Pray for my son - Page 2

Liebling:-))) · 12-06-2007, 07:30 AM

I did not see this thread until today.

Oh dear, you and your baby are continue in my heart and thought and hope for your son's recovery .

IslandGal · 12-06-2007, 09:27 AM

traciedowell, I do know exactly what you are going through because I also had a premature baby. I know that it is a very overwhelming experience for you and your family. I will pray for your son to become well and to go home with you soon. My baby is now 8 years old.

If you need someone to talk to, give me a PM. Hugs

Lil_country_gal · 12-06-2007, 08:23 PM

I pray for your baby luke i hope they can diagnois him quickly and get him home for christmas hang in there we are all routing for you and luke

I'm really sorry about the hospital security that is really horrible hopefully your warning will stick!

dreamyGerm · 12-06-2007, 09:17 PM

Well, i'm no parent, but my little sis was born premature, so i have an idea of how it is.I hope everything gets better for your baby.

traciedowell · 12-07-2007, 12:00 AM

You all have been so warm and supportive. There is still no diagnosis for my son. They have been putting him through so many tests to try and figure out what is going on with him. It's so heartbreaking to see him this way. They have taken so much blood from him that he needed a transfusion the other day. The doctor called me at 4 in the morning asking for consent to do the transfusion. It scared me to get the phone call because it's not normal for them to call in the middle of the night.

I visited him today and he did not look good to me. His skin color was very pale and he looked swollen. The doctor told me he probably is pale because they took so much blood from him. It broke my heart. He has been through so much. He has been on the ventilator now for 5 weeks. The doctor told me she examined his throat yesterday and it was VERY swollen. I asked her if he is in pain but she said she didn't think so. How can his throat not be in pain if it is that swollen? I don't agree with her. I think they should give my baby some medicine for pain. She said he would cry if he was in pain but he can't cry because of the tube in his throat. Plus why would he cry if his throat hurt? Wouldn't that make it hurt more?

Sigh....

I have to just keep in mind that he won't be in the hospital forever. It just feels like forever right now because I want him with me so bad. Every time I see him I just want to squeeze him and kiss him and tell him it's alright. I am on Zoloft medicine to control depression. Doctor said it's normal for me to be depressed now because of the situation. I think I'm handling it pretty well but I have my moments. It's hard not knowing what's wrong with my son. I just want answers so I know what we're dealing with and if it's going to be a lifelong problem for him.

I will continue to keep you all updated on him and will post more pictures soon. He hasn't looked good this week so I haven't taken any pictures of him since he was transferred to Hopkins but I will do it soon.

Roadrunner · 12-07-2007, 12:20 AM

I can somewhat understand and sense all that you, your family is going through as well as for your precious little baby boy also. Times of frustrations, despair, uncertainty, etc., may be evading your own inner thoughts...however, please do hang in there and really hold fast to hope, the belief that he is under the loving care of the One above...I believe very soon, it will be revealed to what he is struggling against and made well, be healed...so the greatest gift your family can have this Christmas will be one where the 'joy' of being able to bring him home within the comfort of your arms. Believe.

In the meantime...thoughts and prayers continues for you, family, doctors...and especially for your precious dear baby boy.

~RR

Angel · 12-07-2007, 08:42 AM

Aww

I will continue praying for him, and like RR said your son is under the loving care of the One above ^ , and I do feel for you and your family and how hard it must be watching your little angel trying to fight by holding on but I have to believe that he will make it through this.

keep praying, and I'll do the same likewise.

Liebling:-))) · 12-07-2007, 08:48 AM

It's very sad to read your updated post.

It touch my feeling and heart... I as mother can image how you feel... I feel for you and continue in my mind and heart to make your son health and successful before Xmas.

Eve · 12-07-2007, 08:51 AM

Stay strong, Tracie. You have lots of support here. My prayers go out for your small son.

Schermy · 12-07-2007, 09:09 AM

Tracie:
As a mother I can tell you there is nothing in the wold as painful as seeing your child sick and not being able to do a thing about it. All I can say is be strong for Luke (I know it sounds easy to say to someone but it's true) and just believe in the BIG GUY up there. Lean on your husband when you need to and talk talk talk to others as much as you need to help get through this. Keeping friends and family close and talking is a HUGE help. Just let Luke know that you are there and love him. He will be home soon and grow up to be a strong healthy boy. You are in all of our thoughts and prayers.

