The hearing and cochlear implant debate! Share your opinion! - Page 5

dreama · 03-24-2009, 08:36 PM

Quote:

Originally Posted by faire_jour

An audiologist's job is to help you hear the best you can. That is their job, that is why they recommended a CI. From their perspective, it would help you hear more and that is what they are supposed to do.

Well that should change. Audio shouldn't ram CI's on everyone. It should be about choice which includes hearing aids, tactile aids AND CI (only if a person actually WANTS one which I DONT)

Some people benifit more from tactile rather then audio. Before I went profoundly deaf I had major problem with sound phobia so I don't want to start that up again, but I DO want to be made aware of noise now and then. It's not the surgery that bothers me, it's the noise. The mere idea of having a CI gives me nightmares.

I wouldn't have bothered with them at all, except for the fact that they want an audiologist to order from them as they don't sell to the general public.

faire_jour · 03-24-2009, 08:55 PM

Quote:

Originally Posted by dreama

Well that should change. Audio shouldn't ram CI's on everyone. It should be about choice which includes hearing aids, tactile aids AND CI (only if a person actually WANTS one which I DONT)

Some people benifit more from tactile rather then audio. Before I went profoundly deaf I had major problem with sound phobia so I don't want to start that up again, but I DO want to be made aware of noise now and then. It's not the surgery that bothers me, it's the noise. The mere idea of having a CI gives me nightmares.

I wouldn't have bothered with them at all, except for the fact that they want an audiologist to order from them as they don't sell to the general public.

You didn't say they held you down and tried to implant you, you said they recommended it. I don't see that as unreasonable.

Jiro · 03-24-2009, 09:21 PM

Quote:

Originally Posted by Bottesini

And I thank you. In another thread Sound and Fury, Doubletrouble who is the mother in the movie, does admit the risks and imperfections.

She seem one of the few CI user here who are not trying to push it for everyone.

ooohhhh... so that's what the thread is about... I've actually never checked it out. Now your post just piqued my curiosity...

shel90 · 03-24-2009, 09:25 PM

Quote:

Originally Posted by dreama

Well that should change. Audio shouldn't ram CI's on everyone. It should be about choice which includes hearing aids, tactile aids AND CI (only if a person actually WANTS one which I DONT)

Some people benifit more from tactile rather then audio. Before I went profoundly deaf I had major problem with sound phobia so I don't want to start that up again, but I DO want to be made aware of noise now and then. It's not the surgery that bothers me, it's the noise. The mere idea of having a CI gives me nightmares.

I wouldn't have bothered with them at all, except for the fact that they want an audiologist to order from them as they don't sell to the general public.

I know how u feel... lately, it seems like a simple visit to the audi for new ear molds becomes a tug-of-war with them about why I dont want CIs. They should back off and just focus on the purpose of each clients' visit instead of "selling" CIs.

Hear Again · 03-24-2009, 09:28 PM

Well that should change. Audio shouldn't ram CI's on everyone.

In the 10 years I had severe-profound hearing loss, none of my audis (2 of them) ever mentioned CIs to me. My ENT recommended an MEI, but after seeing a specialist, I learned that I didn't have enough residual hearing.

Even the audi who gave me my first pair of hearing aids in 1985 told me that she didn't know if I would qualify as a CI candidate with a 90+ dB loss.

I don't know where all of these audis are who ram CIs down people's throats.

Hear Again · 03-24-2009, 09:30 PM

Quote:

Originally Posted by faire_jour

An audiologist's job is to help you hear the best you can. That is their job, that is why they recommended a CI. From their perspective, it would help you hear more and that is what they are supposed to do.

Exactly.

faire_jour · 03-24-2009, 09:32 PM

Quote:

Originally Posted by Hear Again

In the 10 years I had severe-profound hearing loss, none of my audis (2 of them) ever mentioned CIs to me. My ENT recommended an MEI, but after seeing a specialist, I learned that I didn't have enough residual hearing.

Even the audi who gave me my first pair of hearing aids in 1985 told me that she didn't know if I would qualify as a CI candidate with a 90+ dB loss.

