Menieres

candybrowneyes

Active Member
This thread will be for anyone who wants to discuss Menieres, who has it, wants to know about it, take out your frustrations about it.

I personally know what this disease does as I was diagnosed in 2008 with it. I was one of the lucky people who was diagnosed bilaterally =/

This thread will be a sticky.

Post as you wish.
 

TiaMarie

Member
I too was a lucky one that got it bilateral. I was told many times by my ENT that I would never get it in my other ear. Well last Aug I went bilateral. My ENT said he had never seen someone so young get it in both ears, so I was sent to see a specialist 2 hours away that I now see every month.
 

saywhatkid

Huked on fonix werx!
Premium Member
I have "enjoyed" Meniere's for over 10 years. Finally diagnosed in 2002 after a couple of years of hearing changes. My "version" has less vertigo than typical, but the hearing loss and fullness are unpleasant enough. I am not jealous of those that have the vertigo.
I take Dyazide and watch my sodium intake. I also quit ciggies in 2002. I find that stress is a trigger. I also get episodes when I have a hearing test. Imagine that.
 

candybrowneyes

Active Member
Yeah, Stress is a trigger for me as well. When I am all emotional it seems as though it is definitely worse. Dyazide is practically the same as Maxide which is what my doctor has changed my script too. But now I also take promethazine for nausea and meclizine for vertigo. I also take an anti inflammatory called Naproxen.
 

saywhatkid

Huked on fonix werx!
Premium Member
Yeah, Stress is a trigger for me as well. When I am all emotional it seems as though it is definitely worse. Dyazide is practically the same as Maxide which is what my doctor has changed my script too. But now I also take promethazine for nausea and meclizine for vertigo. I also take an anti inflammatory called Naproxen.
Do you get episodes when you have your hearing tested? It is always bad news for me: "You have lost this much; you will keep losing at an unknown rate. Learn ASL" kind of thing. For some reason, this almost always gives me about 2-3 weeks of the roaring/ringing with drastic hearing loss.
 

TiaMarie

Member
I have never had an attack during a hearing test. That would be horrible, seeing is how I get them at least once a month. They told me the same thing. " I don't know how much hearing you will lose, but you should learn ASL." They have me on Ativan and Valium. I also take a diuretic Triamterene and hudrochlorothiazide, which is maxzide and Dyzide.
 

saywhatkid

Huked on fonix werx!
Premium Member
I have never had an attack during a hearing test. That would be horrible, seeing is how I get them at least once a month. They told me the same thing. " I don't know how much hearing you will lose, but you should learn ASL." They have me on Ativan and Valium. I also take a diuretic Triamterene and hudrochlorothiazide, which is maxzide and Dyzide.
It is not a full-on episode until afterwards. I can feel it beginning as I sit in the booth, hearing words so loud they hurt my head, but no idea what the word is. It is a slow anger in me, I think, building as the test progresses. In my line of work, I am often tested while on the job, and the testers are usually fascinated by someone with my loss; testing me over and over, then telling me to wear plugs. Grrrrr.
 

TiaMarie

Member
I hate when I get tested and it's a male that is doing the testing. Come on, I have mostly low range hearing loss. They are just setting me up for failure. lol
 

VacationGuy234

Active Member
I have it and I think promoting a healthy lifestyle has prevented me from getting dizzy. I usually don't eat processed foods and I use the Eating for Life cookbook as a guide. I also don't cook with non-stick pans as they have Teflon coating. Because of this, I think, I've not had an attack in years.

It's a tough thing to go through, but hang in there, it's not your whole life, just a part of it.
 

TiaMarie

Member
I do the same thing. I only shop the outer sides of the store, and everything I make from scratch, so I know how much sodium is in it. I had some really good years with no attacks at all. Then I went bilateral and it's starting all over again. Crap!
 

VacationGuy234

Active Member
I do the same thing. I only shop the outer sides of the store, and everything I make from scratch, so I know how much sodium is in it. I had some really good years with no attacks at all. Then I went bilateral and it's starting all over again. Crap!
That's pretty impressive. I don't necessarily think it is all sodium related as I've tried different things. However, I haven't ruled out that the processed foods which use sodium has an affect. I eat more fruits and vegetables today, I had watermelon as a snack this afternoon, I try to keep everything low fat.

I'm sorry you are having issues with it, but I do believe you'll get back to normal in time.
 

VacationGuy234

Active Member
Do you drink coffee or alchohol? And, what about exercise?

I don't drink coffee, but I do drink alcohol. I also exercise 5 times a week.
 

candybrowneyes

Active Member
Well it seems like I get the attacks during that time of the month more. I changed my diet up and my daily symptoms have been so much better as well as exercising!

Tia I was wondering what your loss is? I have a guy for an audi too but that doesnt really have anything to do with my test scores... the beeps need to be changed up a bit though because of the tinnitus.

saywhatkid, yes I just get nervous for the tests, but im not sure its ever caused an attack
 

TiaMarie

Member
It's not really the beeps, its more when he says words and I have to repeat them and he lowers the volume after each word.

I will have to find my test scores and I will most them, if I can read it correctly. lol
 

TiaMarie

Member
It's not really the beeps, its more when he says words and I have to repeat them and he lowers the volume after each word.

I will have to find my test scores and I will most them, if I can read it correctly. lol
 

Smithtr

G.G.H.T
Premium Member
highly more cocern your issues symption terrible on your suffer pain because your have probelm disease how long your health problem on menierse
 
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