About Cochlear Implant?

Dave101

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After reading the thread "Comparing CI with HA's" & having no prior knowledge
of CI's I did a little research. I was freaked out to learn that once the procedure
is done you lose the hearing in that ear completely!

Correct me if I'm wrong, what I mean is if the CI doesn't work or something goes
wrong there's no turning back? That little hearing you did have before the implant is gone forever??? Wow I must say if that's correct that is one big decision.

Is there any other alternative other then CI & HA???
 
My friend got one when she was 18, did the speech and listening therapies..tried so hard. Now, at 31 years old, she doesnt use it at all and she has no residual hearing at all. I know of another guy that happened to him too. In the past 4 years, I have seen so many students who have CIs but dont use them at all and they need ASL to communicate with others. If u try talking to them without signing, they are lost. There is maybe 2 of them that can get by with listening or speechreading skills without ASL but they need to face the speaker so is that really using the CI?

It is just too scary for me to take that risk and if it doesnt work for me and I cant go back. I am too chicken..LOL! According to several threads, it works for a lot of people here on AD and I am happy for them.

I dont know of any other alternatives. I would say CI is the best one but comes with some risks. I guess the procedure has improved so there are less risks.
 
Dave,
Do you get SOME response with hearing aids? You might want to experiment with alternative hearing technologies....Like try a body worn aid. I think in some cases speech and sound perception might be improved over BTEs. Size still equates with power. I learned this the hard way. I switched from BTEs to ITEs in jr high, and totally 100% thought I could hear, but I was just lipreading.
There's also something called a high frequncy transponder that you could try.
Also, experiment with digital aids. You may find that you can hear with digis....I know of a girl who had absolutly NO useful hearing, even with a body worn aid. She recently tried digital aids........and she can perceive sound and speech! Every case is just so individualistic.............you really gotta experiment. I gotta say....I think that the CI should be the LAST resort after all other things have been tried.
 
After reading the thread "Comparing CI with HA's" & having no prior knowledge
of CI's I did a little research. I was freaked out to learn that once the procedure
is done you lose the hearing in that ear completely!

Correct me if I'm wrong, what I mean is if the CI doesn't work or something goes
wrong there's no turning back? That little hearing you did have before the implant is gone forever??? Wow I must say if that's correct that is one big decision.

Is there any other alternative other then CI & HA???

Yes that is correct. This is why in order to qualify for a CI you have to be profoundly deaf or close. If you already have usable residual hearing where you benefit well from hearing aids then you would likely be turned down.

I grew up with hearing aids and did well with them. Last year though I suddenly lost the hearing that I had in some unexplained incident and it never came back. Only then did I pursue the CI path and I have been very pleased with my results. I would not have done it though had I continued to have residual hearing because of that small risk that the CI would not work out for me.

It all depends on what you stand to lose. I had nothing to lose so went for it! :)

I have a friend though who still did benefit from hearing aids but was dissatisfied with what she heard. So she took a risk and got a CI. At first she hated it and thought she had made a mistake but after a few months of hard work she finally got to the stage where she is happy and she raves about it now. She just got her second one.
 
I grew up with hearing aids and did well with them. Last year though I suddenly lost the hearing that I had in some unexplained incident and it never came back. Only then did I pursue the CI path and I have been very pleased with my results. I would not have done it though had I continued to have residual hearing because of that small risk that the CI would not work out for me.

It all depends on what you stand to lose. I had nothing to lose so went for it! :)

Likewise! I have no other alternative except to get the CI. I have nothing to lose as well. I'm more than ready to put a lot of effort in working on learning the sounds once I get the surgery! :)
 
Ditto on having no alternative myself and went for it. It was well worth it for me. Everybody is different and you just have to decide what is important to you.
 