I don't know where all of these audis are who ram CIs down people's throats.

Me either. I had one audiologist straight out tell me "NO" for Miss Kat. She also said that she thinks that we shouldn't be implanting pre-linguially deafened adults unless they are 100% oral. That view is twice as offensive to me as someone offering a CI as an option to profoundly deaf person.

Hear Again · 03-24-2009, 09:32 PM

Quote:

Originally Posted by dreama

I went to an Audiologist recently hoping to obtain a tactaid7.

Why wouldn't your audi purchase a Tactaid 7 for you even after you told them you didn't want a CI?

Jiro · 03-24-2009, 09:33 PM

Quote:

Originally Posted by shel90

I know how u feel... lately, it seems like a simple visit to the audi for new ear molds becomes a tug-of-war with them about why I dont want CIs. They should back off and just focus on the purpose of each clients' visit instead of "selling" CIs.

same here... but my latest audi.. she's my new one and she did ask about CI during our first interview and I said no like I've said to several other audi's. She wrote down on my file with a big print - "NO CI"

I guess I can rest assured and not feel annoyed next time....

Hear Again · 03-24-2009, 09:34 PM

Quote:

Originally Posted by faire_jour

Me either. I had one audiologist straight out tell me "NO" for Miss Kat. She also said that she thinks that we shouldn't be implanting pre-linguially deafened adults unless they are 100% oral. That view is twice as offensive to me as someone offering a CI as an option to profoundly deaf person.

I'm sorry, but that audi was wrong for telling you that. As you already know, prelingually Deaf adults can benefit from a CI even if they aren't oral. After all, the purpose of a CI is to hear -- not to speak. If that audi would have said the same thing to me, I would have been offended too.

Hear Again · 03-24-2009, 09:35 PM

Quote:

Originally Posted by Jiro

same here... but my latest audi.. she's my new one and she did ask about CI during our first interview and I said no like I've said to several other audi's. She wrote down on my file with a big print - "NO CI"

I guess I can rest assured and not feel annoyed next time....

That's one way to solve the problem of audis who suggest CIs to their profoundly deaf clients.

shel90 · 03-24-2009, 09:36 PM

Quote:

Originally Posted by Jiro

same here... but my latest audi.. she's my new one and she did ask about CI during our first interview and I said no like I've said to several other audi's. She wrote down on my file with a big print - "NO CI"

I guess I can rest assured and not feel annoyed next time....

I just feel tired of that anticipation that the next time I visit the audi, I would have to waste 10 to 20 mins of my time explaining why I am not interested in a CI. After going thru that several times, it gets tiresome and annoying. I just want to be able to visit an audi for what I need and leave.

Hear Again · 03-24-2009, 09:38 PM

Quote:

Originally Posted by dreama

I went to an Audiologist recently hoping to obtain a tactaid7. I was even willing to fund it myself. I just needed an Audiologist to purchase it since they don't sell directly to the public.
Anyway they recomended a CI instead. Since a Tactaid7 is much cheaper, I can't understand why. I don't want a CI because I like being profoundly deaf. The tactaid would just alert me to environmental noise through tactile means.

I must be missing something because in the 10 years I had severe-profound hearing loss, none of my audis told me about CIs. The closest any audi came to telling me how bad my hearing was when I was told that I couldn't benefit from digital aids because my hearing loss was too severe. Personally, I don't think that audi knew how to properly program digital aids.

faire_jour · 03-24-2009, 09:38 PM

Quote:

Originally Posted by Hear Again

I'm sorry, but that audi was wrong for telling you that. As you already know, prelingually Deaf adults can benefit from a CI even if they aren't oral. After all, the purpose of a CI is to hear -- not to speak. If that audi would have said the same thing to me, I would have been offended too.

I hate the woman with a passion. She told me at our first visit, when Miss Kat was 18 months old, that if she didn't learn to talk it was because I was a lazy mother. She hates that we use ASL and judges us for her school placement. She said that since Miss Kat is in a bi-bi school and uses ASL she couldn't get a CI. That she "only implants kids who will become 100% oral, and (we) have shown that she won't".

