The hearing and cochlear implant debate! Share your opinion! - Page 4

Hear Again · 03-23-2009, 11:58 PM

Yes, but you were a right off the bat canidate. I'm speaking of the canidates who havesemi decent residual hearing, who feel like they need to upgrade b/c it sounds like this device is something that removes all the barriers of being hoh. deafdude is right. While many canidates opt for it b/c they actually NEED it, with the loosening of who and who can't get it , there are still some people who opt for it b/c they believe that the latest technology always equates with better results. Exactly like the audiophilles who think that b/c they have some sort of gizmo, it allows them to hear what a superhero with bionic hearing would.

CIs do eliminate alot of the barriers of being HoH. If someone can go from having moderately-severe to profound, severe-profound or profound hearing loss to mild-moderate hearing loss, I would consider that to be one way barries are removed from being HoH. Instead of a person struggling as much as they did prior to receiving a CI, communication is made so much easier thereby eliminating alot of barriers. CIs don't eliminate all barriers, but they eliminate a majority of them.

Hear Again · 03-24-2009, 12:01 AM

Quote:

Originally Posted by Jiro

no I didn't fail to state it. you'll have to take it up to FDA for not stating the specific degree of risk.

If you're going to cite a source, then you need to back up your statement instead of making a generality about risk. You didn't indicate what degree of risk. You simply stated that there was a risk. I also said there was a risk of me crossing the street and getting hit by a car. So? Does that mean I shouldn't leave my home? Just because there's a small risk of facial paralysis, does that mean I shouldn't take the chance of being able to hear better? If you are opposed to CIs, that's fine, but don't exaggerate risks where little to none exist.

overthepond · 03-24-2009, 03:23 AM

Quote:

Originally Posted by deafdyke

define not benifiting from CI. Benifit is measured very indivdually. For some people that might be being able to hear at hoh levels. For others that might be enviromental sounds or a slight increase in their speech perception skills.

No benefit after they had the CI put in... I am wondering if there is anyone who had CI then happen not to wear them, I am interested to see who on the site doesn't wear CI anymore and their reasons...
I know there is Travis...
And thanks to Bott... Foxrac but he wants to wear it again although i haven't heard anymore off foxrac so i guess he's still non wearer.

Frisky Feline · 03-24-2009, 05:32 AM

Do anyone of you who need to follow up with audiologist and pay fee every time you visit? just curious.

Hear Again · 03-24-2009, 05:43 AM

Quote:

Originally Posted by Frisky Feline

Do anyone of you who need to follow up with audiology and pay fee every time you visit? just curious.

I don't.

Mappings (and AVT) are covered by most insurers, so this is a non-issue for a majority of CI users.

Frisky Feline · 03-24-2009, 05:55 AM

Quote:

Originally Posted by Hear Again

I don't.

Mappings (and AVT) are covered by most insurers, so this is a non-issue for a majority of CI users.

Oh, thats nice. my dh stopped going to folllow up with the audiology for the visit fee that costs us for 100 bucks. Our insurance does not cover to pay fee for his visiting to the audiology. So far, he is doing ok with his ci and feel that he doesnt need to change it or so unless it is reallly necessary. Then we would have to pay the fees for his visiting to check up with his CI.

Look like medicare, and medicaid are covered with the fees for the visiting.

Hear Again · 03-24-2009, 05:58 AM

Quote:

Originally Posted by Frisky Feline

Oh, thats nice. my dh stopped going to folllow up with the audiology for the visit fee that costs us for 100 bucks. Our insurance does not cover to pay fee for his visiting to the audiology. So far, he is doing ok with his ci and feel that he doesnt need to change it or so unless it is reallly necessary. Then we would have to pay the fees for his visiting to check up with his CI.

Look like medicare, and medicaid are covered with the fees for the visiting.

Ouch! I'm sorry that happened to your DH.

Standard health insurance plans also cover mappings and AVT -- not just Medicaid and Medicare.

As far as Medicare is concerned, they only pay for 80% of the total cost/visit while Medicaid pays 100%.

Frisky Feline · 03-24-2009, 06:06 AM

Quote:

Originally Posted by Hear Again

Ouch! I'm sorry that happened to your DH.

Standard health insurance plans also cover mappings and AVT -- not just Medicaid and Medicare.

As far as Medicare is concerned, they only pay for 80% of the total cost/visit while Medicaid pays 100%.

Yeah that sucks about the visitor fees. thanks anyway.

overthepond · 03-24-2009, 12:56 PM

Quote:

Originally Posted by Frisky Feline

Do anyone of you who need to follow up with audiology and pay fee every time you visit? just curious.

As british I don't, My CI is covered by the NHS.

Jiro · 03-24-2009, 01:30 PM

Quote:

Originally Posted by Hear Again

If you're going to cite a source, then you need to back up your statement instead of making a generality about risk. You didn't indicate what degree of risk. You simply stated that there was a risk. I also said there was a risk of me crossing the street and getting hit by a car. So? Does that mean I shouldn't leave my home? Just because there's a small risk of facial paralysis, does that mean I shouldn't take the chance of being able to hear better? If you are opposed to CIs, that's fine, but don't exaggerate risks where little to none exist.

again - direct your complaint to FDA at 888-463-6332 to clarify its statement regarding risk

and I'm not opposed to CI at all. I simply choose not to have it for myself if my hearing has degraded to the point where HA is useless.

society's_child · 03-24-2009, 01:47 PM

Quote:

Originally Posted by Jiro

I simply choose not to have it for myself if my hearing has degraded to the point where HA is useless.

Has your hearing deteriorated that badly?

Hear Again · 03-24-2009, 02:03 PM

Quote:

Originally Posted by Jiro

again - direct your complaint to FDA at 888-463-6332 to clarify its statement regarding risk

and I'm not opposed to CI at all. I simply choose not to have it for myself if my hearing has degraded to the point where HA is useless.

If you're not opposed to CIs, why not mention the benefits instead of the risks?

As far as the FDA is concerned, I don't need to call them. I'm a bilateral CI recipient and have done plenty of research in regards to risks, etc. and am quite happy with the choice I've made to be implanted.

Jiro · 03-24-2009, 02:26 PM

Quote:

Originally Posted by Hear Again

If you're not opposed to CIs, why not mention the benefits instead of the risks?

you are free to do so. I merely chimed in for other ADer. beside - you and Faire have already provided the benefits of it. it's important to show the risk, right?

Quote:

Originally Posted by Hear Again

As far as the FDA is concerned, I don't need to call them. I'm a bilateral CI recipient and have done plenty of research in regards to risks, etc. and am quite happy with the choice I've made to be implanted.

that's cool.

Jiro · 03-24-2009, 03:18 PM

Quote:

Originally Posted by society's_child

Has your hearing deteriorated that badly?

oh no not yet. but yes it has been slowly declining. Must be my age! I'm just saying if it does, I'm not going to opt for CI. I'm perfectly happy with the way I am - with residual hearing or none

society's_child · 03-24-2009, 03:36 PM

Quote:

Originally Posted by Jiro

oh no not yet. but yes it has been slowly declining. Must be my age! I'm just saying if it does, I'm not going to opt for CI. I'm perfectly happy with the way I am - with residual hearing or none

Understood. I keep fogetting that you're hoh.

Lighthouse77 · 03-24-2009, 04:46 PM

Quote:

Originally Posted by Hear Again

Ummmm, HELLO! The device and surgery is NOT cheap. The more people opt for it, the more insurance rates will rise due to the fact that health care costs are SKY HIGH!

Ummmm, HELLO! The device and surgery are covered by insurance. The more people who opt for it, the less insurance rates will rise due to the fact that less money is spent on audiological and ENT services not to mention hearing aid programming. A CI may cost $50-60,000 initially, but after that, the expense is lessened since a person only requires a mapping every 6 or 12 months. Compare that to a hearing aid user who requires several visits for tweaking, annual hearing tests and a consultation with an ENT when problems arise with their ears.

Healthcare rates are sky right right now due to the expenses doctors charge for their services overall. Don't pin it on CIs because CIs have nothing to do with it.

really? I haven't gone for my audiologist for years after my hearing aids. And I didn't know my insurance cover it (they don't cover hearing aids, just cochlear implant, unless you have hearpo insurance)

and people do go for mapping more frequently when they have a problem (I have cochlear implant btw) That's what great about CI, when Hearing aids can't help with degraded hearing, CI can.. But either way, you still have to go for adjustment rather it is for CI or hearing aids if your hearing is changing.

Lighthouse77 · 03-24-2009, 04:53 PM

Quote:

Originally Posted by Hear Again

If you're going to cite a source, then you need to back up your statement instead of making a generality about risk. You didn't indicate what degree of risk. You simply stated that there was a risk. I also said there was a risk of me crossing the street and getting hit by a car. So? Does that mean I shouldn't leave my home? Just because there's a small risk of facial paralysis, does that mean I shouldn't take the chance of being able to hear better? If you are opposed to CIs, that's fine, but don't exaggerate risks where little to none exist.

I never heard of a safe surgery.. There's always a risk.

Bottesini · 03-24-2009, 05:46 PM

Quote:

Originally Posted by Jiro

you are free to do so. I merely chimed in for other ADer. beside - you and Faire have already provided the benefits of it. it's important to show the risk, right?

that's cool.

And I thank you. In another thread Sound and Fury, Doubletrouble who is the mother in the movie, does admit the risks and imperfections.

She seem one of the few CI user here who are not trying to push it for everyone.

Hear Again · 03-24-2009, 06:10 PM

Quote:

Originally Posted by Bottesini

She seem one of the few CI user here who are not trying to push it for everyone.

I'm not pushing the CI. In an earlier post I said that I encouraged people to use whatever communication technique or techniques worked best for them.

Hear Again · 03-24-2009, 06:12 PM

Quote:

Originally Posted by Lighthouse77

I never heard of a safe surgery.. There's always a risk.

There may be risks associated with CI surgery, but in many cases, the benefits outweigh them.

...and note that I said little or no risk. I never claimed CI surgery was
risk-free.

Bottesini · 03-24-2009, 06:13 PM

Quote:

Originally Posted by Hear Again

I'm not pushing the CI. In an earlier post I said that I encouraged people to use whatever communication technique or techniques worked best for them.

I know. I am saying it badly.

I mean she does tell the risks and non sucess stories too.

I know you are very sincere.

Hear Again · 03-24-2009, 06:17 PM

Quote:

Originally Posted by Lighthouse77

But either way, you still have to go for adjustment rather it is for CI or hearing aids if your hearing is changing.

Typically CI hearing does not change over time.

Having said that, most CI users have annual or bi-annual mappings which is still less than the amount of programming, hearing tests, etc. that hearing aid users have. When I used to wear hearing aids, my hearing aid audis required me to have hearing tests every 3 months.

Hear Again · 03-24-2009, 06:19 PM

Quote:

Originally Posted by Bottesini

I know. I am saying it badly.

I mean she does tell the risks and non sucess stories too.

I know you are very sincere.

for clarifying.

Lighthouse77 · 03-24-2009, 06:21 PM

Quote:

Originally Posted by Hear Again

Typically CI hearing does not change over time.

Having said that, most CI users have annual or bi-annual mappings which is still less than the amount of programming, hearing tests, etc. that hearing aid users have. When I used to wear hearing aids, my hearing aid audis required me to have hearing tests every 3 months.

Every three months? wow.

AliciaM · 03-24-2009, 06:23 PM

i used to go every 6 months before now they want me to go at least every month or two since my hearing has dropped so much..im hoping every 3 months cuz i hate audiograms and those stupid words if i have to listen to another set of words like hot dog, or baseball, etc after april 1st in the next 3 months ill go bonkers lol

Hear Again · 03-24-2009, 06:27 PM

Quote:

Originally Posted by Lighthouse77

Every three months? wow.

Yes. I've had 3 hearing aid audis since 1985 and all of them have required me to have hearing tests every 3 months.

faire_jour · 03-24-2009, 08:06 PM

Quote:

Originally Posted by Bottesini

I know. I am saying it badly.

I mean she does tell the risks and non sucess stories too.

I know you are very sincere.

Everyone here has said that benefits can range from a slight increase in enviromental sound awareness to the ability to speak to strangers on a cell phone. Every person is different.

dreama · 03-24-2009, 08:07 PM

Quote:

Originally Posted by Hear Again

DD,

I don't understand why you think doctors are promoting CIs to everyone who walks in the door because that simply isn't true.

I went to an Audiologist recently hoping to obtain a tactaid7. I was even willing to fund it myself. I just needed an Audiologist to purchase it since they don't sell directly to the public.
Anyway they recomended a CI instead. Since a Tactaid7 is much cheaper, I can't understand why. I don't want a CI because I like being profoundly deaf. The tactaid would just alert me to environmental noise through tactile means.

faire_jour · 03-24-2009, 08:17 PM

Quote:

Originally Posted by dreama

I went to an Audiologist recently hoping to obtain a tactaid7. I was even willing to fund it myself. I just needed an Audiologist to purchase it since they don't sell directly to the public.
Anyway they recomended a CI instead. Since a Tactaid7 is much cheaper, I can't understand why. I don't want a CI because I like being profoundly deaf. The tactaid would just alert me to environmental noise through tactile means.

An audiologist's job is to help you hear the best you can. That is their job, that is why they recommended a CI. From their perspective, it would help you hear more and that is what they are supposed to do.

dreama · 03-24-2009, 08:27 PM

Quote:

Originally Posted by overthepond

I also do talks at my CI centre to potential candiates. My centre puts people of similar deafness (profound deaf since birth, good speech and CI in adulthood) as me in my group.

I have a question... is there anyone on the site that did not benifit from CI. I know one Travis (smithr) he had his removed due to on going headaches but i can't recall anyone else?

Another thing is that when i say that i am CI user some deaf people do get quite negative about it and we haven't done anything wrong, we have nothing against deaf people who believes in strong deaf culture/keeping the deaf community alive... so am I...but they are the ones who pushes us out.

There have been a few others. Pacman, Animal lover and PuyoPiyo all have CI's that they don't wear. I think there are a few others but I can't remember what their user names are.

03-23-2009, 11:58 PM	#91 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	Yes, but you were a right off the bat canidate. I'm speaking of the canidates who havesemi decent residual hearing, who feel like they need to upgrade b/c it sounds like this device is something that removes all the barriers of being hoh. deafdude is right. While many canidates opt for it b/c they actually NEED it, with the loosening of who and who can't get it , there are still some people who opt for it b/c they believe that the latest technology always equates with better results. Exactly like the audiophilles who think that b/c they have some sort of gizmo, it allows them to hear what a superhero with bionic hearing would. CIs do eliminate alot of the barriers of being HoH. If someone can go from having moderately-severe to profound, severe-profound or profound hearing loss to mild-moderate hearing loss, I would consider that to be one way barries are removed from being HoH. Instead of a person struggling as much as they did prior to receiving a CI, communication is made so much easier thereby eliminating alot of barriers. CIs don't eliminate all barriers, but they eliminate a majority of them. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

03-24-2009, 05:32 AM	#94 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,705	Do anyone of you who need to follow up with audiologist and pay fee every time you visit? just curious. Last edited by Frisky Feline; 03-24-2009 at 01:59 PM.

03-24-2009, 06:23 PM	#115 (permalink)
AliciaM Midge Join Date: May 2006 Location: Ottawa, ON Posts: 1,603	i used to go every 6 months before now they want me to go at least every month or two since my hearing has dropped so much..im hoping every 3 months cuz i hate audiograms and those stupid words if i have to listen to another set of words like hot dog, or baseball, etc after april 1st in the next 3 months ill go bonkers lol __________________ Alicia Phonak versatas Severe loss deaf Ears are cheap. It's what's between the ears that counts

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