IslandGal · 12-07-2007, 09:20 AM

I got teary when I read your update. I know it is so hard on you. I also had a depression when my preemie was in the NCIU. I wish I was there to give you a comforting hug. You and your son are still in my thoughts and prayers

ashleysmommy · 12-07-2007, 01:36 PM

I am just now seeing your post. I am a mom to a 25 week preemie. She was only 15 ounces. She was on the vent for 2 and 1/2 months. The hardest thing a parent has to go through is to watch your child go through so much. You have to trust in God and have faith in the doctors and nurses that care for your little angel. I went through 4 1/2 months of my little girl in the NICU. She is now 2 and doing very well. I know exactly how you feel. One day my daughter was doing better and an hour later I was getting a call that she had a set back. It can be the scariest and most frustrating roller coaster ride of your life. I will keep your son in my prayers. It works. My daughter is living proof. She was not supposed to make it past 48 hours. Babies are tough. If you ever need to talk feel free to message me.

traciedowell · 12-15-2007, 08:39 PM

***Update***

Well, Luke has been at Hopkins for 2 weeks now. They have completed their tests and him and guess what, no diagnosis. Unbelievable. He pulled his vent tube out last night and they were going to leave it out to see what would happen but he didn't do well so they put it back in. Ugghhh!!!

We just have to keep waiting to see how it goes. Hopefully, he'll improve and we can move on. No baby for Christmas though.

On the bright side my business is picking up so we are looking better financially, thank GOD! It's been rough with money lately so it's nice to have something working out for a change.

I will continue to keep you all updated on my little guy. Happy Holidays.

Reba · 12-15-2007, 08:54 PM

Thanks for the update.

We'll keep praying.

restless_heart · 12-15-2007, 09:22 PM

My prayers are out for you and your baby. Keep your Faith and stay strong...My daughter was a three pounds premee also and she didn't come home Thanksgiving, Christmas and the New Year. I know how that feels, I never stop seeing her everyday, I pray and kept my Faith and kept believin' my daughter will make it and be home. She lost weighed twice down to two pounds and near death, very scary...she was suposed to have an operation bec she had a hole in her intestine, but it was a miracle that it was heal itself and she doesn't need one. She gained weigh rapidly and ready be home in no time. KEEP PRAYING DON'T GIVE UP!!!!! Be there for your son no matter what, he needs to hear your voice and know you are there with him. God Bless you...

Miss-Delectable · 12-16-2007, 12:51 AM

Bummer! I was hoping they'd find something.
Maybe Luke's brain's making him think he needs the ventilator?

traciedowell · 12-31-2007, 10:36 PM

Well the doctors think he has hyperekplexia which is basically an exaggerated startle reflex that causes his muscles including his diaphram(sp?) to become stiff so he can't breathe properly. He has begun treatment for it so hopefully it will work. If it doesn't, they will perform a tracheotomy and put a stable airway in his throat. I hope that doesn't happen so let's keep our fingers crossed. He will be 9 weeks old on Wednesday. He is no longer a preemie as he is now 2 weeks past my due date.

Thanks for the prayers guys!

Lil_country_gal · 12-31-2007, 10:58 PM

I hope he does well with the treatments i pray everything goes well and works and he can be just a happy normal baby

Reba · 01-01-2008, 09:48 AM

Thanks for the update. I hope all goes well with his current treatment.

shel90 · 01-01-2008, 09:49 AM

I will keep my fingers crossed for you. Thanks for the update.

Miss-Delectable · 01-02-2008, 03:09 AM

Good to hear that the Doctors has finally put a name to his condition. Hopefully treatments will help cure this and then you can bring him home at last.

Hang in there..

2lilprincesses · 01-03-2008, 07:45 AM

You and your son are in my thoughts. I hope 2008 becomes your blessing and your gray clouds resume their silver linings!

Schermy · 01-03-2008, 07:48 AM

Thank you for the update. I will continue to keep in prayers. I hope the treatment is working!!!!!!

Kaitin · 01-03-2008, 11:04 AM

I hope he is better every day!

Defee · 01-07-2008, 04:06 PM

Oh my gosh! i didnt see this till now...im so sorry to hear
about your precious little baby!
So how is he doing so far? Please let us know how he is doing now.
I will pray for him!!
God bless him and your family!

SxyPorkie · 01-07-2008, 07:59 PM

yeah... i am waiting for updates about that baby...I hope he is alright...

GalaxyAngel · 01-07-2008, 10:43 PM

Oh my gosh, I'm truly sorry about your son's health condition. you're my prayer rest of each the days... To pull your son's health back normal.. real soon recovery..

Keep update w/us... Thanks for sharing your story about your son's condition.

jazzy · 04-06-2008, 12:27 PM

It is April now, I hope your baby is back home with you and doing great. Let us know how he is doing.

Sunshine1 · 04-06-2008, 12:38 PM

Saw her post at other thread as of this morning date and mentioned very little update of her son at the last paragraph...

