Search results

  1. K

    Usher syndrome

    Hello, I would like to ask whether there is any experience with Usher... my son is 4 years old, has a cochlear implant and some difficulties in balance. He was also diagnosed with myopia. Genetic testing came out OK. Doctors insist that there is no reason to worry but I read about Usher and Iam...
  2. K

    Advanced bionics

    Is there any experience with the advance bionics implant? Our doctor recommended it for the implantation of my son. Is it reliable, good quality, with good service etc?
  3. K

    Deaf boy attached to mum

    My 22-month old deaf boy is having a hard time to cope with my departs. I have to leave him with my mother for 2 hours every day and he is really upset. He generally seems very attached to me and I guess that he cannot understand that I will be back. I have tried signing to him that I'll be back...
  4. K

    Neurofibrosis and deafness

    I have posted elsewhere about my son's symptoms (profoundly deaf, a little late in his gross motor skills due to bad balance, skin rash). We have done dozens of tests which gave normal results (brain MRI, ear MRI and CI, eyes checked, ultrasound at tummy, blood tests, DNA tests, two skin...
  5. K

    1,5-year old wearing HAs going to CI

    My 1,5-year old boy has been wearing his HAs full time since Christmas. He has been making new sounds and is now (thank God) used to them, however he does not have systematic reactions to loud sounds and his speech therapist is very anxious about that. Is this normal? Should we wait for about 6...
  6. K

    Cooperation with my 18-month old deaf boy

    My 18-month old profoundly deaf boy has started making huge tantrums, not taking no for an answer, wanting to get his own way in everything etc. I had the same problem with my elder hearing boy but I just hoped that by explaining him, things would eventually turn out OK (as they did). However...
  7. K

    BABY WEARING HAs OUTDOORS

    First attempt for us to wear the hearing aids outside home... My 17-month old boy, already wearing the HAs for almost 2 months but not wanting them.. We bought the stick and stay stuff, the little clip, everything. But now he found the way to grab them out his ears, separate the ear mold and...
  8. K

    HAs FOR BABY BEFORE CI

    Is it common to have a practically deaf baby wear HAs before being implanted? I mean for the months until the surgery. Because this is what the doctor told us about my son, however while speaking with other parents, they asked me what's the point in HAs ("would you put eye-glasses to a blind...
  9. K

    Deaf baby and motor skills

    Dear all, My 17-month old baby boy is deaf and also facing difficulties in his motor skills. He was a little late in all his milestones, he does not yet walk unaided and is having physiotherapy for his trunk hypotonia. We have put him to loads of tests, thank God everything coming back normal...
  10. K

    CDs TO HELP RESTORE HEARING?

    Has any of you with hearing problems tried to listen to special CDs that promise to help restore hearing providing a variety of frequencies so as to activate the hearing nerve? I was thinking whether this method could help my son (16 months old) who was diagnosed as profoundly deaf however he...
  11. K

    Can a baby learn talking when hearing through hearing aids?

    Dear all, This week we found out that our 16-month old son is practically deaf (neurosensitory type). I have so many questions... I guess that what matters to me most is this: can my baby hear and gradually learn talking only with hearing aids of high quality? Or is implanting our only choice...
Back
Top