Family wants to keep life support for girl brain dead after tonsil surgery

I can't imagine eating any kind of meat after a tonsillectomy. When I had my tonsils removed (age 12 years) I was limited to Jello, pudding, milkshakes, etc. The foods had to be soft, not spicy, and not too hot or cold.

This is today's recommendations for aftercare and eating:

Childrens tonsillectomy manual

Refer to manual that you posted - hamburger is fine and part of soft food.
 
Refer to manual that you posted - hamburger is fine and part of soft food.
It may be fine as 'soft food' but not immediately after surgery!

Interesting that it's considered soft food- never thought that hamburger fell into that category.

Tonsil surgery isn't really recommended anymore unless it interferes severely with health. My nephew had to have his out because he kept getting strep throat all the time. Hardly any now. With Jahi- she ALSO had her adenoids removed because of sleep apnea.
 
Refer to manual that you posted - hamburger is fine and part of soft food.

Do you know how many muscles used to open your mouth in order to eat hamburger? Painful after having tonsils surgery.
 
Refer to manual that you posted - hamburger is fine and part of soft food.
Interesting. I wouldn't classify hamburger meat as a soft food. The only times it's soft is when it's raw or been put thru a food processor.
 
Do you know how many muscles used to open your mouth in order to eat hamburger? Painful after having tonsils surgery.

It wasn't painful for me and I was given a great painkiller medicine to get rid of pain, also it isn't painful for toddlers and small children - before 5 years old.
 
It may be fine as 'soft food' but not immediately after surgery!

Interesting that it's considered soft food- never thought that hamburger fell into that category.
Same here.

Tonsil surgery isn't really recommended anymore unless it interferes severely with health. My nephew had to have his out because he kept getting strep throat all the time. Hardly any now. With Jahi- she ALSO had her adenoids removed because of sleep apnea.
I thought that was a little odd about surgery being because of sleep apnea. TCS had the surgery and he still snores and is supposed to use a CPAP machine for his sleep apnea. I thought sleep apnea/snoring resulted more from being overweight. I suppose swollen tonsils or adenoids could cause problems though. :dunno:
 
I wouldn't classify hamburger as a soft food like jello, but on the other hand, it's not like trying to chew through a tough steak, carrots, celery, etc. Whoever classified as hamburger as soft food may not have been that far off the mark, IMO.
 
Same here.


I thought that was a little odd about surgery being because of sleep apnea. TCS had the surgery and he still snores and is supposed to use a CPAP machine for his sleep apnea. I thought sleep apnea/snoring resulted more from being overweight. I suppose swollen tonsils or adenoids could cause problems though. :dunno:
You have a point there. What also felt odd to me was her having surgery for sleep apnea at such a young age (12?). The swollen tonsils/adenoids make more sense to me.
 
You have a point there. What also felt odd to me was her having surgery for sleep apnea at such a young age (12?). The swollen tonsils/adenoids make more sense to me.

Yeah but adenoid issues CAN cause sleep apena......that's why they have sleep studies for kids with ADD.... Very often removal of adnoids resolves the apena.
 
The mother of an Oakland teen who doctors declared brain-dead more than two years ago is still insisting that her daughter is alive and well, according to the Root.

Mother of #JahiMcMath, teen declared brain dead 2 years ago, gives update on her condition: https://t.co/7Pl7viVXJmpic.twitter.com/9QfOGe5FdI

— The Root (@TheRoot) March 18, 2016
Nailah Winkfield updated a Facebook group with a photo over the weekend of herself looking into the closed eyes of 15-year-old Jahi McMath.

"Jahi as healthy and beautiful as ever, proving the naysayers wrong. A fighter, A warrior, A blessed child, Gods got your back little girl, keep fighting. Your testimony will be a great one," Winkfield wrote.


She added: "Prayers going up from many, all the prayers, good wishes combined with your mothers love for you which is pure and soothing will definitely keep you going. Stay blessed everyone and thank you for your prayers and love."

The Facebook post in the "Keep Jahi McMath on Life Support" group has since been removed, but many media outlets such as the Root picked up the story before it was removed.

The family updated the page Sunday night with a new post asking people to refrain from leaving criticism.

"This page was created to support this lovely child, Jahi McMath and her family, if you are here to spew your negative thoughts please kindly delete your comments and remove yourself because each and every comment will be read, and if deemed necessary, both you and your comments will be removed and you may be permanently banned," the latest post reads.

