Might be looking into getting CI

ladysolitary85

New Member
Hey everyone so I went to a new audiologist for a hearing exam and found out my hearing is actually getting worse. I'm not getting enough clarity with my current hearing aid (it's not very old a few months) and she advised that I got a cochlear implant. My right has complete loss my left seems to be going the same way.

It's a very big and personal decision, but I would really love to hear a few of you who' had the CI and your story.
 

Attachments

  • 1656323_10152178762695359_1510394106_n.jpg
    1656323_10152178762695359_1510394106_n.jpg
    76.2 KB · Views: 41

HOH-ME

Member
Best think I ever did was get a CI. It's really nice to have my life back again. I can hear and understand people in all situations, listen to music, watch tv, go to movies, go to restaurants and understand what people are saying. Just wish I would have done it sooner!!

Obviously dereksbicycles doesn't have a CI...
 

shel90

Audist are not welcome
Premium Member
Best think I ever did was get a CI. It's really nice to have my life back again. I can hear and understand people in all situations, listen to music, watch tv, go to movies, go to restaurants and understand what people are saying. Just wish I would have done it sooner!!

Obviously dereksbicycles doesn't have a CI...

Deaf who don't have CIs people can understand people, watch tv, go to movies, go to restaurants and understand what people are saying. Just saying....

If one wants to get a CI, great for that person but there are ways without needing a CI to do all those stuff, fyi.
 

HOH-ME

Member
Deaf who don't have CIs people can understand people, watch tv, go to movies, go to restaurants and understand what people are saying. Just saying....

If one wants to get a CI, great for that person but there are ways without needing a CI to do all those stuff, fyi.

Just sayin that isn't true if you grew up in a hearing world, none of your friends sign and you hate subtitles...
 
Deaf who don't have CIs people can understand people, watch tv, go to movies, go to restaurants and understand what people are saying. Just saying....

If one wants to get a CI, great for that person but there are ways without needing a CI to do all those stuff, fyi.

Not everyone wants to constantly exert the effort to speech read, read captions that are way behind the audio or incorrect, wear glasses at the movies, or use interpreters. Yes, there are ways to cope, but coping is not the same as hearing with a CI.
 

ladysolitary85

New Member
You both have excellent points. Ok here's my thoughts. I will always be deaf either way and I don't mind the subtitles though I get tired lip reading sometimes. I need, I really need to become more fluent in ASL. I know my social anxiety is becoming worse. I only text on the phone because hearing on the phone is too hard to understand. I know the CI wont bring back normal sounds, I just want to know if it gives you more clarity than a HA could offer because right now my HA is just barely getting me by and its only 4 months old!

But there's so many factors to consider . I need to know the pros and cons. I also need to know if this will effect my SSI.
 

MangaReader

Active Member
You both have excellent points. Ok here's my thoughts. I will always be deaf either way and I don't mind the subtitles though I get tired lip reading sometimes. I need, I really need to become more fluent in ASL. I know my social anxiety is becoming worse. I only text on the phone because hearing on the phone is too hard to understand. I know the CI wont bring back normal sounds, I just want to know if it gives you more clarity than a HA could offer because right now my HA is just barely getting me by and its only 4 months old!

But there's so many factors to consider . I need to know the pros and cons. I also need to know if this will effect my SSI.

That does not affect SSI/SSD in any way. They consider you a person with disability whether you have CI or HA. It is NOT a cure for deafness.
 

ladysolitary85

New Member
I just need to learn so much about it... I'm afraid that if I do it then it will only work for a few months and then not be a benefit to me and then I'm stuck with this in my head. There's so many questions. I'm very neutral about it.
 

MangaReader

Active Member
It can be removed if necessary. A friend I know had his put in and later found out he didn't like it so he had it removed. Been using his HA since.

Do alot of research and see what the pros and cons are. Only you can decide what's best for you.
 

deafdyke

Well-Known Member
You both have excellent points. Ok here's my thoughts. I will always be deaf either way and I don't mind the subtitles though I get tired lip reading sometimes. I need, I really need to become more fluent in ASL. I know my social anxiety is becoming worse. I only text on the phone because hearing on the phone is too hard to understand. I know the CI wont bring back normal sounds, I just want to know if it gives you more clarity than a HA could offer because right now my HA is just barely getting me by and its only 4 months old!

But there's so many factors to consider . I need to know the pros and cons. I also need to know if this will effect my SSI.

Well, you could implant your deaf ear and use the HA with the CI!
 

drphil

Active Member
The hardest part in advising re: Cochlear Implants is the exact status of questioners Cochlea/ears etc. Thus the ENT doctor has to be very clear on how you can benefit based on the diagnosis of what was found.

Not everybody is "suitable" for one.

aside: I do in fact have a Cochlear Implant- 6 1/2 years now and have had no problem whatsoever. Where I got the Implant-Sunnybrook/Toronto-their experience- examined 3000 referred adult patients of which 2000 were "unsuitable" Of the 1000 implanted I was one. Also 18 didn't benefit for their implant. Info given about a year ago-patients meeting.

aside Had genetic SN loss, fortunately in good physical health.

Much succes in the decisions coming up.
 

hazridi

New Member
My audiogram was pretty similar to yours and I implanted my worst ear. I don't regret it one bit, the CI is far clearer than any HA has ever been and I can communicate with hearing people with no problem. Really, not being able to hear people was really frustrating and stressful and it's amazing how much better my life is now.
 

HOH-ME

Member
You both have excellent points. Ok here's my thoughts. I will always be deaf either way and I don't mind the subtitles though I get tired lip reading sometimes. I need, I really need to become more fluent in ASL. I know my social anxiety is becoming worse. I only text on the phone because hearing on the phone is too hard to understand. I know the CI wont bring back normal sounds, I just want to know if it gives you more clarity than a HA could offer because right now my HA is just barely getting me by and its only 4 months old!

But there's so many factors to consider . I need to know the pros and cons. I also need to know if this will effect my SSI.

Sounds to me are very normal, I can talk on the phone--or better yet, understand on the phone. My HA's never gave me even close to the clarity I get with my CI. I've heard sounds I haven't heard in years. It's truly life changing with a CI.
 

AJWSmith

New Member
ladysolitary85 - It's a very personal decision and I wouldn't want to tell you what to do with your own body. My only advice is to do your research and read around. As well as the success stories, find the ones where the CI failed to deliver the expected benefits. There are loads of blogs out there now with people detailing their experiences, as well as the more technical websites. 2 or 3 years ago, I was offered the opportunity to join a CI programme. I did my research and decided it wasn't for me, and am happy with that decision.
 

HOH-ME

Member
That does not affect SSI/SSD in any way. They consider you a person with disability whether you have CI or HA. It is NOT a cure for deafness.

Actually, officially it can affect your SSI/SSDI. The official stance is they screen 2 years post-activation and re-certify every 2 years after that to see how you are functioning with your CI. I can tell you that I would pass with flying colors and would not be considered disabled with my CI. For others that haven't had as much success, they very well could be considered disabled for years after a CI, even a lifetime.
 
Top