I was also one of those who had nothing to lose by being implanted. Prior to my CIs, I had severe-profound hearing loss (severe-profound right ear; profound left ear) and was able to use an FM system with my HAs through direct audio input until I lost what speech discrimination I had in my right ear (my left ear has had no speech discrimination for the past 11 years). Losing my residual hearing was a concern of mine, but when it came right down to it, the residual hearing I actually had (low frequencies starting at 90 dB) wasn't allowing me to hear anything except loud environmental sounds with my hearing aids. When I received my second CI, I again was concerned about losing my residual hearing, but since there was so little to begin with, a CI could only make things better. I'm now hearing better than I ever have in my entire life. :) When someone reaches the point of qualifying for a CI, residual hearing is so minimal that the person cannot benefit from other alternatives such as hearing aids or an FM system. This is why a person must have bilateral severe, severe-profound or profound hearing loss with 60% or less speech discrimination (aided) in the better ear and 50% or less discrimination in the worse ear (aided) to qualify for a CI.
 
I was also one of those who had nothing to lose by being implanted. Prior to my CIs, I had severe-profound hearing loss (severe-profound right ear; profound left ear) and was able to use an FM system with my HAs through direct audio input until I lost what speech discrimination I had in my right ear (my left ear has had no speech discrimination for the past 11 years). Losing my residual hearing was a concern of mine, but when it came right down to it, the residual hearing I actually had (low frequencies starting at 90 dB) wasn't allowing me to hear anything except loud environmental sounds with my hearing aids. When I received my second CI, I again was concerned about losing my residual hearing, but since there was so little to begin with, a CI could only make things better. I'm now hearing better than I ever have in my entire life. :) When someone reaches the point of qualifying for a CI, residual hearing is so minimal that the person cannot benefit from other alternatives such as hearing aids or an FM system. This is why a person must have bilateral severe, severe-profound or profound hearing loss with 60% or less speech discrimination (aided) in the better ear and 50% or less discrimination in the worse ear (aided) to qualify for a CI.

That is so strange cuz I rely on my HAs to be able to communicate with hearing people and I have a liateral severe-profound hearing loss at a 120 dB. Mind u, I still need to lipread but my HAs help me lipread better. Without my HAs, I cannot lipread very well. if my loss is so profound then I guess I was trained very well in speech therapy to make good use of my extremely minimal residual hearing.

That is why I am too scared to get a CI cuz if it doesnt work for me, I have lost that residual hearing, however how minimal, that I depend so much on in order to communicate with hearing people.
 
Shel,

Because no two people with the same audiogram hear exactly the same, it's what makes hearing loss so interesting. :)

For example, I know people with moderate hearing loss who have alot of difficulty understanding speech with their HAs. I, on the other hand, was able to understand speech with HAs and a Comtek FM system until I lost what speech discrimination I had in my right ear.

I'm totally blind, so I can't rely on lipreading, body language and other visual clues. I also can't use written communication.

Instead, I used other alternative communication techniques for the deafblind including tactile sign, print on palm (POP), TeleBraille, Teletouch, Braille/raised print alphabet card, fingerbraille, Braille realtime captioning and a computer with Braille output.

Trying to maintain my orientation with a severe-profound hearing loss was also quite a challenge. Since I couldn't hear traffic, I had nothing except the grassline to prevent me from veering while walking down the street. When my guide dog stopped, many times I didn't know why, so the best I could do was to trust her. After a few months of traveling without hearing the sound of traffic, I became familiar with the tactile clues provided through the harness. I reached the point where I could tell if she was stopping for a car, a curb or an obstacle on the sidewalk based on the feel of the harness.

All of my HA audis (3 in 20+ years) have always remarked about how well I've used my residual hearing. (Since I was born blind, I really didn't have any other choice. :))

In fact, it wasn't until my former HA audi pointed out, "You have very, very little hearing yet you use your hearing better than some of my patients who have moderate losses" that I realized how little I could really hear.

When I was evaluated for my first CI, the audiogram for my right ear indicated a 90 dB loss at 250 Hz, 95 dB loss at 500 and 750 Hz and no measurable hearing (aided or unaided) at 1000 Hz and above. The audiogram for my left ear indicated a 95 dB loss at 250 Hz, 100 dB loss at 500 Hz, 120 dB loss at 750 Hz and no measurable hearing (aided or unaided) at 1000 Hz and above.

