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IT'S NOT CAUSATION !!!! You can't prove that the lack of a vaccination is the cause of contracting the disease. People get meningitis even WITH vaccinations, because it doesn't cover all strains. Vaccinations are found (years later sometimes) to become less effective over time. Vaccinations...

Standard of care and causation have nothing to do with each other except for the fact that they are both required to prove negligence. Or so they taught me in law school.

But if the surgeon informed the patient of the risk and the patient (or her parents) blew off the vaccine, that is NOT the surgeon's fault. Personal responsibility needs to fit in here somewhere, patients cannot hold other's responsible for their poor outcomes when it is due to their individual...

If only it were that simple. It isn't. It can take years before protocols change, and university hospitals (where over 1/2 of implants take place) are even more hierarchical and inflexible on this than small clinics. Again, a total oversimplification. Even when the standard of care is...

#214 -- your answers are intermixed with my quotes, and it looks like I said most of it (at least the way I am reading it)

Yet they show up in the grey box marked "Originally Posted by LTHFAdvocate"

Be careful with your quotes, Jillio, I didn't say that but you have it attributed to me

Sorry Jillio, but I don't agree with you. Protocols change over time. There was a time (not really that long ago) where meningitis vaccinations didn't even exist, then there were but they weren't required, then there was one vaccine, now I think there are two. Protocols change over time, and...

Of course we do, but we do it based on chart reviews. That doesn't require that we be in current contact with the patient. What makes you think that we have any control whatsoever about what our patients remember? I have come across families (through the appeals program, not at our clinic)...

20/20 hindsight would be a wonderful thing. Of course, nobody has it.

Either, it entirely depends on the family. Some people clearly need/want this, others don't Certainly we present the concept of neural plasticity and language acquisition windows. That is well documented, and it would be foolish to ignore. More often than not, the families want to rush us...

No, Jillio, what that means is the information isn't being remembered by implanted children in their adulthood. That doesn't mean it wasn't given to them, that doesn't mean it wasn't given to their families. Tracking people down 10 years after surgery (or even less than 2 years after...

You can have a goal (even a primary goal) of maximizing speech and hearing outcomes without abandoning other goals. Our clinic provides referrals for counseling services, and our non-profit does advocacy for IEPs (and NOT just for implanted patients, and NOT just for patients of the clinic)...

I really don't think this is the case Jillio. I've never met a CI surgeon with the attitude you describe below, and I've actually met more than half of the CI surgeons in the US in person, and probably communicated with another 1/3 of them by phone or e-mail. I can't remember any letter of...

People who feel strongly about this should petition the FDA or AAO-HNS for such a requirement

My 5 year old just got 7 vaccines in June. I'm not sure I could name every one without pulling out her yellow card listing them, and it would probably take me half an hour to find the card :-) So I'm one of the most educated moms I know on the topic, and even I'm "unaware" Though I know she...

I disagree. Most people who object to vaccines do so on the grounds that they think they are linked with a higher rate of autism. Recent studies say they aren't, but many people still believe they are. Totally different underlying reasoning than the decision about whether or not to get a CI.

It is well known in the clinical community, but no one (except perhaps the FDA or the AAO-HNS) can force a clinic to make changes in their procedural policy. Note that the poll only asked *families* if they knew/remembered whether or not the shots had been done, if you call 100 implant centers...

That conclusion is consistent with the Hopkins research I posted last week (perhaps on another thread, I don't remember)

Another good book is Rebuilt by Michael Chorost, you can also read some of his blogs at Michael Chorost This book really mirrors your issue, which is that of being a severely-profoundly hearing impaired for your entire life, then suddenly starting to lose the final residual hearing as an adult...