CI Removal Tomorrow morning

Valorrian

Active Member
I had meningitis when I was 18 and lost my hearing. I’m 21 now. I tried for a CI but was told the same thing too much ossification and wouldn’t receive any benefit. Curious did your son learn sign language?
 

DOD

Active Member
I had meningitis when I was 18 and lost my hearing. I’m 21 now. I tried for a CI but was told the same thing too much ossification and wouldn’t receive any benefit. Curious did your son learn sign language?
H Valorrian, You are right with ossification from meningitis there is not much hope for CI being beneficial. I just wish the doctors would have been more up front about that. When you say Sign language to me that means ASL. It is a struggle when there are so many MCE's that the schools try to teach so what we have learned is a hybrid of ASL and MCE's.
 

inmate23

Active Member
BAHAs maybe an option but what I say is signing regardless amplation is the best policy to the point where I am aim to study it.
 

attilio1911

New Member
Not going to re-implant. Hearing loss was due to meningitis so CI's generally don't work for most people that are deafened by meningitis due to ossification of the cochlea.

Wow, I never seen that before! I have my N22 implant for 25 full years and upgraded all the way to N6. I have tinnitus occasionally but i don't let disability stop me.
 
Thanks for the good thoughts. He had bacterial (pneumococcal meningitis). No immune system disorder. He had a congenital malformation of his left cochlea with CSF leak. Ear infection triggered the meningitis.

May I ask if you know the clinical name of the malformation?
 
I see. Did the malformation require a reparation surgery in order to prevent recurrent meningitis?
Also, the CI did not provide any benefit: does this mean that it did not work at all, or could it somehow feign noise, though completely unintelligible?
 

DOD

Active Member
I see. Did the malformation require a reparation surgery in order to prevent recurrent meningitis?
Also, the CI did not provide any benefit: does this mean that it did not work at all, or could it somehow feign noise, though completely unintelligible?
The malformed cochlea was packed to prevent future CSF leak. There was zero benefit from the CI so it did not work at all.
 
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