My CI application spent 3 months sitting in a drawer because I thought I had too much residual hearing to be a candidate. However, I passed both of my evaluations with flying colors.

Like you, I was also afraid of losing what tiny residual hearing I had left, but in the end, I gained more than I ever thought I could. :) When my first CI was activated, I was shocked to realize how much I was missing all these years.

The decision to receive a CI isn't an easy one to make. Even when I was 99% certain that I wanted to go ahead with the surgery, I still had some lingering doubts and concerns as to what would happen if the CI didn't work out as expected. It definitely is a gamble, but a risk I'm very happy I took. :)
 
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Shel,

Because no two people with the same audiogram hear exactly the same, it's what makes hearing loss so interesting. For example, I know people with moderate hearing loss who have alot of difficulty understanding speech with their HAs. I, on the other hand, was able to understand speech with HAs and a Comtek FM system until I lost what speech discrimination I had in my right ear.

I'm totally blind, so I can't rely on lipreading, body language and other visual clues. I also couldn't use written communication. Instead, I used other alternative communication techniques for the deafblind including tactile sign, print on palm (POP), TeleBraille, Teletouch, Braille/raised print alphabet card, fingerbraille, Braille realtime captioning and a computer with Braille output.

Trying to maintain my orientation with a severe-profound hearing loss was also quite a challenge. Since I couldn't hear traffic, I had nothing except the grassline to prevent me from veering while walking down the street. When my guide dog stopped, many times I didn't know why, so the best I could do was to trust her. After a few months of traveling without hearing the sound of traffic, I became familiar with the tactile clues provided through the harness. I reached the point where I could tell if she was stopping for a car, a curb or an obstacle on the sidewalk.

All of my HA audis (3 in 20+ years) have always remarked about how well I've used my residual hearing. (Since I was born blind, I really didn't have any other choice. :)) In fact, it wasn't until my former HA audi pointed out, "You have very, very little hearing yet you use your hearing better than some of my patients who have moderate losses."

When I was evaluated for my first CI, the audiogram for my right ear indicated a 90 dB loss at 250 Hz, 95 dB loss at 500 and 750 Hz and no measurable hearing (aided or unaided) at 1000 Hz and above. The audiogram for my left ear indicated a 95 dB at 250 Hz, 100 dB loss at 500 Hz, 120 dB loss at 750 Hz and no measurable hearing (aided or unaided) at 1000 Hz and above.

Right it is so interesting with science of hearing loss. I am happy the CIs work for you. :)

For now, I will stick with my HAs since they do help me. If for any reason, I lose my residual hearing completely, then I will consider CIs.
 
For now, I will stick with my HAs since they do help me. If for any reason, I lose my residual hearing completely, then I will consider CIs.

That's a very sensible approach and the one that I followed. When considering CIs it's much better to be in a position when you don't have much to lose.
 
have always remarked about how well I've used my residual hearing. (Since I was born blind, I really didn't have any other choice
have you heard about the people who can use their hearing to "see"?
I heard about some guy who can do that so well that he can ride a BIKE!
 
Right it is so interesting with science of hearing loss. I am happy the CIs work for you. :)

For now, I will stick with my HAs since they do help me. If for any reason, I lose my residual hearing completely, then I will consider CIs.

I agree with R2. :) As long as you benefit from your HAs, that's clearly what you should stick with. I know others with severe-profound or profound loss who will not consider a CI until they've lost all of their residual hearing. I understand and respect that decision 100%. :)
 
have you heard about the people who can use their hearing to "see"?
I heard about some guy who can do that so well that he can ride a BIKE!

DD,

It sounds like you are referring to echolocation. Yes, I've heard of this before. It's pretty fascinating! :)

Although echolocation is something I've been unable to use for years (due to my hearing loss), I'm now able to use it quite easily with my CIs.

For those who may not know, echolocation involves using high frequency sounds that bounce off of objects to detect obstacles.

If you stand in front of a large building on a busy street corner with traffic going by, you can hear the sound of cars "echo" against the building.

Conversely, if you stand on a busy street corner in front of a building that has a large parking lot surrounding it, you will not hear the sound of traffic as easily since there are no surfaces for the sound to bounce off of.

Brian Underwood is a totally blind teenager who is able to use echolocation. You can read more about him by doing a Google search for "Brian Underwood" or "Brian Underwood + echlocation."

As for blind people riding bikes, several of my friends used to do this when they were children. Two of them were totally blind and the others had enough residual vision to see the color contrast between the grass and sidewalk.

Here's what Wikepedia has to say about echolocation used by the blind:

Human echolocation - Wikipedia, the free encyclopedia

Background
Human echolocation has been known and studied since at least the 1950s.[1] Before it was known to be based on localization of echos, human echolocation was sometimes described as facial vision.[2] The field of human and animal echolocation was surveyed in book form as early as 1959.[3]

Some blind people have described the phenomenon not as a learned method of navigation, but as an inherent and intuitive extra sense. For example, a blind person could walk past a line of trees and feel a "pressure" at their side as they passed each tree. The cause of this would be the echo of the sound of their footsteps, however they may not be consciously aware of this mechanism, only that the phenomenon exists and can often be relied upon to detect obstacles.


[edit] Individuals using echolocation
Echolocation has been further developed and popularized by Daniel Kish. He is completely blind and taught himself to derive information about his surroundings by clicking his tongue and listening to the echo; using this technique, he is able to ride a bike and hike in unknown wilderness. He has developed a click-emitting device and trains other blind people in the use of echolocation.

An accomplished user of echolocation is Ben Underwood.[4] Diagnosed with retinal cancer at the age of two, he had his eyes removed at the age of three. He discovered echolocation at the age of seven and now uses it to accomplish such feats as running, basketball, rollerblading, foosball and skateboarding.[5][6] He was recently featured on The Ellen DeGeneres Show and Oprah, where he demonstrated his unique abilities. He does not use a white cane but is able to detect not only the position, size and frequently composition of objects near him, but sometimes their shape.

In a scene in the film Ray, the blind Ray Charles character (portrayed by Jamie Foxx) describes how by wearing hard soled shoes he is able to find his way around. The sound lets him know what type of surface he is walking on and when he passes by an open door.


[edit] Vision and hearing
Vision and hearing are close cousins in that they both can process reflected waves of energy. Vision processes light waves as they travel from their source, bounce off surfaces throughout the environment and enter the eyes. Similarly, the auditory system processes sound waves as they travel from their source, bounce off surfaces and enter the ears. Both systems can extract a great deal of information about the environment by interpreting the complex patterns of reflected energy that they receive. In the case of sound, these waves of reflected energy are called "echoes."

Echoes and other sounds can convey spatial information that is comparable in many respects to that conveyed by light. With echoes, a blind traveler can perceive very complex, detailed, and specific information from distances far beyond the reach of the longest cane or arm. Echoes make information available about the nature and arrangement of objects and environmental features such as overhangs, walls, doorways and recesses, poles, ascending curbs and steps, planter boxes, pedestrians, fire hydrants, parked or moving vehicles, trees and other foliage, and much more. Echoes can give detailed information about location (where objects are), dimension (how big they are and their general shape), and density (how solid it is). Location is generally broken down into distance from the observer, and direction (left/right, front/back, high/low). Dimension refers to the object's height (tall or short) and breadth (wide or narrow).

By understanding the interrelationships of these qualities, much can be perceived about the nature of an object or multiple objects. For example, an object that is tall and narrow may be recognized quickly as a pole. An object that is tall and narrow near the bottom while broad near the top would be a tree. Something that is tall and very broad registers as a wall or building. While something that is broad and tall in the middle, while being shorter at either end may be identified as a parked car. Whereas an object that is low and broad may be a planter, retaining wall, or curb. And finally, something that starts out close and very low, but recedes into the distance as it gets higher is a set of steps. Density refers to the solidity of the object (solid/sparse, hard/soft). Awareness of density adds richness and complexity to one's available information. For instance, an object that is low and solid may be recognized as a table, while something low and sparse sounds like a bush; but an object that is tall and broad, and very sparse is probably a fence.
 
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