That is WAY worse! We walked out and never went back. We have also had several families complain as well and move to other audiologists. Hopefully she will at least stop seeing kids.

dreama · 03-24-2009, 09:43 PM

Quote:

Originally Posted by Hear Again

Why wouldn't your audi purchase a Tactaid 7 for you even after you told them you didn't want a CI?

They haven't out and out refused. I'm being redirected to someone else now. Another long waiting list.

Hear Again · 03-24-2009, 09:44 PM

Quote:

Originally Posted by faire_jour

I hate the woman with a passion. She told me at our first visit, when Miss Kat was 18 months old, that if she didn't learn to talk it was because I was a lazy mother. She hates that we use ASL and judges us for her school placement. She said that since Miss Kat is in a bi-bi school and uses ASL she couldn't get a CI. That she "only implants kids who will become 100% oral, and (we) have shown that she won't".

That is WAY worse! We walked out and never went back. We have also had several families complain as well and move to other audiologists. Hopefully she will at least stop seeing kids.

She actually accused you of being a lazy mother? What nerve!

How can an audi determine which child will become 100% oral and which one won't after receiving a CI? Just because a child uses ASL does not mean they can't benefit from a CI.

That audi's attitude is sad -- not to mention inexcuseable.

Hear Again · 03-24-2009, 09:46 PM

Quote:

Originally Posted by dreama

They haven't out and out refused. I'm being redirected to someone else now. Another long waiting list.

That doesn't make any sense whatsoever.

At any rate, I hope the next audi you see will be willing to order a Tactaid 7 for you.

By the way, you may want to follow Jiro's lead and have your audi write in your chart "No CI" so that you don't have to worry about another audi asking you if you'd like a CI.

faire_jour · 03-24-2009, 09:50 PM

Quote:

Originally Posted by Hear Again

She actually accused you of being a lazy mother? What nerve!

How can an audi determine which child will become 100% oral and which one won't after receiving a CI? Just because a child uses ASL does not mean they can't benefit from a CI.

That audi's attitude is sad -- not to mention inexcuseable.

Outrageous! I'm glad I am smarter enough to not fall for it. I just feel bad for other, more impressionable parents who may run into her.

dreama · 03-24-2009, 09:57 PM

Quote:

Originally Posted by Hear Again

That doesn't make any sense whatsoever.

At any rate, I hope the next audi you see will be willing to order a Tactaid 7 for you.

By the way, you may want to follow Jiro's lead and have your audi write in your chart "No CI" so that you don't have to worry about another audi asking you if you'd like a CI.

I'll ask them to do that then in about 3 to 6 months time when I next have another appointment...If I rememeber by then. Since this isn't an urgent matter I can expect to wait a long time by which time the tactaid may have gone out of buisness.

Hear Again · 03-24-2009, 10:17 PM

Quote:

Originally Posted by faire_jour

Outrageous! I'm glad I am smarter enough to not fall for it. I just feel bad for other, more impressionable parents who may run into her.

So do I.

Daredevel7 · 03-24-2009, 10:34 PM

Yea in my experience, the only person who "pushed" a CI on me is my old speech therapist but we've known each other for 20+ years. It became just a fun riff raff between us, but she was the only one who really wanted me to get it. Ive had several audiologists since I've moved three times. 2 said "No CI? Okay then." and did their job. One actually tried to push it on me because she didn't realize that I was born deaf, she thought I was late deafened. She was new. I had to show her my old audiograms to "prove" that I didn't lose much hearing. That was a funny day for me.

overthepond · 03-25-2009, 02:51 AM

Quote:

Originally Posted by dreama

There have been a few others. Pacman, Animal lover and PuyoPiyo all have CI's that they don't wear. I think there are a few others but I can't remember what their user names are.

Thanks Dreama....

So thats 5 so far and they haven't said a thing... there must be more also would be interested to read their stories on why they aren't wearing CI anymore (apart from Travis as we know already)

overthepond · 03-25-2009, 02:56 AM

No one pushed me into having CI, I asked and was refused few times until i moved (for job) to new county... I was refered to new ENT, I didn't ask, ENT asked straight out... have you heard of Cochlear Implant, gave me information to take home for me to read, he said It MAY work for me but there is no guaratee.... I took the risk and went for it.

