I have several friends over for my birthday (they are watching TV right now -- we're waiting for a pizza to be delivered) and one of them told me a little about this video. She said my CI center/hospital was pictured, but couldn't tell me any more than that since there was signing involved. Shel, would you mind briefly telling me what was said in the video? I'd appreciate it. Thanks!
Just basically said that this guy who has been suffering from headaches and balance problems from the internal parts is relieved to have it removed.
Also, said that after the surgery, he was finally able to get a full night of good sleep because he is not suffering from any tingling in his head.
Then he said for anyone who wants their internal part removed, they can contact the patient's doctor or that particular hospital.
Thanks, Shel. I hate to keep asking you and other ADers to describe videos and pictures for me, but I want you to know how much I appreciate it! Thanks again!
And by the way, I'm happy for this person. I have migraines myself, so I have some idea of the pain he was experiencing.
Lady,
Thanks so much for translating the video!
Lady,
Thanks so much for translating the video!
For some reason, the whole tone of the video seems anti-CI to me.
For example, why is Mat showing his scar? Nothing like trying to scare people into not having CI surgery.
Like you, I'm a bit offended that Mat signed the hospital name as backwards "Russia." (WTF? The correct hospital name is Froedert)
It also offends me that he would use an aggresive sign for CI. :roll:
Oh well. At least he's happy now.
Thankyou from me too as I also benifit from this transcripiton as I cannot see vidio's.
I like to keep an open mind on CI but I think it is very useful to see both sides of the CI debate. I am deaf. I have bad migranes. I find having bad migranes a good deal worse then being deaf, or blind for that matter. This is just my point of view.
So I have a lot of sympathy for anyone who have migranes.
Thankyou from me too as I also benifit from this transcripiton as I cannot see vidio's.
I like to keep an open mind on CI but I think it is very useful to see both sides of the CI debate. I am deaf. I have bad migranes. I find having bad migranes a good deal worse then being deaf, or blind for that matter. This is just my point of view.
So I have a lot of sympathy for anyone who have migranes.
Oh agreed!!! And I mean I think it's possible that in some people the internal parts of the CI could cause autoimmune reactions.but I think it is very useful to see both sides of the CI debate.
Yes - it is a bit of anti-CI. That's why I was just rolling my eyes when Mat signed "CI" in a harsh way. I cannot really explain it...it's really tactile type of sign, so it's hard to translate it that way.
Actually, I did not know the name of the hospital! It was just signed that way, so it's not insulting, I just did not know the sign of Froedert hospital (mat and Jack did not really use a lot of oral lip movements, so that was a little bit difficult, so I had no clue what the sign for the hosptial's name).
I agree that there will be some rare cases that it would be better to have the implant removed than to keep it. I just don't think CI should be 100% the blame for causing all of these issues. Mat was saying that the CI was giving him electrical simulations while he was sleeping and it was bothering him for a very long time, giving him sleepless nights. I highly suspect that it not the CI that's doing that...there's NO electrical simulation, moving parts, or anything whatsoever with the implant itself. So...
I don't know the whole story...all I can do is roll my eyes and happy he made the decision to have it removed. However, it should not be used as a scapegoat of why CI is bad. There is one more video that Jack's Eyes did that took CI issues way out of context.
There will always be people against CI's, and really nothing much we can do about it except to educate them that there are some things that are so false. In another video that Jack Eyes did, one guy said, "one girl had three CI removals. The first time it failed. Second time, battery was no good (WTF?! There's no battery in CI!), third time - she was suffering from too many headaches and migraines.
So, having said this, and being a migraine sufferer for many years...the CI actually helped reducing the migraines. I get severe migraines because of tinnitus, not because of CI. Since my tinnitus has gone down, my migraines has gone down. It's all relative.
For the people who gets headaches and migraines post-op - I wonder if they immediately blame the CI for that fact...everyone gets headaches once in a while. Migraines are caused by some brain stem issues...read it up on Wikipedia.
All CI does is the arrays are placed into the cochlea, your skull is shaved down a little bit to make little pocket for the CI to be placed in. That's all there is to it. There's nothing that I feel that CI can cause migraines or headaches.
I am just ranting because I hate it when people immediately blame CI for their migraine and headaches. It's a body function/hormonal issues (hence why it affect women more than men), it has nothing to do with having a device in your head.
Sorry if I sound like I'm not making sense...I have a headache now.
Oh agreed!!! And I mean I think it's possible that in some people the internal parts of the CI could cause autoimmune reactions.
I just don't think CI should be 100% the blame for causing all of these issues. Mat was saying that the CI was giving him electrical simulations while he was sleeping and it was bothering him for a very long time, giving him sleepless nights. I highly suspect that it not the CI that's doing that...there's NO electrical simulation, moving parts, or anything whatsoever with the implant itself.
Lady,
I don't know why Mat didn't fingerspell the name of the hospital instead of using the backwards sign for "Russia." To me, that was entirely uneccessary.
That happens to be my CI center and I've never had someone sign the name of the hospital in that manner.
I agree with you wholeheartedly about CIs and migraines. I'm also a migraine sufferer and if anything, my migraines have lessened ever since getting my implants. I can't explain why, but that's what happened.
I also don't understand how Mat could have experienced electrical stimulations. I wonder if what he really meant was auditory hallucinations or tinnitus. After both of my surgeries, I experienced tinnitus and auditory hallucinations. At times, my auditory hallucinations sounded like an electrical current running through my head.
I'll be interested in Mat's update in a month. Hopefully he will continue to enjoy being headache-free. As a migraine sufferer, I really feel for him and am glad he finally had his implant removed in order to get some relief.
Here's a thought, too... Could overstimulation of a nerve cause some of that? I know that with some CI users, they have nerve issues that necessitate the need for a new map. In that case, I would think that shutting down a couple of the electrodes would eliminate that feeling, no?