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  1. J

    Frustrated With Audiologist!!

    I will tell you that when they insisted on an IQ test when my daughter was 6 and I asked them to show me WHERE in the regulations it says the only way to qualify is an IQ test they backed down. Alternative tests can be used even with LD's. A high functioning child can be tested by alternative...
  2. J

    Frustrated With Audiologist!!

    As I said IQ tests aren't a good way to help people with DS. (or any other type of LD) While you 'might' find individuals with mosiac DS who can funtion as normal even those are very rare. Mosiac does not effect all the cells in the body and could effect physical features but not the brain...
  3. J

    I have opinion not sure cochlear implant

    Did the surgeon who removed the first one find a reason for the problems you had with your first implant? A new implant would probably not be in your best interests unless they found a reason for the headaches/pain you had with the one you just had removed. If the problems were caused by...
  4. J

    My Test Results Today

    Oh yeah I misread. sorry. still better then your first test. Hopefully it'll keep getting better. :)
  5. J

    Frustrated With Audiologist!!

    these kids have MR ranging from very mild to severe/profound. But it is very rare to find a child or person with DS who does not have mental retardation. But being a syndrome not ever person with DS has the same problems, some have few and others deal with many medical problems. The...
  6. J

    My Test Results Today

    Cool. You actually do better in noise then I did 3 months post activation. I only got 50% and I concidered that a huge plus. :) Much better then only hearing the first sentence then nothing except the babbling. congrats!!
  7. J

    Frustrated With Audiologist!!

    I have a daughter with down syndrome (and one who uses HA's) As you go through life with a child with a disablity. you will find many 'experts' along the way who try to tell you how to go about teaching your child. (even here) So take what they say, discard what you don't like, remember you...
  8. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    I would never say ASL only or oral only. I believe it is up to families to decide what works best with their child as the child developes. I was the one who insisted back in 1991 after reading an article in the Down Syndrom news on a study that showed using signs with kids who had speech...
  9. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    When talking about failures are you all separating hard failures (which i believe are internal) and soft failures? (external parts?) Hard failures are very rare, I believe before my surgery my ENt said they were something like 1 in 10,000. I dealt with failure of the HA's all the time...
  10. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    First I'd like to say that in a perfect world all would be provided with interpetors when needed. Then even interpetors do not necessarily notify the agency they won't be there. They;re just like the rest of us and some are irresponsible. So it 'could' have been the terps fault. And...
  11. J

    Broken HA's, not 1 but BOTH!!!!

    If you're talking about the plactic ear hook that screws into the top of the HA it's not really a hugh deal. They can replace it right at the audiologists. I checked the one on my right HA which I Still have and it turns all the way around but I was still using ti that way before I quit...
  12. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    So what is the percentage of successfully EMPLOYED deaf adults (well educated or not) vs. the non deaf successfully employed hearing adults (well educated or not)?
  13. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    And how do CI's save lives? I would still be alive without the CI. The CI doesn't 'save' lives, but it does do much to make life much easier in a world that relies on the sense of hearing. But we know we would still be alive even if we can't/couldn't hear..........................
  14. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    In the end Shel the parents are the ones most familiar with their child. They are the ones who know how well their child communicates. I'm sorry but even 'I' could see that trying to get my then 2 yo to rely only on trying to speak (she has down syndrome) would not be in HER best interests...
  15. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    You know if there weren't so many many young people who aren't deaf going off to college with terrible reading and writing skills you might actually have a good point here. But having taken a couple writing classes and seeing exactly how these young people write I can safely say that there...
  16. J

    Audiologist said....

    V is volume control. Sorry. :) I still hope you fail the test with flying colors and get the CI if that is really what you wish to try.
  17. J

    Audiologist said....

    Will you have to actually use the HA during some of the test? BTW when I was tested they told me to put the V on my HA where it was normally for me. Where I heard best. I tended to lower it because of the noise that came through. What they concidered 'ideal' and what I could tolerate were...
  18. J

    Spectra to 3G to Freedom

    Just out of curiousity but does the 3G have a telecoil mix and could that have been why you were getting the buzzing etc? I know that if my freedom is in telecoil in my home it buzzes alot, probably because the fact that I have a very old house and it picks up all the noise going through the...
  19. J

    Acoustic Characteristics of the Speech of Young Cochlear Implant Users

    And I disagree. I went to hs with a severe/mod loss and enjoyed many aspects of it. Of course it does require more work to get the work done but none of it was the teachers fault. And this was pre-IDEA days.
  20. J

    What about the negatives aspects on CI? Should it be notify?

    Well I was wondering, you place it in a link that seems to imply it's an article on the cons of CI. Fine no problem with that. the actual link is not an article on the cons but an explanation on why she decided to gather information to write and article. She placed that blog back in Feb and...
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