FDA-Shocking Results on CI Statically

[faire_jour]

My daughter has been wearing HAs since she was 4 months, in speech therapy since 5 months and has been doing auditory-verbal therapy since 6 months. She has been, and will continue to be, given every opportunity to speak other than CI. There's nothing that says she can't still speak. She's only 2, a very stubborn and independent 2 at that.

Right now, she is signing and developing beautifully.

I just don't think spoken language is important enough to warrant something as invasive as CI implantation.

I just think that the ability to communicate freely in all circustances, is worthwhile.

You clearly state that she is already delayed in her spoken language, at only age 2, after tons of intervention. That shows that she isn't able to access and use spoken language via her hearing aids. Why leave her unable to? Why not give her more? She is only going to get further behind as normal language grows. Can she catch up? Maybe. Most don't.

I am not saying that you shouldn't focus on ASL. I think is it far more important to give accessable language, right from the start. But to NOT give a CI IS making the decision to disallow easier, clearer listening ability. Don't kid yourself and believe it is a decision that can be made later. If you wait you are absolutly making it a much longer, harder struggle, by choice.

 

[sallylou]

faire_jour, I find your tone condescending and judgmental. I don't understand why you're telling deaf people how they should feel or cope with their deafness.

You are legally entitled to make decisions for your child. I don't know why you feel entitled to impose your judgment on other mothers of deaf children and deaf adults.

I've tried my best to be respectful of your decision, and so have others. Others deserve that same consideration.

 

[faire_jour]

faire_jour, I find your tone condescending and judgmental. I don't understand why you're telling deaf people how they should feel or cope with their deafness.

You are legally entitled to make decisions for your child. I don't know why you feel entitled to impose your judgment on other mothers of deaf children and deaf adults.

I've tried my best to be respectful of your decision, and so have others. Others deserve that same consideration.

I am not here to force anyone to do anything. I am entitled to my opinion, you are right. I am just making sure that she understands the consquences of her actions. No, I will not be sunshine and rainbows about it, because I don't think crossing your fingers and hoping is the best way to deal with things (that is why the whole stem cell crap drives me crazy).

And I have never told an adult that they are wrong not to get a CI. (except Deafdude asked me once, and I said he should) That is totally on them.

 

[C-NICE]

We have gotted a little hot

We have gotted a little hot about this. Each of us has to do what we think is best for ourselves and hopefully for our children. I will admit that I am leaning toward a CI when and if I need one but that is my choice. I can't nor can anybody tell anyone else what to do especailly when it comes to their child.

 

[faire_jour]

We have gotted a little hot about this. Eassh of us has to do what we think is best for ourselves and hopefully for our children. I will admit that I am leaning toward a CI when and if I need one but that is my choice. I can't nor can anybody tell anyone else what to do especailly when it comes to their child.

Yeah, no. This is not me being heated. This is me still being polite and respectful.

 

[C-NICE]

Heavy Emotions

My meaning was that CI Debates as a general rule bring out heavy emotions especially in respect to children.

 

[shel90]

I just think that the ability to communicate freely in all circustances, is worthwhile.

You clearly state that she is already delayed in her spoken language, at only age 2, after tons of intervention. That shows that she isn't able to access and use spoken language via her hearing aids. Why leave her unable to? Why not give her more? She is only going to get further behind as normal language grows. Can she catch up? Maybe. Most don't.

I am not saying that you shouldn't focus on ASL. I think is it far more important to give accessable language, right from the start. But to NOT give a CI IS making the decision to disallow easier, clearer listening ability. Don't kid yourself and believe it is a decision that can be made later. If you wait you are absolutly making it a much longer, harder struggle, by choice.

Many deaf people have done fine without CIS. Give them full access to language and they will develop normally.

 

[faire_jour]

Many deaf people have done fine without CIS. Give them full access to language and they will develop normally.

Would you agree that a child with a severe-profound hearing loss does not have full access to spoken language with hearing aids? Would you also agree that lipreading is unreliable and surely NOT a great way to access language?

 

[Frisky Feline]

Many deaf people have done fine without CIS. Give them full access to language and they will develop normally.

I agree. That's why I am puzzled why she said that. maybe she hasn't seen the real deaf people who can function fine without CIs.

 

[faire_jour]

I agree. That's why I am puzzled why she said that. maybe she hasn't seen the real deaf people who can function fine without CIs.

