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no i didn't but i will. thanks for the welcome and stuff!

yes, i am looking for resources and any information you may have on ushers' syndrome. that would be helpful! and appreciated. i would like to be on the email list for people with usher's as well. :deaf:

What kind of information did you receive when you were diagnosed with usher's? How is your hearing? Vision? I don't know anyone with Usher's personally, I do alot of reading on it and just wanted to get some support or advice. Do you work as well? Thanks.:eek3:

my partner and i are in the garden state. at one time we looked for deaf/hoh activities but found none really...there is a asl chat group that meets at the deptford mall if your familar with that. i don't know of anything else in my area. i've always looked but never found things...

i've been lurking forever. i'm new, from nj, proficiently deaf in left ear, moderate/severe in right. i was diagnosed with ushers' syndrome early last year. my hearing has just faded away slowly over time. i do not wear aids, i've been speech reading all of my life mostly and learned asl and...