I could use help

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connorsmom

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I have a son with hearing loss. Supposedly. I believe he has hearing loss it is the levels that I doubt and could use opinions of others who have been there. I am not completely new to this as I have an older son who has hearing loss as well, but he was born completely deaf, never responded to any sound with any type of hearing aid. Now my younger boy is much more confusing. His first newborn screening he failed, failed a sleeping ABR at 2 months with moderate hearing loss in the 55-60 db level depending on pitch. He also failed an OAE test that day. We got him a sedated ABR at 3 months which came up with basically the same numbers, slight improvement in one ear, the same numbers in the other. He responds to voices relatively well. I have seen him respond to my voice only slightly elevated from 10 feet away. Far from yelling but above normal levels. If he is sitting on my lap and I say Boo, minimally elevated volume slightly higher pitch he blinks immediately on the B sound almost every time. I can also get the same reaction with a lower pitch to my voice. So my question is to those of you or to those of you who have children with this level of hearing loss is do these responses seem typical for this level of hearing loss. I do not want his aids to be too strong for him and I have a lot of reservations about whether his hearing loss is that bad. His inner ear testing came back normal so there are no inner ear abnormalities, supposedly no fluid, One of the ones that always gets me is when I click my fingernails together near his head when he is just dozing off he responds by waking back up. Bone conduction ABR also showed a hearing loss, but they could not go up to a very high DB level with that test I guess. he is 4 months old now.
 
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Just so everyone is aware I have spent a fair share of time around deaf individuals. I have a profoundly deaf sister, a "totally" deaf son and a second son who is hard of hearing. My husband also has a moderate hearing loss. So while I am no expert I am also aware of what I am looking for in responses etc.
 
connorsmom said:
Just so everyone is aware I have spent a fair share of time around deaf individuals. I have a profoundly deaf sister, a "totally" deaf son and a second son who is hard of hearing. My husband also has a moderate hearing loss. So while I am no expert I am also aware of what I am looking for in responses etc.
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We have individuals with all levels of loss in our family also, and I think it seems about right what you describe as responses of a baby with a moderate loss.
 
Bottesini said:
We have individuals with all levels of loss in our family also, and I think it seems about right what you describe as responses of a baby with a moderate loss.
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Thank you. That is very helpful to know. Moderate is not so bad especially after having a child with total loss. He responds to alot of sounds and our voices unaided but will obviously need aids to hear the softer sounds. Thank you again. He already has aids they are just set low at this point.
 
I'm trying to compare that to mine and I'm at profound now (was severe at a young age before progressing to profound) but I heard some sounds better than I do now.

Given that he is so young, I assume his responses will/may change as he matures. What was it like with your other son who is completely deaf? Did he ever hear anything at all?
 
AlleyCat said:
I'm trying to compare that to mine and I'm at profound now (was severe at a young age before progressing to profound) but I heard some sounds better than I do now.

Given that he is so young, I assume his responses will/may change as he matures. What was it like with your other son who is completely deaf? Did he ever hear anything at all?
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No. My older son was described as flatline on his abr. He never responded to anything even with hearing aids even the strongest ones we could get for him.
 
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