Hypermobile Eardrum

Mine is sensorineural loss, they think it may be related to a head injury that cause my to have a seizure a few years ago, but they're not sure and are therefore prone to laying the blame with EDS. I have a moderate to moderately-severe loss. I haven't had an MRI and probably never will because if implanted surgical pins in my hip and shoulder.
 
plasticdinosaur said:
I have a reverse slope loss. :) Starting at 60-ish at 250 and ending at 30 at 8000.
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This is one of the things doing my head in, the audiologist at the hospital insists on the useless practice of averaging all my frequencies and then goes on to describe my hearing loss as "very mild" even though the bad frequencies are down at 70 or so on an average day, worse when the "silent tinnitus" starts up.

I'm sure we have probably had this exact conversation on another thread (doh!) but what do you wear at the moment?
 
RoseRodent said:
This is one of the things doing my head in, the audiologist at the hospital insists on the useless practice of averaging all my frequencies and then goes on to describe my hearing loss as "very mild" even though the bad frequencies are down at 70 or so on an average day, worse when the "silent tinnitus" starts up.

I'm sure we have probably had this exact conversation on another thread (doh!) but what do you wear at the moment?
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I have Phonak Solana MicroP aids, I barely made the higher frequencies on it, but the microM wasn't quite going to make it in the lows.
 
plasticdinosaur said:
I have Phonak Solana MicroP aids, I barely made the higher frequencies on it, but the microM wasn't quite going to make it in the lows.
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And I did know that! You have the purple ones. Nobody seems to have bought the Solana or Cassia here in the UK yet, the private market seems divided between those who try to pass off out of date tech to people who don't know better or those who are offering only the most cutting edge so everyone just has the Ambra just now. That range is promising for being able to offer me a decent across the board fit, but probably not able to hold off long enough for the range to really filter through at a price that I can find the money for.
 
Yeah, they just came out here in the US less than a month ago is what my audi said, VocRehab paid for mine here in the US, but apparently they're not any more expensive then Phonak's previous generation was from her.
 
I went yesterday to look at the Phonak range and I think I am changing my mind now, they do have the Solanas in. I have to choose if I can afford them (I kind of have the money because of a pay-off settlement, but that money is for the rest of my life IYSWIM, so just having the money doesn't necessarily mean I can "afford" them). Now decision time - old tech that I am really sure on what it all does or new tech? I kind of don't like things that try to make decisions for me, I like manual buttons cos hearing aids don't seem to be that clever at working out that I want to speak to my daughter, not whoever is the loudest person in the room! But maybe the latest tech in decision making will make more correct decisions? And do we go P or SP.... aargh! It's too hard! LOL
 
RoseRodent said:
I went yesterday to look at the Phonak range and I think I am changing my mind now, they do have the Solanas in. I have to choose if I can afford them (I kind of have the money because of a pay-off settlement, but that money is for the rest of my life IYSWIM, so just having the money doesn't necessarily mean I can "afford" them). Now decision time - old tech that I am really sure on what it all does or new tech? I kind of don't like things that try to make decisions for me, I like manual buttons cos hearing aids don't seem to be that clever at working out that I want to speak to my daughter, not whoever is the loudest person in the room! But maybe the latest tech in decision making will make more correct decisions? And do we go P or SP.... aargh! It's too hard! LOL
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I'd say use your 30 day trial wisely, and if there's even a chance that your loss is progressive, go for the SP. :)
 
I know this is an old post. But I'm wondering if you were diagnosed with Ehlers-Danlos Syndrome?
 
i seem to have been born deaf, EDS was a late Dx but i can see 3 generations evidentiated.
 
I have hypermobile eardrums. Mine were caused by flying in an airplane while I was sick with bronchitis. It happened in or around the year 2006. It's 2018 now and I have yet to find much information (online) on the topic. This page offers some insight, I thank you for that. Also, there are at least 2 videos on youtube that show what it looks like. As it was described to me many years ago by an ENT Specialist, he said that it's as if my eardrums had become unhinged. They continue to vibrate as healthy eardrums do and are whole and intact. Because they are "unhinged", they also sway back and forth with sound, as one big piece. I took some online hearing tests tonight, I don't know how inaccurate or accurate they are though. 2 of three tests showed significant reduction in the higher Hz range, especially over 9,900 Hz. Lower Hz ranges appeared to be normal.
 
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