Doctors declared Jahi legally dead in December 2013 after she went into cardiac arrest following a routine surgery to treat sleep apnea at UCSF Benioff Children's Hospital. The Alameda County coroner issued a death certificate for the 13-year-old.

But Jahi's heart continued to beat, and her family protested the removal of a ventilator in court and continued to fight legal battles to keep her on life support.

In the end, the family won an injunction to prevent doctors from removing Jahi from life support, and she was released to her parents. She was moved to an undisclosed facility in New Jersey where medical staff performed a tracheostomy and inserted a feeding tube.

Some media reports indicate Jahi, still connected to a ventilator, is now being cared for in a New Jersey apartment.

http://www.sfgate.com/bayarea/artic...brain-dead-Facebook-6925986.php#photo-5623762
 
Well, it's been 3 years... (just photo in link... no recent video made public)

Three years after being declared brain dead following an ill-fated throat surgery at Children’s Hospital in Oakland and subsequently kept on life support, Jahi McMath continues to occupy a central role in the legal and philosophical debate over when a family should remove a loved one from life support.

In the latest twist to the drama, a well-known neurologist has reviewed videos of McMath and says they prove she’s still alive after all, even if her brain is not functioning as it should. McMath’s family quietly moved her from the Oakland hospital in 2014, insisting that the diagnosis of being brain dead did not necessarily mean the girl was actually deceased, and she’s remained connected to a ventilator in an undisclosed location in New Jersey ever since.

As the girl’s family continues its legal battle to have her declaration of death overturned as they proceed with a lawsuit, the new finding by Dr. Alan Shewmon, a professor emeritus of pediatrics and neurology at UCLA, could help bolster the McMath family’s case. Shewmon, who is a longtime critic of the standards used to determine when someone is brain dead, reached his decision after studying 49 videos of the girl recorded by her relatives from March 2014 to April 2016. In a court document filed June 29 in Alameda County Superior Court, Shewmon declares that the videos show McMath is actually alive and that her condition is even improving with time.

“The video recordings, as crude and unsystematic as they are,” he wrote, “represent the only way at present to decide whether Jahi is permanently comatose or in a minimally conscious state with intermittent responsiveness.”

The documents say that McMath seems to move her extremities when nudged by simple commands. And while the girl remains irrevocably and severely neurologically disabled after the surgery, Shewmon says she is not brain dead.

“Jahi’s subsequent course defied all predictions of what must happen to dead bodies maintained indefinitely on ventilators,” Shewmon said in his reported filed in the court case. “Jahi McMath is a living, severely disabled young lady, who currently fulfills neither the standard diagnostic guidelines for brain death nor California’s statutory definition of death.”

Shewmon says that the videos were reviewed by forensic experts who found no evidence of post-recording alternations. Some of the girl’s movements in response to commands lasted as long as 10 seconds, he wrote, especially when her heartbeat was above 80. He notes that in some of the videos the girl responds accordingly when the mother asks her to move, say, her right arm and the “move it harder.” At one point, the mom asks her which is the ”bad finger,” or the ”f-you finger,” and the girl raises her middle finger.

“There is a very strong correspondence between between the body part requested,” he wrote, “and the next body part that moves. This cannot reasonably be explained by chance.”

McMath’s tragedy has become another in a series of dramatic and controversial cases here and abroad that illustrate the fierce bioethical debate raging around the very definition of death by the medical community and how family members choose to deal with such a finding. In McMath’s case, her parents considered the ventilator as life support, while her doctors viewed the measure to be a futile treatment of a deceased person.

http://www.eastbaytimes.com/2017/07/24/expert-videos-show-jahi-mcmath-is-alive-getting-better/
 
Well, it's been 3 years... (just photo in link... no recent video made public)

Three years after being declared brain dead following an ill-fated throat surgery at Children’s Hospital in Oakland and subsequently kept on life support, Jahi McMath continues to occupy a central role in the legal and philosophical debate over when a family should remove a loved one from life support.

In the latest twist to the drama, a well-known neurologist has reviewed videos of McMath and says they prove she’s still alive after all, even if her brain is not functioning as it should. McMath’s family quietly moved her from the Oakland hospital in 2014, insisting that the diagnosis of being brain dead did not necessarily mean the girl was actually deceased, and she’s remained connected to a ventilator in an undisclosed location in New Jersey ever since.

As the girl’s family continues its legal battle to have her declaration of death overturned as they proceed with a lawsuit, the new finding by Dr. Alan Shewmon, a professor emeritus of pediatrics and neurology at UCLA, could help bolster the McMath family’s case. Shewmon, who is a longtime critic of the standards used to determine when someone is brain dead, reached his decision after studying 49 videos of the girl recorded by her relatives from March 2014 to April 2016. In a court document filed June 29 in Alameda County Superior Court, Shewmon declares that the videos show McMath is actually alive and that her condition is even improving with time.

“The video recordings, as crude and unsystematic as they are,” he wrote, “represent the only way at present to decide whether Jahi is permanently comatose or in a minimally conscious state with intermittent responsiveness.”

The documents say that McMath seems to move her extremities when nudged by simple commands. And while the girl remains irrevocably and severely neurologically disabled after the surgery, Shewmon says she is not brain dead.

“Jahi’s subsequent course defied all predictions of what must happen to dead bodies maintained indefinitely on ventilators,” Shewmon said in his reported filed in the court case. “Jahi McMath is a living, severely disabled young lady, who currently fulfills neither the standard diagnostic guidelines for brain death nor California’s statutory definition of death.”

Shewmon says that the videos were reviewed by forensic experts who found no evidence of post-recording alternations. Some of the girl’s movements in response to commands lasted as long as 10 seconds, he wrote, especially when her heartbeat was above 80. He notes that in some of the videos the girl responds accordingly when the mother asks her to move, say, her right arm and the “move it harder.” At one point, the mom asks her which is the ”bad finger,” or the ”f-you finger,” and the girl raises her middle finger.

“There is a very strong correspondence between between the body part requested,” he wrote, “and the next body part that moves. This cannot reasonably be explained by chance.”

McMath’s tragedy has become another in a series of dramatic and controversial cases here and abroad that illustrate the fierce bioethical debate raging around the very definition of death by the medical community and how family members choose to deal with such a finding. In McMath’s case, her parents considered the ventilator as life support, while her doctors viewed the measure to be a futile treatment of a deceased person.

http://www.eastbaytimes.com/2017/07/24/expert-videos-show-jahi-mcmath-is-alive-getting-better/

I'm interested to hear a neurologist's side from hospital in Oakland, also MRI or CT have to say about brain activity.

I hopefully my tax money and insurance premium doesn't go to her, so I feel bad for girl, but not girl's parents.
 
Very sad. If I am in long term coma, I would be very much upset. That's one of the reasons I wrote it down in my will. I've personally seen plenty of relatives and friends in coma in ICU. They all have to deal with side effects after coma. Blindness, short term memory, a lack of motor skills, brittle bones, no more driving, etc. My cousin is a psychologist and works with family members of a brain damaged patient cope with the changes. They have to learn to accept the patient is different. It can put stress and depression on the family. It can lead to the divorce. Horrible.
 
CHO's statement after the article posted in #312:

After a UCLA neurologist determined that Jahi McMath was alive and actually getting better, based on videos of the teenage girl left brain dead after a failed surgery at Children’s Hospital in Oakland, the facility’s administrators released a statement late Monday disputing the doctor’s findings.

The saga of Jahi, who’s at the center of a worldwide debate over end-of-life procedures, was back in the news this week after Dr. Alan Shewmon, a professor emeritus of pediatrics and neurology at UCLA, said he studied the videos and found the girl to be alive and responding to simple commands. His findings were part of a court document in the McMath family’s legal struggle to keep Jahi from being taken off of life support.

Melinda Krigel, spokeswoman for the UCSF Benioff Children’s Hospital, said that their doctors’ initial assessment that Jahi was brain dead has not changed, no matter what Shewmon says.

“CSF Benioff Children’s Hospital Oakland deeply empathizes with the family of Jahi McMath,” the hospital said in a statement. ” It stands by its position that Jahi McMath fulfills the legal diagnostic criteria for brain death as established by the Guidelines for the Determination of Brain Death in Infants and Children.”

It said that the brain death evaluations made by three doctors and ratified by a judge in 2013 were accurate and final.

“The plaintiffs’ counsel has agreed that Jahi McMath fulfilled the neurologic criteria for brain death when she was declared brain dead and deceased in December 2013,” said the statement. “Jahi McMath has not undergone a brain death evaluation pursuant to accepted neurologic criteria as set forth in the Guidelines since she was legally declared deceased in December 2013. The videotapes do not meet the criteria set forth in the Guidelines.”

In an attached court filing responding to Shewmon’s findings, the hospital says the doctor’s claim is wrong.

“The plaintiffs believe that sometime in the spring of 2014 J. McMath managed to “reverse” her death,” said the filing. “They believe that J. McMath no longer fulfills the criteria for brain death. Yet plaintiffs failed to provide any reliable and competent medical evidence that supports their belief that she is not dead. Nothing has changed since J. McMath’s body was discharged to her mother’s custody in early January 2014.”

http://www.eastbaytimes.com/2017/07/25/hospital-jahi-mcmaths-brain-death-is-indisputable/
 
CHO's statement after the article posted in #312:

After a UCLA neurologist determined that Jahi McMath was alive and actually getting better, based on videos of the teenage girl left brain dead after a failed surgery at Children’s Hospital in Oakland, the facility’s administrators released a statement late Monday disputing the doctor’s findings.

The saga of Jahi, who’s at the center of a worldwide debate over end-of-life procedures, was back in the news this week after Dr. Alan Shewmon, a professor emeritus of pediatrics and neurology at UCLA, said he studied the videos and found the girl to be alive and responding to simple commands. His findings were part of a court document in the McMath family’s legal struggle to keep Jahi from being taken off of life support.

Melinda Krigel, spokeswoman for the UCSF Benioff Children’s Hospital, said that their doctors’ initial assessment that Jahi was brain dead has not changed, no matter what Shewmon says.

“CSF Benioff Children’s Hospital Oakland deeply empathizes with the family of Jahi McMath,” the hospital said in a statement. ” It stands by its position that Jahi McMath fulfills the legal diagnostic criteria for brain death as established by the Guidelines for the Determination of Brain Death in Infants and Children.”

It said that the brain death evaluations made by three doctors and ratified by a judge in 2013 were accurate and final.

“The plaintiffs’ counsel has agreed that Jahi McMath fulfilled the neurologic criteria for brain death when she was declared brain dead and deceased in December 2013,” said the statement. “Jahi McMath has not undergone a brain death evaluation pursuant to accepted neurologic criteria as set forth in the Guidelines since she was legally declared deceased in December 2013. The videotapes do not meet the criteria set forth in the Guidelines.”

In an attached court filing responding to Shewmon’s findings, the hospital says the doctor’s claim is wrong.

“The plaintiffs believe that sometime in the spring of 2014 J. McMath managed to “reverse” her death,” said the filing. “They believe that J. McMath no longer fulfills the criteria for brain death. Yet plaintiffs failed to provide any reliable and competent medical evidence that supports their belief that she is not dead. Nothing has changed since J. McMath’s body was discharged to her mother’s custody in early January 2014.”

http://www.eastbaytimes.com/2017/07/25/hospital-jahi-mcmaths-brain-death-is-indisputable/

So, Dr. Alan Shewmon studied the videos of her and made an opinion? What about a full neurological exam? EEG test? I don't understand why Dr. Shewmon didn't perform a full neurological exam on her.
 
So, Dr. Alan Shewmon studied the videos of her and made an opinion? What about a full neurological exam? EEG test? I don't understand why Dr. Shewmon didn't perform a full neurological exam on her.

Yes, there is a lot of things public does not know the whole story. More people are wondering who is paying the costs of Jahl's care to this day.
 
Yes, there is a lot of things public does not know the whole story. More people are wondering who is paying the costs of Jahl's care to this day.

You may be right. There is not the whole story to it. I don't follow it lately. I read somewhere else NJ Medicaid has covered some of costs for Jahi's care. Caring for Jahi is astronomical. Thinks parents has already filed for bankruptcy to cover medical bills.
 
You may be right. There is not the whole story to it. I don't follow it lately. I read somewhere else NJ Medicaid has covered some of costs for Jahi's care. Caring for Jahi is astronomical. Thinks parents has already filed for bankruptcy to cover medical bills.

Oh wow, I'm wonder about NJ taxpayers like Jiro and Oddball to say about that.
 
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