Complications getting adequate hearing aid

stus

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Hi,

My mother has been trying different hearing aids (mostly digital) for the last 5 or so years, and I'm not real excited about the results she's gotten so far. In a nutshell, she still doesn't hear what people are saying until the 2nd or 3rd re-issue of the statement, and usually requires considerable amplification and other such voice clarification to get it through.

Some issues/comments/questions:

- her usual routine is to get the full testing of her natural hearing limitations done, and then have a custom digital unit made and configured. This is all fine, except I cannot understand why they never want to have her re-tested with the unit fitted - not only to see that her deficiencies have been addressed (atleast to what degree...), but also to see how it has affected her hearing in other ways. Not doing so seems completely non-professional to me.

- with her current units fitted, she observes that sudden sharp noises (clap, cough etc) will result in an increase in the volume/clarity of background noises, but seemingly not of immediate spoken voice. I can clap 3 times, and she'll indicate that the air-conditioner will be more clear to hear for around 3-4 seconds (assuming I make no more noise), but my saying words that she finds quite muffled (like "soon") don't seem to get any clearer (she says she can't tell if they're clearer or not). This sounds to me like her unit is reacting to them in this way - why would that be? It sounds to me like the unit sees anything but the sharp noise as "non interesting", which would mean its configured wrongly, except that it doesn't seem to affect spoken words as I'd like.

- Her GP reccomended nasal openers like Claratine as being an option to clarify audio input. She certainly finds Claratine makes a marked difference in audio clarity - what can one do other than this? Drugs like this would seem to be good as a short-term fix. Then again, I know full-well about the complications of going to specialists to see about allergy fixes.

- what are the options for those wanting to know more about how these aids work? My mother doesn't want to know more, but I do, and we both feel like these audiologists are either being too slap-dash in providing a solution, or aren't allowed to give her the treatement she really needs. I agree that providing solutions needs to be done by someone properly qualified, but sitting back with such seemingly inadequate solutions provided is quite frustrating. It all seems like a more complicated Uni Physics practical that the student is cutting corners on. Is there another (likely non-govt-funded) approach that seems someone with more time and dedication who can really do what is required to sort her problems out?

Thanks for any help.

sTu.
 
Not every hearing aid can be configured to suit people perfectly. Those tests are just TESTS. They can't give you a 100% answer on those things. For instance, both of my ears come out at almost the same level. However, I can hear and understand things with my left ear while I can only hear with my right. If someone were to slam a door, I would hear it but wouldn't know what it was: a door slamming? a book being slammed on a table? someone shooting a gun? a firecracker exploding? That's something I have to deal with. That's why I only wear one hearing aid. It's the only thing that suits me.

I also have friends who have received certain results from their hearing tests. They were given many suggestions, but none of them work. That's when they felt it was best not to have a hearing aid at all.

If you can hear with hearing aids, then keep them. It's best to hear than not hear at all. Which is more important? Understanding what a person said or hearing a car zooming your way? Would you rather stand there asking a person to repeat once or twice? OR... Would you rather know that a car is coming and you can jump out of the way? Think about it. Yes, there might be struggles... but it's usually worth it if you have a lot of patience for it.
 
I understand what you're saying, but don't really appreciate that hearing aid wearers should have to go through such a hit-n-miss approach.

Do audiologists know so little about what they're doing that they can't offer some reasonable explanation as to why the results are so? I expect my mum got go in there knowing very little about why she can't hear things, and come out knowing her basic limitations (volume, freqencies, required clarity, ability to hear amongst background noises etc etc...), both with & without the new aid fitted. I've never been present during such sessions, but its quite possible that she didn't want to know, but just wanted to try it out, without knowing the details.

I've read/heard of people deciding to go without a hearing aid because it didn't work for them. My ignorance just says they didn't get the right advice - maybe the technology isn't where I want it.

sTu.
 
Yes, hearing aid fitting is essentially a hit or miss science. What kind of hearing aid does your mum wear? What's her loss? If she just got stuck with an ITE...I would strongly reccomend trying a BTE. They have more power then ITEs, so a person can hear a lot more with BTEs. If her loss is bad enough, then she may want to talk to an audi and see if maybe she might qualify for CI (then again from what I understand, getting qualified for a CI is very very difficult in countires other then the US. The US has the most libral implantation policy so far)
 
stus said:
I understand what you're saying, but don't really appreciate that hearing aid wearers should have to go through such a hit-n-miss approach.

Do audiologists know so little about what they're doing that they can't offer some reasonable explanation as to why the results are so? I expect my mum got go in there knowing very little about why she can't hear things, and come out knowing her basic limitations (volume, freqencies, required clarity, ability to hear amongst background noises etc etc...), both with & without the new aid fitted. I've never been present during such sessions, but its quite possible that she didn't want to know, but just wanted to try it out, without knowing the details.

I've read/heard of people deciding to go without a hearing aid because it didn't work for them. My ignorance just says they didn't get the right advice - maybe the technology isn't where I want it.

sTu.
I understand your frustration. I have the same problem. Yes, I hear very well. However, there are some things that I misread from time to time. I also hear well enough to communicate on the phone. But, there are still some specific voices that I can't understand on the phone. Not everything is expected to be 100%. A blind person may not recognize everything he/she touches. A deaf person may not recognize everything he/she sees.
 
I liken it to computer support. If you take a broken system to be fixed, they'll likely take the shortest route which isn't necessarily the best. If you have a good relationship with a specific support person, they'll look after you and do whats required. (Not especially "real world", but still conceivable).

I don't proclaim to be an expert in this field, but I'd put money on the idea that the type of results I'm after can be achieved, provided the specialist has the time, inclination, and expertise to deliver it. I'm not talking about perfect hearing, but a logical progression of test->explain->fix->explain->test->explain etc so people know where they really stand.

Kinda like getting subtle symptoms diagnosed, like allergies etc. One can wander round talking to specialist after specialist about what the problem might be, with no success. Then you end up in the Emergency ward one day on deaths bed, and when they REALLY need to know the problem, they can throw resources at it, and come up with a solution. My Dad had this with Llung cancer recently. This is nothing surprising, but its still frustrating when u can't get what you know is really (possibly) possible.

Anyway, enuff of the conspiracy theories... I was just hoping there might be an alternative to regular specialists, or that some might have more effective ways of dealing with these people.
 
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except I cannot understand why they never want to have her re-tested with the unit fitted - not only to see that her deficiencies have been addressed (atleast to what degree...), but also to see how it has affected her hearing in other ways.
That's odd that they don't do the retest with the hearing aid on....when I was little they did it...they don't do it now. Maybe they just test little kids or something.
 
deafdyke said:
That's odd that they don't do the retest with the hearing aid on....when I was little they did it...they don't do it now. Maybe they just test little kids or something.
My words words somewhat askew... I meant that they don't do it (for my mum atleast) as standard practice. I'm not sure if she ever asked them to do it.
 
Yeah...total weirdness. Maybe you should go to a new audiologist?
 
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