Avery's ENT update

Greif86 · 04-27-2008, 01:08 AM

following routine (they don't like to officially diagnose infants deaf until EVERY leaf has been turned over, regardless of family history) Avery saw the piediatric ENT doctor this past Friday. As we were already told by the Audi, her ears are clear. The ENT said that from her results so far, plus the fact that she does not respond to sound/voice/noise, hers looks to be profound loss. She has her ABR scheduled for 5/9, and after that we will be going to Charleston to speak with the specialist there. The ENT said there are "many new advances/options available". I didn't quite understand that..does he mean CI, ect? We have no interest in pursuing CI if she is even a canidate. I feel as though she was born deaf, so she is not "missing" anything, and it is not my place to make such a MAJOR descison for her. When she is 18+ if she wants CI that is her descison. Anyways, just thought I'd update. I'll let ya'll know what her ABR results are.

jillio · 04-30-2008, 10:07 PM

Quote:

Originally Posted by Greif86

following routine (they don't like to officially diagnose infants deaf until EVERY leaf has been turned over, regardless of family history) Avery saw the piediatric ENT doctor this past Friday. As we were already told by the Audi, her ears are clear. The ENT said that from her results so far, plus the fact that she does not respond to sound/voice/noise, hers looks to be profound loss. She has her ABR scheduled for 5/9, and after that we will be going to Charleston to speak with the specialist there. The ENT said there are "many new advances/options available". I didn't quite understand that..does he mean CI, ect? We have no interest in pursuing CI if she is even a canidate. I feel as though she was born deaf, so she is not "missing" anything, and it is not my place to make such a MAJOR descison for her. When she is 18+ if she wants CI that is her descison. Anyways, just thought I'd update. I'll let ya'll know what her ABR results are.

Yep, I'm sure he meant CI when he spoke of advances and options.

Please do keep us posted. She is such a cutie!

shel90 · 04-30-2008, 10:08 PM

Your daughter is so cute!!!

I am sure the options include CI surgery in addition to HAs.

Miss-Delectable · 05-02-2008, 03:03 AM

Agreed with jillio and shel on both points.

Keep us posted.

deafdyke · 05-02-2008, 04:21 AM

It is not the ENT's place to say whether or not has will help or not. It really is hard (if not downright impossible) to tell how aids will help a particular loss.
Are you near a good Deaf School?

jillio · 05-03-2008, 04:50 PM

Quote:

Originally Posted by deafdyke

It is not the ENT's place to say whether or not has will help or not. It really is hard (if not downright impossible) to tell how aids will help a particular loss.
Are you near a good Deaf School?

Agreed. There are too many variables involved as to whether an individual receives good benefit.

Greif86 · 05-26-2008, 12:19 AM

Thank you for all of your responses

I just posted her latest update.

Hugs,
Robyn.

04-27-2008, 01:08 AM	#1 (permalink)
Greif86 Mom2BeautifulDeafGirl Join Date: Apr 2008 Location: South Carolina Posts: 35 Blog Entries: 1	Avery's ENT update following routine (they don't like to officially diagnose infants deaf until EVERY leaf has been turned over, regardless of family history) Avery saw the piediatric ENT doctor this past Friday. As we were already told by the Audi, her ears are clear. The ENT said that from her results so far, plus the fact that she does not respond to sound/voice/noise, hers looks to be profound loss. She has her ABR scheduled for 5/9, and after that we will be going to Charleston to speak with the specialist there. The ENT said there are "many new advances/options available". I didn't quite understand that..does he mean CI, ect? We have no interest in pursuing CI if she is even a canidate. I feel as though she was born deaf, so she is not "missing" anything, and it is not my place to make such a MAJOR descison for her. When she is 18+ if she wants CI that is her descison. Anyways, just thought I'd update. I'll let ya'll know what her ABR results are. __________________ HOH mom to a beautiful deaf girl

04-30-2008, 10:08 PM	#3 (permalink)
shel90 Sun Whorshipper Join Date: Sep 2006 Location: A Desert Rat that has found herself in Maryland Posts: 16,153 Blog Entries: 1	Your daughter is so cute!!! I am sure the options include CI surgery in addition to HAs. __________________ ~Shel~ "A child educated only at school is an uneducated child." -George Santayana

05-02-2008, 03:03 AM	#4 (permalink)
Miss-Delectable Capt Tony Nelson, Jeannie Join Date: Apr 2004 Location: No.1 Shopping Capital in Australia Posts: 8,855 Blog Entries: 3	Agreed with jillio and shel on both points. Keep us posted. __________________

05-26-2008, 12:19 AM	#7 (permalink)
Greif86 Mom2BeautifulDeafGirl Join Date: Apr 2008 Location: South Carolina Posts: 35 Blog Entries: 1	Thank you for all of your responses I just posted her latest update. Hugs, Robyn. __________________ HOH mom to a beautiful deaf girl

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05-02-2008, 04:21 AM	#5 (permalink)
deafdyke So NOT a Princess! Join Date: Mar 2003 Location: Trebekistan Posts: 6,685	It is not the ENT's place to say whether or not has will help or not. It really is hard (if not downright impossible) to tell how aids will help a particular loss. Are you near a good Deaf School?