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So, big suprise... autism has been mentioned for Tyler. Even though I knew that was what they were thinking... it's still devistating for me! I don't believe he is autistic... but they have ruined my spirits. :( Anyone here have experience with a deaf autistic child? And if so, what are...

Yes, he makes sounds... he has always made lots of sounds. I'd say it sounds like a lot of baby babble... but with intonation. So, when we say peek-a-boo - he'd say ee-a-oo - it sounds very similar like he's trying but with little to no consonents. Even when we say "dada" he repeats...

A bit confused here with what you mean? Tyler was moderate/severe to severe at birth, hearing aids at 5 months old, signs for the past 2 years as well as constant speech & SLP. I know he's getting some speech (definetely not all but some) so doesn't that give him something?

I've been noticing lately a lot of intonation with Tyler... but it sounds like he's missing so many consonents if that makes any sense. So... for all of you late talkers? How do I know if I should just relax, not stress, keep doing ASL, and hope for speech to come in the next couple years...

Oh yes... like I've said before we are doing signs with him - we have been for the past 2 years but just in the past month or two he has really exploded and has started to use them back. We are soooo pleased! I know he's getting some sounds - but I just don't know how much - he responds to...

Maybe everyone misunderstood me (again) but I just want Tyler to understand me and respond. I don't care if it's ASL or Oral... I'd love for him to do both... but I don't care. I'm just trying to give him whatever is necessary - whether its ASL, cochlear, ha's, whatever - I am grasping at...

You have to understand for me and no prior knowledge of hearing loss - hearing and understanding just happens naturally. You ask me what I want... I just want him to be able to to understand me. Yes, I understand understanding also comes from ASL... I get that. All this backwards...

I'd love both hearing and understanding! And how he chooses to respond can be his choice... although I will still promote both.

A successful ci for Tyler would be a true without a doubt response that he understands when we speak - head turn, sign response, oral response, etc... We are so up in the air right now... we have no idea what he hears and what he doesn't. Sometimes I wonder if he turns because of movement...

So, how can they diagnose then? I want to make sure it's not a disorder and implant and it not be sucessful.

Thanks everyone! :)

That's how I'd feel too... but dh just can't come together with me. No matter how much I do, he continuously feels overwhelmed. And even though he won't admit it, he thinks God is out to get him... he thinks he is destined for disabled children. It's sad... but no matter how much I try...

I just wanted to send out a Thank You to everyone here at AllDeaf.com. I haven't been here long... but I have learned a lot in the short time and have made some good contacts already! I appreciate all your help and suggestions in helping my son! I look forward to posting more... and...

Oh here's another thing the manager of IHP suggested... along with autism... dyspraxia I can see how they may think dyspraxia... because he does have some of these tendancies... but I agree with Faire_Jour... I think ultimately it comes down to his hearing loss.

Do you think I am on the right path? Is there anything else I should be doing or demanding for Tyler? You guys have been my knowledge in all of this!

Tyler just turned 3... I know he's missed a lot... but I am hopeful with the amount of work I will put in, he will be okay. I don't care if he signs and speaks... that's ultimately his choice! I want oral to be available to him though. What he does with it, is his choice! I'm not giving up...

Oh really? Didn't know that either... His loss has stayed consistent since the beginning ABR dignosis... moderate/severe in his left, and severe in his right.

I'm just happy the Cochlear Unit is going to be reviewing Tyler's info tomorrow. I explained to them his age, lack of speech/language, and urgency for help. Let's hope they are willing to see him again.

But it could be neuropathy?

Wow, I had no idea... thank you for sharing! Maybe my gut is on to something! :giggle: