The hearing and cochlear implant debate! Share your opinion! - Page 3

Hear Again · 03-23-2009, 02:53 PM

Quote:

Originally Posted by Bottesini

I am curious, do you get paid or get benefit from advocating for CI?

People who serve as volunteers for CI companies do not get paid.

Bottesini · 03-23-2009, 02:53 PM

Quote:

Originally Posted by Hear Again

No.

I advocate for CIs because I'm a CI recipient and enjoy sharing my experiences with others.

Having said that, I also advocate the use of ASL. I'm neither 100% pro-oral or 100% pro-ASL. I believe in a person using whatever comunication technique or techniques work best for them.

Thanks for answering.

faire_jour · 03-23-2009, 02:54 PM

Quote:

Originally Posted by Hear Again

No.

I advocate for CIs because I'm a CI recipient and enjoy sharing my experiences with others.

Having said that, I also advocate the use of ASL. I'm neither 100% pro-oral or 100% pro-ASL. I believe in a person using whatever comunication technique or techniques work best for them.

I agree with every word in this post. Just change recipent to parent of a recipent!

Hear Again · 03-23-2009, 02:55 PM

Quote:

Originally Posted by Bottesini

Thanks for answering.

You're welcome, Bott.

ASLGAL · 03-23-2009, 06:03 PM

The lady DeafDude talked about, I am confused, does she not realize that her residual hearing is lost once they do the CI operation?

I know several adults who have gotten CI's. The results have been a wide range, from profound disappointment to satisfaction.

I am not for CI's especially as a cure for deafness and especially forced upon children and/or adults.
It needs to be an individuals decision.

Hear Again · 03-23-2009, 07:09 PM

Quote:

Originally Posted by ASLGAL

It needs to be an individuals decision.

Exactly!

faire_jour · 03-23-2009, 07:42 PM

Quote:

Originally Posted by ASLGAL

The lady DeafDude talked about, I am confused, does she not realize that her residual hearing is lost once they do the CI operation?

I know several adults who have gotten CI's. The results have been a wide range, from profound disappointment to satisfaction.

I am not for CI's especially as a cure for deafness and especially forced upon children and/or adults.
It needs to be an individuals decision.

I don't think anyone believes that a CI is a cure for deafness. Anyone in their right mind knows that the person is still deaf, especially when the device comes off.

Also, as a parent of a CI user, the allusion that I "forced" my child to get a CI is incredibly offensive. I don't see anyone here saying that I "forced her to learn ASL" or that I "force her to go to Deaf school" while they are equally "true". When you are a parent you must make thosands of decisions for your child and often they are difficult, heart wrentching decesions. I "forced" her to have vaccinations and I know tons of people who think that was a bad decision. I don't. I think it was the right decision for my child, as was the implant.

overthepond · 03-23-2009, 07:46 PM

I also do talks at my CI centre to potential candiates. My centre puts people of similar deafness (profound deaf since birth, good speech and CI in adulthood) as me in my group.

I have a question... is there anyone on the site that did not benifit from CI. I know one Travis (smithr) he had his removed due to on going headaches but i can't recall anyone else?

Another thing is that when i say that i am CI user some deaf people do get quite negative about it and we haven't done anything wrong, we have nothing against deaf people who believes in strong deaf culture/keeping the deaf community alive... so am I...but they are the ones who pushes us out.

faire_jour · 03-23-2009, 07:48 PM

Quote:

Originally Posted by overthepond

I also do talks at my CI centre to potential candiates. My centre puts people of similar deafness (profound deaf since birth, good speech and CI in adulthood) as me in my group.

I have a question... is there anyone on the site that did not benifit from CI. I know one Travis (smithr) he had his removed due to on going headaches but i can't recall anyone else?

And yet his headaches continue LONG after it has been removed

Bottesini · 03-23-2009, 07:56 PM

Quote:

Originally Posted by faire_jour

And yet his headaches continue LONG after it has been removed

You understand a lot of nerves are cut and may grow back in wrong patterns?

Bottesini · 03-23-2009, 07:57 PM

Quote:

Originally Posted by overthepond

I also do talks at my CI centre to potential candiates. My centre puts people of similar deafness (profound deaf since birth, good speech and CI in adulthood) as me in my group.

I have a question... is there anyone on the site that did not benifit from CI. I know one Travis (smithr) he had his removed due to on going headaches but i can't recall anyone else?

Another thing is that when i say that i am CI user some deaf people do get quite negative about it and we haven't done anything wrong, we have nothing against deaf people who believes in strong deaf culture/keeping the deaf community alive... so am I...but they are the ones who pushes us out.

Maybe Tinkerbell? And also Foxrac?

faire_jour · 03-23-2009, 07:59 PM

Quote:

Originally Posted by Bottesini

You understand a lot of nerves are cut and may grow back in wrong patterns?

Actually the surgeon does everything in his power to make sure no nerves are cut at all. My daughter's surgeon has been doing CI's for 20+ years and has never had a facial nerve injury.

Nothing in the brain in cut, or touched. The only thing that is cut is the skin (which would not cause a headache) and a small whole is drilled in the cochlea itself, which does not contain any nerves at all.

Hear Again · 03-23-2009, 08:10 PM

Quote:

Originally Posted by faire_jour

Actually the surgeon does everything in his power to make sure no nerves are cut at all. My daughter's surgeon has been doing CI's for 20+ years and has never had a facial nerve injury.

This is exactly why surgeons use a special machine during CI surgery to avoid coming into contact with the facial nerve.

Facial nerve paralysis is a rare complication of CI surgery.

Jiro · 03-23-2009, 08:14 PM

Quote:

Originally Posted by faire_jour

Actually the surgeon does everything in his power to make sure no nerves are cut at all. My daughter's surgeon has been doing CI's for 20+ years and has never had a facial nerve injury.

Nothing in the brain in cut, or touched. The only thing that is cut is the skin (which would not cause a headache) and a small whole is drilled in the cochlea itself, which does not contain any nerves at all.

Quote:

Originally Posted by Hear Again

This is exactly why surgeons use a special machine during CI surgery to avoid coming into contact with the facial nerve.

Facial nerve paralysis is a rare complication of CI surgery.

but still a risk.

FDA Site

Quote:

Risks from the Surgical Implant Procedure

* Injury to the facial nerve --this nerve goes through the middle ear to give movement to the muscles of the face. It lies close to where the surgeon needs to place the implant, and thus it can be injured during the surgery. An injury can cause a temporary or permanent weakening or full paralysis on the same side of the face as the implant.
* Meningitis --this is an infection of the lining of the surface of the brain. People who have abnormally formed inner ear structures appear to be at greater risk of this rare, but serious complication. For more information on the risk of meningitis in cochlear recipients, please refer to FDA's Public Health Notification: US FDA/CDRH: FDA Public Health Notification: Importance of Vaccination in Cochlear Implant Recipients and its Advice to Patients: Medical Device Safety: Advice for Patients with Cochlear Implants: New Information on Meningitis Risk
* Cerebrospinal fluid leakage --the brain is surrounded by fluid that may leak from a hole created in the inner ear or elsewhere from a hole in the covering of the brain as a result of the surgical procedure.
* Perilymph fluid leak --the inner ear or cochlea contains fluid. This fluid can leak through the hole that was created to place the implant.
* Infection of the skin wound.
* Blood or fluid collection at the site of surgery.
* Attacks of dizziness or vertigo.
* Tinnitus, which is a ringing or buzzing sound in the ear.
* Taste disturbances --the nerve that gives taste sensation to the tongue also goes through the middle ear and might be injured during the surgery.
* Numbness around the ear.
* Reparative granuloma --this is the result of localized inflammation that can occur if the body rejects the implant.
* There may be other unforeseen complications that could occur with long term implantation that we cannot now predict.

faire_jour · 03-23-2009, 08:15 PM

Quote:

Originally Posted by Jiro

but still a risk.

FDA Site

I don't see where it says headaches....

Jiro · 03-23-2009, 08:17 PM

Quote:

Originally Posted by faire_jour

I don't see where it says headaches....

see last sentence - "There may be other unforeseen complications that could occur with long term implantation that we cannot now predict."

I guess you can put "headaches" in that part

Frisky Feline · 03-23-2009, 08:17 PM

have anyone research on young kids like toddlers' heads, will CI thingy shape up those kids' heads differently once they get older?

I have seen of a very few people who are no longer using CI and their heads were shaped a little that they had CI when they were kiddos. They are over 30's.