To the other All-Deaf people who know me from before, my son is still in the hospital but doing better. He is 5 months old now. I have continued to teach ASL at a local school and grow my business. Thanks for your prayers. Every prayer helps.

Hopefully she will get back to this thread to give us more updates.

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Quote:

Originally Posted by jazzy

It is April now, I hope your baby is back home with you and doing great. Let us know how he is doing.

12-06-2007, 07:30 AM	#31 (permalink)
Liebling:-))) Hiiiiiii it's meeeeee Join Date: Jan 2004 Location: Germany Posts: 25,702	I did not see this thread until today. Oh dear, you and your baby are continue in my heart and thought and hope for your son's recovery . __________________ sniffing you

12-06-2007, 08:23 PM	#33 (permalink)
Lil_country_gal Cowgirl Join Date: Sep 2005 Location: Saint Joseph, MN Posts: 2,309	I pray for your baby luke i hope they can diagnois him quickly and get him home for christmas hang in there we are all routing for you and luke I'm really sorry about the hospital security that is really horrible hopefully your warning will stick! __________________ Put some excitement between your legs.... Ride a Horse Laicy Always and Forever

12-07-2007, 12:00 AM	#35 (permalink)
traciedowell Registered User Join Date: Nov 2007 Location: Maryland Posts: 121	You all have been so warm and supportive. There is still no diagnosis for my son. They have been putting him through so many tests to try and figure out what is going on with him. It's so heartbreaking to see him this way. They have taken so much blood from him that he needed a transfusion the other day. The doctor called me at 4 in the morning asking for consent to do the transfusion. It scared me to get the phone call because it's not normal for them to call in the middle of the night. I visited him today and he did not look good to me. His skin color was very pale and he looked swollen. The doctor told me he probably is pale because they took so much blood from him. It broke my heart. He has been through so much. He has been on the ventilator now for 5 weeks. The doctor told me she examined his throat yesterday and it was VERY swollen. I asked her if he is in pain but she said she didn't think so. How can his throat not be in pain if it is that swollen? I don't agree with her. I think they should give my baby some medicine for pain. She said he would cry if he was in pain but he can't cry because of the tube in his throat. Plus why would he cry if his throat hurt? Wouldn't that make it hurt more? Sigh.... I have to just keep in mind that he won't be in the hospital forever. It just feels like forever right now because I want him with me so bad. Every time I see him I just want to squeeze him and kiss him and tell him it's alright. I am on Zoloft medicine to control depression. Doctor said it's normal for me to be depressed now because of the situation. I think I'm handling it pretty well but I have my moments. It's hard not knowing what's wrong with my son. I just want answers so I know what we're dealing with and if it's going to be a lifelong problem for him. I will continue to keep you all updated on him and will post more pictures soon. He hasn't looked good this week so I haven't taken any pictures of him since he was transferred to Hopkins but I will do it soon. __________________ ~Tracie Dowell LifeMark Career Development http://www.deafcareer.com "For a few years I will set aside the time that most people won't so that I can live the rest of my life the way most people can't."

12-07-2007, 08:42 AM	#37 (permalink)
Angel ♥"Concrete Angel"♥ Join Date: Nov 2003 Posts: 18,909	Aww I will continue praying for him, and like RR said your son is under the loving care of the One above ^ , and I do feel for you and your family and how hard it must be watching your little angel trying to fight by holding on but I have to believe that he will make it through this. keep praying, and I'll do the same likewise. __________________ ♥Angel♥

12-07-2007, 08:48 AM	#38 (permalink)
Liebling:-))) Hiiiiiii it's meeeeee Join Date: Jan 2004 Location: Germany Posts: 25,702	It's very sad to read your updated post. It touch my feeling and heart... I as mother can image how you feel... I feel for you and continue in my mind and heart to make your son health and successful before Xmas. __________________ sniffing you

Today
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12-06-2007, 09:27 AM	#32 (permalink)
IslandGal Hi ya! Join Date: Oct 2005 Location: Sunshine State Posts: 4,293	traciedowell, I do know exactly what you are going through because I also had a premature baby. I know that it is a very overwhelming experience for you and your family. I will pray for your son to become well and to go home with you soon. My baby is now 8 years old. If you need someone to talk to, give me a PM. Hugs

12-06-2007, 09:17 PM	#34 (permalink)
dreamyGerm Registered User Join Date: Oct 2007 Posts: 21	Well, i'm no parent, but my little sis was born premature, so i have an idea of how it is.I hope everything gets better for your baby.

