How do i explain i don't want my hearing aids?

Discussion in 'Hearing Aids & Cochlear Implants' started by Evie Yancey, May 7, 2017.

  1. Jane B.

    Jane B. Well-Known Member

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    This comes across to me as a control issue as much or more than about the HAs. And as AlleyCat asked how about telling us why you do this?
     
  2. Tetracyclone

    Tetracyclone Active Member

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    She already did so very clearly. Try reading the whole thread.
     
  3. Evie Yancey

    Evie Yancey New Member

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    The problem is that I don't have an autoimmune disease, I have an auto-inflammatory immune disease, which is much rarer, and harder to treat. Symptoms are usually more intense and side effects tend to be more threatening when it comes to children in changing environments. As for school, I live in a very close-minded area, where it took years to even allow the ASL classes, which I think is stupid, but I can't change that. The most that I can do about my studies in the technical advantages and disadvantages would be if I did on my own, which I have been for a while. Thank you so much for the link if you want to look further into the auto-inflammatory immune disease this is the link to the page that the alliance made. I'm friends with the woman who made the site, her son has the same thing as me, but he doesn't have hearing aids because he hasn't lost much hearing. But if you are interested in anything weird and rare in the medical world, this should be a fun read.
    http://autoinflammatory.org/nomid.php
    Again thank you for taking time to answer and help me out. I also found my hearing aid, so I'm no longer in trouble :)
     
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  4. AmputeeOT

    AmputeeOT Active Member

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    Yay! So happy you found your hearing aid!

    I will not fault you for secretly not wearing them - its your choice whether to wear them or not but definitely keep them in a safe place while they aren't in your ears ^.^
     
  5. Kathy Baker

    Kathy Baker New Member

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    I'm 64 and I can't stand them. I had my first one in my twenties which was OK because I could hear better at school. When those broke I didn't have a way to get anymore until I was in my 40's. I couldn't understand a thing with that set. I got more in my 60's and they drive me crazy because I can't separate out the sounds. I do have a hearing dog that alerts me to the sounds I can't hear and she is amazing. I also have a PocketTalker that I can use in small spaces. Once you figure out how you hear, you can explain it to everybody. I wish you the best, Kathy
     
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  6. KimS.

    KimS. New Member

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    Boy, can I relate to this thread! I've been trying to get along with hearing aids since the age of 16 ... and I have just turned 52. They are frustrating, delicate, and very expensive little beasties. And they physically hurt my ears, so I tend to wear them occasionally and sparingly.
    Yes, it takes a long time to explain to non-hearing-aid wearers that they are NOT as easy to fit and easy to wear as a pair of glasses. And my friends and family know that they CAN sometimes help when I wear them -- and that I sometimes do better withOUT them in. Depends on all kinds of circumstances.
    I'm a huge fan of assistive-listening devices such as the Loop in auditoriums, the PocketTalker mentioned above, CART live transcriptions ... and things such as CART and open captions benefit many people such as me, so it's easy to present an option such as that to people, to counterbalance the fact that I'm being a "bad girl" for not wearing those hearing aids!
    Also, since nobody else has pointed it out, NOT every person with hearing loss is a viable candidate for a cochlear implant. It would be massively inappropriate for me, for example, because although my hearing is minimal in some frequency ranges, I have a lot of almost-normal hearing in others.
    More power to you, Evie, and hang in there! Yes, do take care of those pricey machines which your parents ponied up for, but remember, that it's up to each Deafie (any disabled person as a matter of fact) to decide for themself which devices, tactics, etc are the most useful to them ... and which ones are not. And make friends with your audiologist, and try getting those machines adjusted from time to time. You never know when something might come down the pike that just might work better (if not perfect) than what you've got.
     
  7. Dundreary

    Dundreary Member

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    "Hearing A.I.D.S.?!?!? You sick jerks. I'm reporting this."

    That ought to work.
     
  8. Hear4Now

    Hear4Now New Member

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    So the OP thinks she's got a problem! Well let me tell you this young lady. Yes, I lose my hearing aids too and over the past 6 years, I have lost 2. BUT I HAVE ALSO THROWN ANOTHER THREE AWAY AND BEEN UNABLE TO RETRIEVE THEM! How stupid is that? Not so stupid as one might first think. On another thread, I have been discussing the fact that wearing my hearing aids causes me to retch violently and when I feel this retching coming on, my first thought is to get the the aids out and more times than not I just snatch them out and throw them away from me. And sometimes I throw them where retrieval is impossible e.g.into the river. Try as I might, I just cannot stop this throwing away reaction probably because I am aware that the imminent retching will be so violent. All that said, I am very lucky because here in the U.K., under our National Health Service, hearing aids are supplied and even replaced, F.O.C.
    Now regarding your own situation, while you have been given lots of good advice here on how to minimise the losing of your hearing aids, let me just remind you, that you, just like all the of the other contributors here, are human, and that humans like you and me and most other people, lose things. It's only human!
     

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