust in them. On the other hand your speaking out against placing value on the audiologists position... It seems somewhat contradictory.

I don't have any experience with Cardiologists, but if someone were to come here and discuss heart problems, I'd recommend they go see a cardiologist. Just because I don't personally have experience with one doesn't make my statement any less true, nor does it make the Cardiologists professional input null and void.

A cardiologist went to school to study something specific, just as an audiologist went to school to specialize in a very specific field as well.

Not all "specialists" are trying to make a buck. They are trying to help people. If a person doesn't want HA's, an audiologist cannot (and most would not) force it on a person. They take the clues from the patient.
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Even a cardiologist would push his brand, which he is paid to do. That is a fact of life.
An audiologist does the same thing. That is from personal knowledge, since each audiologist I saw recommended only certain makes and models of HA's.
 
CSign said:
I guess I'm not sure where you're going with this... On one hand your saying you like your audiologist, which would mean you have some level of trust in them. On the other hand your speaking out against placing value on the audiologists position... It seems somewhat contradictory.

I don't have any experience with Cardiologists, but if someone were to come here and discuss heart problems, I'd recommend they go see a cardiologist. Just because I don't personally have experience with one doesn't make my statement any less true, nor does it make the Cardiologists professional input null and void.

A cardiologist went to school to study something specific, just as an audiologist went to school to specialize in a very specific field as well.

Not all "specialists" are trying to make a buck. They are trying to help people. If a person doesn't want HA's, an audiologist cannot (and most would not) force it on a person. They take the clues from the patient.
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I have to slightly disagree with this. Our medical system here in the US is set up to make money. Therefore, I can see where an audi would push certain brands on people and such. That makes sense. Same with going to an optometrist. I had one eye Dr try to push Lasix on me because he knew he'd make money off the procedure. I refused.

I'm NOT disputing the whole money making angle. It's there and it's blantantly there. However, I'm saying that one has to pick their poison so to speak. Frankie already has HAs, so his Mother is GOING to be dealing with an audi. That's a given. All I suggested was that as a Mother, she's going to have to trust SOMEONE; be it an audi, SLP, other professional down the line.

The last thing we want to do is make this woman afraid to trust a professional opinion given Frankie's complex issues.
 
Oceanbreeze said:
I have to slightly disagree with this. Our medical system here in the US is set up to make money. Therefore, I can see where an audi would push certain brands on people and such. That makes sense. Same with going to an optometrist. I had one eye Dr try to push Lasix on me because he knew he'd make money off the procedure. I refused.

I'm NOT disputing the whole money making angle. It's there and it's blantantly there. However, I'm saying that one has to pick their poison so to speak. Frankie already has HAs, so his Mother is GOING to be dealing with an audi. That's a given. All I suggested was that as a Mother, she's going to have to trust SOMEONE; be it an audi, SLP, other professional down the line.

The last thing we want to do is make this woman afraid to trust a professional opinion given Frankie's complex issues.
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The issues may be complex, but I don't think it would really make a difference what brand is ultimately used. Today's technology makes them all practically identical, IMO.
 
Beowulf said:
The issues may be complex, but I don't think it would really make a difference what brand is ultimately used. Today's technology makes them all practically identical, IMO.
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I'm not just referring to the audi here. I'm referring to any professional she may encounter. This child's issues are complex and she's going to be dealing with a lot of people.

Audi, SLP, (possibly) OT, and so forth. As I said, the last thing we want to do is instill fear and mistrust in this woman so early in the game. :)
 
I would agree to a certain extent that some are more than happy to profit. However, I don't believe that all Audi's are like that, or all optometrists etc. I'd like to believe that some-many do have the patients best interest at heart.

I do know that we are dealing with humanity though, and humans are inherently selfish creatures.
 
CSign said:
I would agree to a certain extent that some are more than happy to profit. However, I don't believe that all Audi's are like that, or all optometrists etc. I'd like to believe that some-many do have the patients best interest at heart.

I do know that we are dealing with humanity though, and humans are inherently selfish creatures.
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Oh, no. You're absolutely right. I'm sure there are many good audis (and other professionals) out there who aren't in it "just for the money". I'm just trying to be realistic, and say, that there are a lot of them out there. By no means, though, do I mean to suggest that ALL of them are like that. I know that's not true. :lol:
 
CSign said:
As Beachgirl (I think) mentioned, AllDeaf isn't really the place to get this sort of information. We all have opinions and experience, but we are not "professionals".
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and that is what i was looking for..merely an opinion, nothing more.
:giggle:
 
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