12-07-2007, 12:20 AM	#36 (permalink)
Roadrunner Registered User Join Date: Dec 2003 Location: Ohio Posts: 7,090	I can somewhat understand and sense all that you, your family is going through as well as for your precious little baby boy also. Times of frustrations, despair, uncertainty, etc., may be evading your own inner thoughts...however, please do hang in there and really hold fast to hope, the belief that he is under the loving care of the One above...I believe very soon, it will be revealed to what he is struggling against and made well, be healed...so the greatest gift your family can have this Christmas will be one where the 'joy' of being able to bring him home within the comfort of your arms. Believe. In the meantime...thoughts and prayers continues for you, family, doctors...and especially for your precious dear baby boy. ~RR

12-07-2007, 08:51 AM	#39 (permalink)
Eve Goddess Join Date: Oct 2003 Location: Paradise Posts: 1,125	Stay strong, Tracie. You have lots of support here. My prayers go out for your small son.

12-07-2007, 09:09 AM	#40 (permalink)
Schermy Dragon Lady Join Date: Jun 2007 Posts: 1,306	Tracie: As a mother I can tell you there is nothing in the wold as painful as seeing your child sick and not being able to do a thing about it. All I can say is be strong for Luke (I know it sounds easy to say to someone but it's true) and just believe in the BIG GUY up there. Lean on your husband when you need to and talk talk talk to others as much as you need to help get through this. Keeping friends and family close and talking is a HUGE help. Just let Luke know that you are there and love him. He will be home soon and grow up to be a strong healthy boy. You are in all of our thoughts and prayers. __________________ You can’t quit until you try You can’t live until you die You can’t learn to tell the truth Until you learn to lie

12-07-2007, 09:20 AM	#41 (permalink)
IslandGal Hi ya! Join Date: Oct 2005 Location: Sunshine State Posts: 4,293	I got teary when I read your update. I know it is so hard on you. I also had a depression when my preemie was in the NCIU. I wish I was there to give you a comforting hug. You and your son are still in my thoughts and prayers

12-07-2007, 01:36 PM	#42 (permalink)
ashleysmommy ashleysmommy Join Date: Jan 2007 Location: Hampton, VA Posts: 266	I am just now seeing your post. I am a mom to a 25 week preemie. She was only 15 ounces. She was on the vent for 2 and 1/2 months. The hardest thing a parent has to go through is to watch your child go through so much. You have to trust in God and have faith in the doctors and nurses that care for your little angel. I went through 4 1/2 months of my little girl in the NICU. She is now 2 and doing very well. I know exactly how you feel. One day my daughter was doing better and an hour later I was getting a call that she had a set back. It can be the scariest and most frustrating roller coaster ride of your life. I will keep your son in my prayers. It works. My daughter is living proof. She was not supposed to make it past 48 hours. Babies are tough. If you ever need to talk feel free to message me. __________________ Smile ! It adds to your face value Right Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1

12-15-2007, 08:39 PM	#43 (permalink)
traciedowell Registered User Join Date: Nov 2007 Location: Maryland Posts: 121	*Update* Well, Luke has been at Hopkins for 2 weeks now. They have completed their tests and him and guess what, no diagnosis. Unbelievable. He pulled his vent tube out last night and they were going to leave it out to see what would happen but he didn't do well so they put it back in. Ugghhh!!! We just have to keep waiting to see how it goes. Hopefully, he'll improve and we can move on. No baby for Christmas though. On the bright side my business is picking up so we are looking better financially, thank GOD! It's been rough with money lately so it's nice to have something working out for a change. I will continue to keep you all updated on my little guy. Happy Holidays. __________________ ~Tracie Dowell LifeMark Career Development http://www.deafcareer.com "For a few years I will set aside the time that most people won't so that I can live the rest of my life the way most people can't."

12-15-2007, 08:54 PM	#44 (permalink)
Reba Premium Member Join Date: Jun 2004 Posts: 16,426	Thanks for the update. We'll keep praying.

12-15-2007, 09:22 PM	#45 (permalink)
restless_heart ...Forever undefeated... Join Date: Jun 2007 Location: somewhere in the mountain, Pennsylvania Posts: 1,048	My prayers are out for you and your baby. Keep your Faith and stay strong...My daughter was a three pounds premee also and she didn't come home Thanksgiving, Christmas and the New Year. I know how that feels, I never stop seeing her everyday, I pray and kept my Faith and kept believin' my daughter will make it and be home. She lost weighed twice down to two pounds and near death, very scary...she was suposed to have an operation bec she had a hole in her intestine, but it was a miracle that it was heal itself and she doesn't need one. She gained weigh rapidly and ready be home in no time. KEEP PRAYING DON'T GIVE UP!!!!! Be there for your son no matter what, he needs to hear your voice and know you are there with him. God Bless you... __________________ Never Give Up: My Stroke, My Recovery & My return to NFL...by Tedy Bruschi