Hear Again · 03-23-2009, 08:18 PM

Quote:

Originally Posted by Jiro

but still a risk.

A minimal risk. Life is a risk. I could get hit by a car crossing the street. Does that mean I should never leave my home?

faire_jour · 03-23-2009, 08:19 PM

Quote:

Originally Posted by Jiro

see last sentence - "There may be other unforeseen complications that could occur with long term implantation that we cannot now predict."

I guess you can put "headaches" in that part

That is meant to reference the fact that they have no idea (past 20 years) what the affect of stimulating the nerve via electricity is.

Hear Again · 03-23-2009, 08:19 PM

Quote:

Originally Posted by Frisky Feline

have anyone research on young kids like toddlers' heads, will CI thingy shape up those kids' heads differently once they get older?

No.

The CI comforms to the bone growth surrounding it. The only evidence of having a CI is a very small bump located just above and behind the ear.

faire_jour · 03-23-2009, 08:20 PM

Quote:

Originally Posted by Frisky Feline

have anyone research on young kids like toddlers' heads, will CI thingy shape up those kids' heads differently once they get older?

I have seen of a very few people who are no longer using CI and their heads were shaped a little that they had CI when they were kiddos. They are over 30's.

In my daughter the spot that has the device pokes out a little. It lays under the skin so it isn't totally flat.

deafdyke · 03-23-2009, 08:57 PM

Quote:

That's quite an unfair generalization to make, DD. I have bilateral CIs and I'm not an AG Bell AVT type.

Yes, but you were a right off the bat canidate. I'm speaking of the canidates who havesemi decent residual hearing, who feel like they need to upgrade b/c it sounds like this device is something that removes all the barriers of being hoh. deafdude is right. While many canidates opt for it b/c they actually NEED it, with the loosening of who and who can't get it , there are still some people who opt for it b/c they believe that the latest technology always equates with better results. Exactly like the audiophilles who think that b/c they have some sort of gizmo, it allows them to hear what a superhero with bionic hearing would.

Quote:

Besides, what's wrong with advocating for AVT? When someone opts to have a CI, speech understanding should be the main focus if a person is able to use their hearing to that extent

. Ummmm.....not AVT. The Auditory verbal philosophy. This is a philsophy that encourages people to upgrade to the newest HA/listening device as soon as it comes out, so that the consumer will always be on the cutting edge.

Quote:

Where do you get the idea that CIs result in higher health insurance premiums? The more people who receive CIs, the less health insurance will cost due to there no longer being a need for ENT services, hearing aid programming and hearing tests.

Ummmm, HELLO! The device and surgery is NOT cheap. The more people opt for it, the more insurance rates will rise due to the fact that health care costs are SKY HIGH! Besides, a percentage of the people who opt for CI never even neeed hearing aid programming etc.

deafdyke · 03-23-2009, 09:00 PM

Quote:

have a question... is there anyone on the site that did not benifit from CI.

define not benifiting from CI. Benifit is measured very indivdually. For some people that might be being able to hear at hoh levels. For others that might be enviromental sounds or a slight increase in their speech perception skills.

Jiro · 03-23-2009, 09:03 PM

Quote:

Originally Posted by Hear Again

A minimal risk. Life is a risk. I could get hit by a car crossing the street. Does that mean I should never leave my home?

which is what I stated in my post #74

faire_jour · 03-23-2009, 10:05 PM

Quote:

Originally Posted by deafdyke

define not benifiting from CI. Benifit is measured very indivdually. For some people that might be being able to hear at hoh levels. For others that might be enviromental sounds or a slight increase in their speech perception skills.

I would call all of those things benefitting.

Hear Again · 03-23-2009, 11:47 PM

Quote:

Originally Posted by faire_jour

I would call all of those things benefitting.

As would I.

Hear Again · 03-23-2009, 11:48 PM

Quote:

Originally Posted by Jiro

which is what I stated in my post #74

But you failed to state what degree the risk was. Major? Minor?

Hear Again · 03-23-2009, 11:53 PM

Ummmm, HELLO! The device and surgery is NOT cheap. The more people opt for it, the more insurance rates will rise due to the fact that health care costs are SKY HIGH!

