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  1. Victorias mom

    Son's CI surgery

    It actually comes with a lot! I am also going to bookmark that site for the future! Thanks for letting me know.
  2. Victorias mom

    Son's CI surgery

    Thanks, this is all good to know. I assume in the beginning when she is first activated, she will have a simple program since she really has never heard anything before. Wow, I still feel I have so much to learn about the actual device. I guess it will be my time to learn soon enough. Thanks!
  3. Victorias mom

    Son's CI surgery

    What is the average cost of batteries for a year? I heard that the Freedom battery life is about 48 hours? Is that true? Does the implant come with a temporary supply of batteries? Is there anything extra that we may have to purchase? Sorry for the questions, but I think you get more...
  4. Victorias mom

    Son's CI surgery

    Sorry, I wasn't clear. I meant Frags, Lillys Dad and my daughter. I was typing too fast and didn't re-read what I wrote! Could you imagine having that many children with implants!! The cost of batteries alone would kill you!!
  5. Victorias mom

    Lillys surgery date

    I saw a little girl the other day who had the surgery 2 weeks ago. She had the smallest incision I have ever seen. I asked the mother about 3 times if that is where the incision was. I was shocked that it was so small. I have only seen incisions online that were much longer. You could barely...
  6. Victorias mom

    Son's CI surgery

    And my daughter will have her first implant on February 7th. Within those 2 weeks, all 3 of our kids will have implants. Fun times. I will most likely be asking you guys for advice soon!
  7. Victorias mom

    Son's CI surgery

    That is great news about his diabetes. Sometimes you just have to get into a routine to make things ok. Great news also about the bilateral surgery. Marshall must be so excited, as well as your whole family. Victoria is going to have her one ear implanted on February 7th. It's going to be an...
  8. Victorias mom

    Surgery scheduled - friendly only please

    That's ok, I haven't been on here much lately either. Thanks. I told a few people about what Isaac did with signing thank you after he took the bandage off. That is so cute!! It also makes me feel good that so many people say the kids feel pretty good after surgery. She gets to stay the...
  9. Victorias mom

    Surgery scheduled - friendly only please

    They really are similiar, it's cute!! I look at your blog all the time. She sounds like she is doing so well. I haven't looked this week to see if anything is new, but I will be checking it out later. Thanks for sharing it!
  10. Victorias mom

    Surgery scheduled - friendly only please

    Thank you to everyone who replied. R2D2 - yes I think it will be a very busy couple of months! MomtoIsandEm - I will definetly PM you. Lillys Dad - Thanks for the details! Hopefully she will start walking after the surgery! Since Victoria is deaf due to Connexin 26, we have been...
  11. Victorias mom

    Surgery scheduled - friendly only please

    I am definelty keeping an open mind about this. I know nothing is perfect. We will help her get the most out of it she can. I hope she does wonderful with it, but if she doesn't then she doesn't. She will have a wonderful life - hearing or not... I will make sure of that!
  12. Victorias mom

    Surgery scheduled - friendly only please

    We met the surgeon at the implant center last week and he told us Victoria is a perfect candidate for the implant. She has a profound hearing loss and is receiving little benefit from hearing aids. She has had the hearing aids for 6 months and is responding to some sounds but only at high...
  13. Victorias mom

    Son's CI surgery

    I'm sorry to hear your news. Marshall has dealt with a lot already and he is only 5!! He sounds like a trooper. You guys have a great family and are there for each other, you will all get through this fine!! Good luck!
  14. Victorias mom

    CI's for under 1 ???

    Erin is doing great!! I am so excited for you guys.
  15. Victorias mom

    CI's for under 1 ???

    Welcome Believer! Good luck with your daughter. We all have to do what we feel is right for our children. No one is in your shoes and no one can tell you what to do. People seem to think parents implant their children without research or that it's an easy decision. That is not the case...
  16. Victorias mom

    New here!

    Welcome Cara! My story is very similiar to Momtotoes, except my daughter is 9 months old and is not implanted yet. We are in the process of testing to see if she is a candidate... there should be no reason she isn't. She has a profound hearing loss and is getting very little from hearing...
  17. Victorias mom

    Help

    Lucia, I am so sorry you are dealing with this!! Were you able to speak to your clinic, did they attempt to help you at all today? Good luck with everything.
  18. Victorias mom

    Experiences with my daughter.

    Thank you for all the information! I am learning so much from you guys. Thanks
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