12-16-2007, 12:51 AM	#46 (permalink)
Miss-Delectable Capt Tony Nelson, Jeannie Join Date: Apr 2004 Location: No.1 Shopping Capital in Australia Posts: 8,693 Blog Entries: 3	Bummer! I was hoping they'd find something. Maybe Luke's brain's making him think he needs the ventilator? __________________

12-31-2007, 10:36 PM	#47 (permalink)
traciedowell Registered User Join Date: Nov 2007 Location: Maryland Posts: 121	Update Well the doctors think he has hyperekplexia which is basically an exaggerated startle reflex that causes his muscles including his diaphram(sp?) to become stiff so he can't breathe properly. He has begun treatment for it so hopefully it will work. If it doesn't, they will perform a tracheotomy and put a stable airway in his throat. I hope that doesn't happen so let's keep our fingers crossed. He will be 9 weeks old on Wednesday. He is no longer a preemie as he is now 2 weeks past my due date. Thanks for the prayers guys! __________________ ~Tracie Dowell LifeMark Career Development http://www.deafcareer.com "For a few years I will set aside the time that most people won't so that I can live the rest of my life the way most people can't."

12-31-2007, 10:58 PM	#48 (permalink)
Lil_country_gal Cowgirl Join Date: Sep 2005 Location: Saint Joseph, MN Posts: 2,309	I hope he does well with the treatments i pray everything goes well and works and he can be just a happy normal baby __________________ Put some excitement between your legs.... Ride a Horse Laicy Always and Forever

01-01-2008, 09:48 AM	#49 (permalink)
Reba Premium Member Join Date: Jun 2004 Posts: 16,426	Thanks for the update. I hope all goes well with his current treatment.

01-01-2008, 09:49 AM	#50 (permalink)
shel90 Sun Whorshipper Join Date: Sep 2006 Location: A Desert Rat that has found herself in Maryland Posts: 15,016 Blog Entries: 1	I will keep my fingers crossed for you. Thanks for the update. __________________ ~Shel~

01-02-2008, 03:09 AM	#51 (permalink)
Miss-Delectable Capt Tony Nelson, Jeannie Join Date: Apr 2004 Location: No.1 Shopping Capital in Australia Posts: 8,693 Blog Entries: 3	Good to hear that the Doctors has finally put a name to his condition. Hopefully treatments will help cure this and then you can bring him home at last. Hang in there.. __________________

01-03-2008, 07:45 AM	#52 (permalink)
2lilprincesses Registered User Join Date: Dec 2007 Location: Boothwyn, PA Posts: 32	You and your son are in my thoughts. I hope 2008 becomes your blessing and your gray clouds resume their silver linings!

01-03-2008, 07:48 AM	#53 (permalink)
Schermy Dragon Lady Join Date: Jun 2007 Posts: 1,306	Thank you for the update. I will continue to keep in prayers. I hope the treatment is working!!!!!! __________________ You can’t quit until you try You can’t live until you die You can’t learn to tell the truth Until you learn to lie

01-03-2008, 11:04 AM	#54 (permalink)
Kaitin Registered User Join Date: Oct 2007 Posts: 845 Blog Entries: 23	I hope he is better every day!

01-07-2008, 04:06 PM	#55 (permalink)
Defee Premium Member Join Date: Jan 2004 Posts: 3,410	Oh my gosh! i didnt see this till now...im so sorry to hear about your precious little baby! So how is he doing so far? Please let us know how he is doing now. I will pray for him!! God bless him and your family! __________________ Im not deaf, im just ignoring you!

01-07-2008, 07:59 PM	#56 (permalink)
SxyPorkie SxyPorkie Join Date: May 2006 Location: Southern California Posts: 3,095	yeah... i am waiting for updates about that baby...I hope he is alright... __________________ Life Goes On!!

01-07-2008, 10:43 PM	#57 (permalink)
GalaxyAngel That's me! Join Date: Sep 2003 Location: Ontario,Canada Posts: 13,515	Oh my gosh, I'm truly sorry about your son's health condition. you're my prayer rest of each the days... To pull your son's health back normal.. real soon recovery.. Keep update w/us... Thanks for sharing your story about your son's condition. __________________ Parent's proud our children.

04-06-2008, 12:27 PM	#58 (permalink)
jazzy Registered User Join Date: Jun 2004 Posts: 3,120	It is April now, I hope your baby is back home with you and doing great. Let us know how he is doing. __________________