Frisky Feline · 03-25-2009, 05:42 AM

My dh have never thought of it but did think about it. He has been seeing some doctors about his bad tinnitus. One of doctors referred him to see the audiologist and suggested him to mention about the cochlear implants to the audiologist that doctor thinks the CI would reduce his tinnius. That's how He ended up got a CI. well, he still got tinnius anyway.

dreama · 03-25-2009, 10:13 PM

Quote:

Originally Posted by overthepond

Thanks Dreama....

So thats 5 so far and they haven't said a thing... there must be more also would be interested to read their stories on why they aren't wearing CI anymore (apart from Travis as we know already)

If you want to know their stories you have to dig into the older threads. Pacman and Animal lover don't seem to post any more and PuyoPiyo has stopped talking about his failed implant. He doesn't post in the CI section any more so you would have to do a bit of digging for all of them.

deafdyke · 05-12-2009, 04:23 AM

I have to say.....I think that many decisions to implant are done for the right reasons. Matter of fact, if someone posted here and stated clearly that they had a long history of not responding well to being aided,(or had a dead ear) I would tell them to LOOK into CI!
I am very pro CI..........It's a great tool to use when someone's maxed out the power of hearing aids.
However, I do think there is some "selling" of the CI going on in the cases where canidacy is somewhat ambigious.
It's gotten more blatent in recent years, as canidacy requirements have been loosened.
I'm not one of those "anti-CI" folks at ALL.
I just think that in SOME cases there is "selling" or "offlabel" use of it.
It has changed a bit. A few years ago CIs were equated with " YAY normal hearing!" Now it's more " So and so can hear some with CI."
However as I said before with the loosening of canidacy requirments, the " Miricle hearing instruement language has come back into play a bit.

rockdrummer · 05-12-2009, 10:47 AM

It's another one of many options available to folks with hearing impariments. Not all options work for all people. The un-deniable facts are that there will be successs and failures regardless of the option chosen.

Hear Again · 05-19-2009, 07:23 PM

I don't think the fact that people with severe-profound hearing loss qualify for CIs (provided they have 40% or less speech discrimination in their poorer ear and 60% or less in their better ear) means that implants are being pushed or forced on anyone. I had severe-profound hearing loss for 10 years prior to receiving my CIs and not once did my audis (3 in 20 years) discuss CIs with me.

deafdyke · 05-26-2009, 04:03 AM

Quote:

I don't think the fact that people with severe-profound hearing loss qualify for CIs (provided they have 40% or less speech discrimination in their poorer ear and 60% or less in their better ear) means that implants are being pushed or forced on anyone. I had severe-profound hearing loss for 10 years prior to receiving my CIs and not once did my audis (3 in 20 years) discuss CIs with me.

Hear Again, I think you're missing my point. I know that there are severe-profounders who don't have a great response with traditional HAs.
I'm not against them being implanted at all.
However, I think you're missing the point that there do seem to be a significent percentage of canidates with somewhat significent residual hearing since the FDA reccomendations were loosened. It's no longer JUST "no or very poor response (ie enviromental sounds or 40% and below speech threshold with hearing aids)
Heck, if that were indeed the case, I wouldn't even be debating this issue at all. I think that CIs are a perfect option for people who've maxed out the power of a hearing aid.
However there does seem to be a bit of "Big Pharma" style influence with audis trying to push CIs. Especially in the past few years since the candidacy requirements were loosened. That is probaly why you didn't get a lot of pressure from your audis to be implanted........b/c back then they reserved CIs for only the absolute worst cases.

Hear Again · 05-26-2009, 08:04 AM

Quote:

Originally Posted by deafdyke

However, I think you're missing the point that there do seem to be a significent percentage of canidates with somewhat significent residual hearing since the FDA reccomendations were loosened. It's no longer JUST "no or very poor response (ie enviromental sounds or 40% and below speech threshold with hearing aids)

DD,

You and I never see eye to eye on this subject, so let's agree to disagree please.

