Hi Ivans dad, my daughters profound hearing loss was due to a malformed cochlea as well. She has Enlarged Vestibular Aquaduct. When Kayla got her implant 4 years ago, nothing was promised. Thank god everything is going great for her and her progress has been wonderful. When a CI is chosen, one...
I could understand being angry and frustrated with those parents who refuse to sign, after all, first and foremost it's about being able to communicate with your child and vice versa. I myself have'nt met any parents who have refused to sign and i don't recall seeing any parents in here refusing...
Hi and welcome! My daughter was also born right before the infant screening became mandatory. Two weeks before to be exact. She was born December 14 2000 in Illinois, it became mandatory in January 2001. We discovered she had a profound loss around her first birthday and was immediately fitted...
Hear Again is right, all those emotions are normal. The one thing i can tell you from my own expeirence from my own daughter is that you will need patience. I remember when it came to activation day i was so nervous not knowing what to expect. The audi did let me know ahead of time not to be...
Kayla hated her earmolds too. I remember when i thought the same as you about whether or not Kayla would keep her implant on. Kayla and Victoria sound so much alike. Kayla was also and still is a strong willed child. It is her way or else! lol. It's definately much easier now with her as she has...
You are absolutely right! The AV therapy teaches the parent how to work with the child. I feel like i'm in therapy...lol. It is a lot of hard work on the parents side and the outcome is worth every moment of it.
Thanks for all of your input. I went ahead and ordered the standard size. Kayla does use her FM in school. I left a message for her audi yesterday and she called me back today and suggested the standard size. I guess there is a lot of people upgrading because they gave me an estimated shipping...
I was referring to the BTE processor, and thanks for the info guys. Because Kayla is young, i am leaning towards the mini one. My main concern is, will she be able to use her FM system with it.
Victorias Mom, my daughter used to rip her hearing aids off too and she did use it as a tool to get to me too...lol, but later i learned that she did'nt benefit enough from them and that was a big part of her ripping them off her ears. She did it a couple of times with the ci but that did'nt...
I am so glad everything went well. wow, it seems that it was just yesterday, that i read in one of your posts about Lilly getting a 2nd implant and 1,2,3, the surgery is done. Hope for a speedy recovery for Lilly!
I understand, but the whole concept is just so wrong, whether it be creating deaf babies, blind babies or any kind of disability. Being a parent, you are always looking out for your childs best interest and i just can't see how doing that is.
I've been reading this thread and i can't believe some of what i am reading. A lot of people on this site have talked about the hard times they've had growing up being dhh, especially when they were in school and yet some still think that the concept of intentionally creating deaf babies is ok...