Suzy Q

Suzie Q

New Member
Hey there. My name is Sue. My daughter has always been profoundly deaf in her right ear from birth. She (Stevie), 2 weeks before xmas 2009 woke up one morning moderately - severely deaf in her left ear. This has been so life changing and hard to understand why. Her MRI was clear showing no cause. It was sudden.
Presently she is wearing a hearing aid on her left ear which gives her the opportunity to have one on one conversations. Group conversations, listening to tv, music and people in shopping centres and the like are impossible. She says she feels like she has a hammer pounding in her head when she goes out to noisy places. She is also suffering loud tinnitus.
I dont know how to help her, apart from making appointments at every specialist hearing place I can find for as many opinions as we can get, and slowly working out what is and what isnt going to be possible.
Her ear nose and throat specialist says she may benefit from cochlear implant in her right ear and being that she is only 27yrs of age, she may be able to adapt even though she has never heard with her right ear before. The audiologist says implanting the right ear would be of no benefit whatsoever as she has never heard with that ear before and her brain would not recognise anything going to that ear. She (the audiologist) says that Stevie would be better off getting an implant in her left ear. How can a specialist and and audiologist be so opposite in their opinions? I have made an appointment with the Lions Institute for Hearing which isnt till the 8th March......for another opinion and some more advice and hopefully she will have been using her loan hearing aid long enough to know if she is going to get any benefit from it. What a confusing and worrying time. I am going to ask....or at least show Stevie this site because I think she needs to know that she is not the only person her age because at the moment she is lonely and devastated.
Thankyou for allowing me into this forum and for answers i have received so far.
:confused:
 

stefan2832

New Member
Welcome to Alldeaf

She is certainly not alone! A lot of people on this site, each with a different story. I lost most of my hearing quite suddenly in my late thirtys so I know what it's like to suddenly feel isolated and have that feeling of devastation. But life does not end just because your hearing goes, In fact it kind of starts again! I had to learn new skills [lip/reading +sign] which I enjoyed, I must admit! I've made some great friends that I'd never have met if the old hearing had not crashed!:lol:

The only part of my life that I find hard is trying to do my job. Other than that I'm used to been a deafie and I'm quite happy to go through life without the old hearing. By the way, I'm only 3 years without hearing!
 

Bottesini

Old Deaf Ranter
Premium Member

Suzie Q

New Member
Thankyou so much for your welcomes and words of wisdom. And also for the "late hearing loss" site info. I hope that Stevie will be doing some of her socialising here soon because you are inspirational and friendly and helpful and she will find friends here who understand her and how she feels in ways no others can.
You know as a parent we always come running to help our children no matter how old they are or whatever the problem, their pain is our agony. I have always tried to help and rescue.....however....this time is like having my hands tied behind my back because I cannot fix the problem, though meeting you all here and reading your posts is comforting. We are going to go and have grief counselling asap and keep in touch here. :ty:
 

KristinaB

Emotional Mess
Premium Member
Welcome to AllDeaf!!! :wave:

Hope she begins to feel better about this. It is an adjustment. I had been hoh since birth but in my early 40's lost all hearing. I am total deaf and after an adjustment, it is like a new lease on life.
 

Bebonang

Active Member
:welcome: To AllDeaf forum. I think from my own opinion that you should listen to the Ear, Nose and Throat specialist if he knows what her ears and her hearing might have problems while the audiologist is only a hearing aid specialist (which is by the way he or she is not a doctor). That is two different persons. The audiologist should not jump into the Cochlear Implant (CI) making you get into the risky surgery for your daughter to be able to hear clearly. Again, that is something you both need to talk with her doctor about that. Being deaf is not tragic or terrible. It take times to get adjust or adapt to her loss of hearing going to deafness. Just be there for her, but do not push her. Let her decide for herself. She will be fine. I hope she will come here soon if she feel like visiting and posting the threads here. As for you, just have fun reading and posting all the threads here. See you around here. :wave:
 

Lighthouse77

New Member
:welcome: To AllDeaf forum. I think from my own opinion that you should listen to the Ear, Nose and Throat specialist if he knows what her ears and her hearing might have problems while the audiologist is only a hearing aid specialist (which is by the way he or she is not a doctor). That is two different persons. The audiologist should not jump into the Cochlear Implant (CI) making you get into the risky surgery for your daughter to be able to hear clearly. Again, that is something you both need to talk with her doctor about that. Being deaf is not tragic or terrible. It take times to get adjust or adapt to her loss of hearing going to deafness. Just be there for her, but do not push her. Let her decide for herself. She will be fine. I hope she will come here soon if she feel like visiting and posting the threads here. As for you, just have fun reading and posting all the threads here. See you around here. :wave:


I agree except I think she should talk to an audiologist who specialize cochlear implant and mapping. She more likely have experience what works and what doesn't.The ENT doctor (or the doctor who does the implant surgery) doesn't really handle the mapping.
 

Koala

Cuddly bear
Premium Member
Hi Sue, welcome to alldeaf! I'm a West aussie here too. I hope you will find this site useful and a great place to learn. So enjoy browsing and posting whatever you want to say. :)
 
Top