By the way, I've had severe-profound hearing loss since 1995 and the FDA criteria for CI candidacy were relaxed in the late 90s or early Y2K. With that being the case, my audis had plenty of time
to discuss CIs with me, but never did.

Now that I think about it, I do remember one conversation
I had with an audi who fitted me with my first pair of hearing aids in 1985. When I asked her whether or not she thought I would be accepted as a CI candidate (this was back in 2001), she said
"I don't know. With a 90+ dB loss, they might implant you."

That just goes to show that not all audis are aggressively pushing CIs. Many of them probably are, but a majority of them are not.

03-24-2009, 09:28 PM	#125 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	Well that should change. Audio shouldn't ram CI's on everyone. In the 10 years I had severe-profound hearing loss, none of my audis (2 of them) ever mentioned CIs to me. My ENT recommended an MEI, but after seeing a specialist, I learned that I didn't have enough residual hearing. Even the audi who gave me my first pair of hearing aids in 1985 told me that she didn't know if I would qualify as a CI candidate with a 90+ dB loss. I don't know where all of these audis are who ram CIs down people's throats. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

05-19-2009, 07:23 PM	#148 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	I don't think the fact that people with severe-profound hearing loss qualify for CIs (provided they have 40% or less speech discrimination in their poorer ear and 60% or less in their better ear) means that implants are being pushed or forced on anyone. I had severe-profound hearing loss for 10 years prior to receiving my CIs and not once did my audis (3 in 20 years) discuss CIs with me. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

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03-24-2009, 10:34 PM	#141 (permalink)
Daredevel7 Adrenaline Junky Join Date: Aug 2008 Location: Huntsville, AL Posts: 1,937	Yea in my experience, the only person who "pushed" a CI on me is my old speech therapist but we've known each other for 20+ years. It became just a fun riff raff between us, but she was the only one who really wanted me to get it. Ive had several audiologists since I've moved three times. 2 said "No CI? Okay then." and did their job. One actually tried to push it on me because she didn't realize that I was born deaf, she thought I was late deafened. She was new. I had to show her my old audiograms to "prove" that I didn't lose much hearing. That was a funny day for me.

03-25-2009, 02:56 AM	#143 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,280	No one pushed me into having CI, I asked and was refused few times until i moved (for job) to new county... I was refered to new ENT, I didn't ask, ENT asked straight out... have you heard of Cochlear Implant, gave me information to take home for me to read, he said It MAY work for me but there is no guaratee.... I took the risk and went for it.

03-25-2009, 05:42 AM	#144 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,712	My dh have never thought of it but did think about it. He has been seeing some doctors about his bad tinnitus. One of doctors referred him to see the audiologist and suggested him to mention about the cochlear implants to the audiologist that doctor thinks the CI would reduce his tinnius. That's how He ended up got a CI. well, he still got tinnius anyway.

05-12-2009, 04:23 AM	#146 (permalink)
deafdyke So NOT a Princess! Join Date: Mar 2003 Location: Trebekistan Posts: 7,495	I have to say.....I think that many decisions to implant are done for the right reasons. Matter of fact, if someone posted here and stated clearly that they had a long history of not responding well to being aided,(or had a dead ear) I would tell them to LOOK into CI! I am very pro CI..........It's a great tool to use when someone's maxed out the power of hearing aids. However, I do think there is some "selling" of the CI going on in the cases where canidacy is somewhat ambigious. It's gotten more blatent in recent years, as canidacy requirements have been loosened. I'm not one of those "anti-CI" folks at ALL. I just think that in SOME cases there is "selling" or "offlabel" use of it. It has changed a bit. A few years ago CIs were equated with " YAY normal hearing!" Now it's more " So and so can hear some with CI." However as I said before with the loosening of canidacy requirments, the " Miricle hearing instruement language has come back into play a bit.

05-12-2009, 10:47 AM	#147 (permalink)
rockdrummer Weapon of mass percussion Join Date: Feb 2006 Location: Chicago area Posts: 4,090	It's another one of many options available to folks with hearing impariments. Not all options work for all people. The un-deniable facts are that there will be successs and failures regardless of the option chosen.