I never said they can't function without an implant. I said that learning to listen and understand spoken language is much much harder for a severe-profoundly deaf child who uses hearing aids vs. a CI.

 

[shel90]

Would you agree that a child with a severe-profound hearing loss does not have full access to spoken language with hearing aids? Would you also agree that lipreading is unreliable and surely NOT a great way to access language?

Hello? ASL?

 

[faire_jour]

Hello? ASL?

Those questions were there to show Deafdude that lipreading is not a great thing to rely on. He thinks that it is 100% accurate and that it is simple for all deaf people to learn. I wanted to know if you agree...

I understand that you meant ASL.

 

[shel90]

Those questions were there to show Deafdude that lipreading is not a great thing to rely on. He thinks that it is 100% accurate and that it is simple for all deaf people to learn. I wanted to know if you agree...

I understand that you meant ASL.

I wouldn't know. I have kids with HAs who are fluent in spoken English and kids with CIs who can't even respond to their name being called out and vice versa. How can I agree to this with what I see out there?

 

[faire_jour]

I wouldn't know. I have kids with HAs who are fluent in spoken English and kids with CIs who can't even respond to their name being called out and vice versa. How can I agree to this with what I see out there?

I have always been told that only 20% of spoken language is visible on the mouth.

 

[Frisky Feline]

I never said they can't function without an implant. I said that learning to listen and understand spoken language is much much harder for a severe-profoundly deaf child who uses hearing aids vs. a CI.

Ok.

 

[jillio]

Would you agree that a child with a severe-profound hearing loss does not have full access to spoken language with hearing aids? Would you also agree that lipreading is unreliable and surely NOT a great way to access language?

A child with a moderate loss does not have full access to spoken language. A child with a mild loss often does not have full access to spoken language. That is why it is important to use a language they do have full access to.

 

[shel90]

Would you agree that a child with a severe-profound hearing loss does not have full access to spoken language with hearing aids? Would you also agree that lipreading is unreliable and surely NOT a great way to access language?

Deaf children with HAs and CIs do not have full access to spoken language. If they did, they would be hearing, wouldn't they? However, many say that they are still deaf so I was like, "Oh ok.." That's why I am not really understanding your reasoning here.

 

[sallylou]

It seems like faire_joure is saying that she wants her child to be as close to normal as possible. Is that right, faire_jour?

If so, you want to make your deaf child hearing. You can't possibly know what it's like being deaf simply because you're not deaf. You haven't experienced it. You may not realize what you're asking her to do. It may be impossible. It depends on the child and whether the particular implant in question holds up. It's important to be flexible.

There was as intelligent young man posting about his desire to go to a deaf high school. Your child may want to go to deaf school some day, especially during adolescence when peers are more important than family and academics. It's not all about what score a person can get on a speech test. There are emotional issues, too. You might want to explore the emotional and social issues more as your child grows up. It's a real challenge to meet teen's emotional and social needs even under the best circumstances. I've got a teen and it's a wild ride sometimes.

 

[somedeafdudefromPNW]

I am not here to force anyone to do anything. I am entitled to my opinion, you are right. I am just making sure that she understands the consquences of her actions..

Not impossible.

The only truly fluent deaf people I have met with no traceable deaf accent are the profound or completely deaf. In fact, they don't have an accent-- it just perfect English or perfect French. Why? There is no FEEDBACK LOOP! Think about it for a second, how else people develop a "Manhatten" accent, a southern drawl and so on? You don't need access to hearing to be fluent in a spoken language. It will take a hella lot of training though.

Not to mention there are numerous deaf individuals that speak well without the usual "flat vowels."

In fact, aided, I can only understand 60% of what is being said in the audio booth in my good ear. Yet I am considered as a better speaker than most of my hearing peers, even though I tend to flatten out my vowels. Why?

I didn't learn how to speak until I was eight by choice. I didn't have access to hearing until I was five! In fact, I was treated like an autistic child for the first five years until they popped on hearing aids just to see "if it work" since I wasn't responding to the exams at all. I know many deaf adults that didn't learn how to speak until they were in their 20s, and they sound better than some of the deaf individuals I was around during high school.

So it is all subjective. If WeeBeastie's daughter wants to speak, she will speak. Period. As long her daughter have access to a language in which she can interact with others, then there won't be any delays.

 

[AlleyCat]

I have always been told that only 20% of spoken language is visible on the mouth.

I have been told the same. Hearing aids REALLY help me to understand more than 20% though. It is amazing. So I can only assume a CI helps as well.