Ummmm, HELLO! The device and surgery are covered by insurance. The more people who opt for it, the less insurance rates will rise due to the fact that less money is spent on audiological and ENT services not to mention hearing aid programming. A CI may cost $50-60,000 initially, but after that, the expense is lessened since a person only requires a mapping every 6 or 12 months. Compare that to a hearing aid user who requires several visits for tweaking, annual hearing tests and a consultation with an ENT when problems arise with their ears.

Healthcare rates are sky right right now due to the expenses doctors charge for their services overall. Don't pin it on CIs because CIs have nothing to do with it.

Hear Again · 03-23-2009, 11:55 PM

. Ummmm.....not AVT. The Auditory verbal philosophy. This is a philsophy that encourages people to upgrade to the newest HA/listening device as soon as it comes out, so that the consumer will always be on the cutting edge.

Yet you have a problem with consumers who choose a CI for the same reason. Hmmm.

Jiro · 03-23-2009, 11:58 PM

Quote:

Originally Posted by Hear Again

But you failed to state what degree the risk was. Major? Minor?

no I didn't fail to state it. you'll have to take it up to FDA for not stating the specific degree of risk.

03-23-2009, 06:03 PM	#65 (permalink)
ASLGAL Here's Your Sign ;-D Join Date: May 2007 Location: Ohio Posts: 708	The lady DeafDude talked about, I am confused, does she not realize that her residual hearing is lost once they do the CI operation? I know several adults who have gotten CI's. The results have been a wide range, from profound disappointment to satisfaction. I am not for CI's especially as a cure for deafness and especially forced upon children and/or adults. It needs to be an individuals decision. __________________ "The only thing necessary for the triumph of evil is for good men to do nothing" ~ Edmund Burke~ "When the debate is lost, slander becomes the tool of the loser" ~ Socrates ~

03-23-2009, 11:53 PM	#88 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	Ummmm, HELLO! The device and surgery is NOT cheap. The more people opt for it, the more insurance rates will rise due to the fact that health care costs are SKY HIGH! Ummmm, HELLO! The device and surgery are covered by insurance. The more people who opt for it, the less insurance rates will rise due to the fact that less money is spent on audiological and ENT services not to mention hearing aid programming. A CI may cost $50-60,000 initially, but after that, the expense is lessened since a person only requires a mapping every 6 or 12 months. Compare that to a hearing aid user who requires several visits for tweaking, annual hearing tests and a consultation with an ENT when problems arise with their ears. Healthcare rates are sky right right now due to the expenses doctors charge for their services overall. Don't pin it on CIs because CIs have nothing to do with it. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

03-23-2009, 11:55 PM	#89 (permalink)
Hear Again Each day is a gift. Join Date: Jan 2005 Location: Wisconsin Posts: 20,073 Blog Entries: 6	. Ummmm.....not AVT. The Auditory verbal philosophy. This is a philsophy that encourages people to upgrade to the newest HA/listening device as soon as it comes out, so that the consumer will always be on the cutting edge. Yet you have a problem with consumers who choose a CI for the same reason. Hmmm. __________________ Left ear - Nucleus 24 Contour Advance with Freedom BTE (Implanted: 12/22/04 \| Activated: 1/18/05) Right ear - Nucleus Freedom (Implanted: 2/1/06 \| Activated: 3/1/06) Deafblind/Postlingual

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03-23-2009, 07:46 PM	#68 (permalink)
overthepond Registered User Join Date: Jun 2008 Location: Great Britain Posts: 1,276	I also do talks at my CI centre to potential candiates. My centre puts people of similar deafness (profound deaf since birth, good speech and CI in adulthood) as me in my group. I have a question... is there anyone on the site that did not benifit from CI. I know one Travis (smithr) he had his removed due to on going headaches but i can't recall anyone else? Another thing is that when i say that i am CI user some deaf people do get quite negative about it and we haven't done anything wrong, we have nothing against deaf people who believes in strong deaf culture/keeping the deaf community alive... so am I...but they are the ones who pushes us out.

03-23-2009, 08:17 PM	#77 (permalink)
Frisky Feline Provoke, Pounce, Purr Join Date: Jun 2003 Posts: 5,686	have anyone research on young kids like toddlers' heads, will CI thingy shape up those kids' heads differently once they get older? I have seen of a very few people who are no longer using CI and their heads were shaped a little that they had CI when they were kiddos. They are over 30's.