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  1. Victorias mom

    When 9/11 happened

    That day is so clear in my mind, as if it were yesterday. I live on Long Island and lots of my family and friends work in NYC. I was off work that day and saw the whole thing on TV and talked to people all day long that were in the city or waiting for people to come home. I talked to my father...
  2. Victorias mom

    CI for son...CI friendly only please

    Thanks for the advice. I like getting advice from parents who have been through this. I have started researching the implant centers and doctors already but I will definelty do more once I meet them. I read your daughter had some bruising after, was she in a lot of pain? How old was she when...
  3. Victorias mom

    CI for son...CI friendly only please

    We are going to the NYU Implant center in Manhattan. They do so many implants on children and I have heard a lot of good things about them. I also heard great things about New York Eye and Ear too... it was hard to choose which to go to first. A couple of professionals suggested I see both...
  4. Victorias mom

    CI for son...CI friendly only please

    That is great. If my daughter gets the surgery she will probably be around the same age as Isaac. I made an appointment to meet with an implant center on September 13th. That will be our first official meeting to discuss the implant.
  5. Victorias mom

    Son's CI surgery

    I am getting emotional just thinking about what you are saying!! I can't wait for the day my daughter can hear me tell her I love her! Fragmenter - I am so happy your son is doing good. The summer always goes fast, so activation day will be here before you know it.
  6. Victorias mom

    just found out my 5month old is deaf

    Welcome. I also have a 5 month old who is deaf. You can learn a lot from this site and you will meet a lot of nice people.
  7. Victorias mom

    Its Not The Parents Fault....

    Thanks Angel and R2D2. I will definetly keep you posted!!
  8. Victorias mom

    Its Not The Parents Fault....

    My daughter is 5 months old and has had hearing aids for almost 2 months. So far we have not seen much response with the hearing aids, but everyone involved stated that babies should wear hearing aids for at least 6 months before you can safely say they are not hearing anything. I may visit a...
  9. Victorias mom

    potty training tips?

    I had a very hard time training my son too. Boys do take longer. I tried about 6 times to get him trained and nothing worked. I knew I was going to be home with him for 5 days straight during 4th of July week, so I figured that would be the best time. He was 3 years, 4 months. A few weeks...
  10. Victorias mom

    *Cochlear Implants Users*

    Thanks, that is so helpful. I went to the library recently with my son, and I figured I would look around and see what I could find. I couldn't find anything that looked newer than 70's or 80's. I will check out your list now, that was a great idea!! Thanks so much.
  11. Victorias mom

    *Cochlear Implants Users*

    I will look into it, thanks!!!
  12. Victorias mom

    *Cochlear Implants Users*

    You are so right. I never heard about CI's either. I didn't even know how the inner ear works and makes people hear. It was just something I never thought about. I always had an interest in sign language, from when I was younger. I never learned it, but looked into it a few times. It's...
  13. Victorias mom

    *Cochlear Implants Users*

    And to think... up until 4 months ago I never even knew the gene existed.
  14. Victorias mom

    *Cochlear Implants Users*

    From what I am seeing that seems to be so common. My daughter is deaf due to Connexin 26 gene. This is all new to me, and I know very little about all this, but I am learning. Does anyone know of anyone who had Connexin 26 and couldn't get an implant because of something else in the ear? I hear...
  15. Victorias mom

    *Cochlear Implants Users*

    This really is a great thread. It helps me understand the experiences my daughter will have if she gets an implant. I assume it will be different for her because she won't really be able to describe what she is hearing and also if she heard anything during this hearing aid process. Even if she...
  16. Victorias mom

    *Cochlear Implants Users*

    So in your case, hearing aids don't work either right? Was this something you were born with?
  17. Victorias mom

    Its Not The Parents Fault....

    I met someone at the school I take my 5 month old to and she implanted her son at 8 months. That is the earliest I've ever heard. I would not consider implanting until at least 1 year old.
  18. Victorias mom

    EVIDENCE of being deaf with Hearing Aid device

    You are missing the point. A good majority of the parents on this site that have/will implant their children are already using sign language or learning it. I have read about numerous parents who say their children know it. No one here is saying to forget about sign language completely, everyone...
  19. Victorias mom

    When are we allowed to let Hearing people join our culture and all.

    Excellent post!!! I was thinking the same thing... and I know first hand about it too.
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