shel90

He is delayed in ASL too. He is making nice progress though. Now at the 18 to 20 month range and he is 27 months old. Before, he was a year delayed in both signing and speech hence our concerns.

That's why we got a speech/language specialist working with him just in case he has some cognitive delays but it is looking like he doesnt have any issues with cognitive processing so far.

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~Shel~

Deafness

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shel90

Ashleysmommy...I am glad that things are going well!

Keep up the good work!

__________________
~Shel~

deafdyke

So is she basicly functionally low vision with her glasses?
My best friend is like that too. He's legally blind but can see with glasses.
Are you getting Ashely the whole spectrum of services with Blind ed too?
(eg cane travel etc etc etc)
Oh and Shel, language delays may indicate a learning disabilty. It's a very common early sign.

deafdyke

Oh and at least he's only seven months behind............that rocks! Wait a while, and he may have a big language leap.

ashleysmommy

The school sent an orientation mobility specialists to the house to evaluate Ashley on how well she gets around. This was to see if she needed any special training. With her glasses she sees about a foot or more depending on what she is looking at. Without it is about 6 to 8 inches. She does very well. I have not gotten the report yet to see what they suggest. I am open to all they offer.

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1

jillio

It is so great that Ashley is getting such comprehensive services at such a young age, and also that you are so open to what they have to offer. Keep us informed.

deafdyke

Oh that's good. And hopefully in the fall Ashley can start at the Deaf-Blind school, go there for a few years(gotta get that solid foundation of early intervention/early grades in) and then decide what to do from there. Do they have a specific Deaf-Blind program there? I do know that the school where you are, mainly serves multihandicapped kids. (like MR/autistic etc) The school in Staunton is way better for academic kids. However, the quality of early intervention at specialized schools, is such that even schools which mainly serve severely/multihandicapped kids, tend to have a lot of just blind just deaf kids in their early education programs.

deafdyke

Oh wow............I just found out that they are closing the Hampton campus, to consolidate it with the Staunton campus.
However, they ARE going to continue with a special day school program. Hopefully Ashley can take advantage of that.....and I'm not sure when precisely they are going to close the Hampton campus. Hopefully Ashely will get a year or two in before it closes. A school for the Deaf, is really a superb resource.

ashleysmommy

They have been talking about closing it for a while now. I am not sure of a date. The preschool program will continue from what I understand. We plan to look into all of that. Her CSB worker is looking into it for me.

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1

deafskeptic

*Sigh* They've been talking about closing the Hampton School for years (there are two VSDBs in VA - one in Staunton and one in Hampton. The deaf community just call the one in Staunton VSDB and the one in Hampton the Hampton school for the Deaf) but I do expect that it will happen one day due to dwindling popuations. The last time I went to VSDB, they had only 120 students left and we're talking about pre school to 12 grade. I must confess I'm not up to date though.

It's hoped VA won't close the Hampton School as you'd have to send Ashely like 300 miles away.

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Left ear implanted with Med-El on April 24 2007.
Activated on May 9th.

deafdyke

Oh that's awesome that they're gonna continue the preschool programming.
And preschool for special needs kids can run for about four years......

deafdyke

deafskeptic, I read that they're consoildating the schools, and that's why the center for the multihandicapped is closing.
Quite frankly I think that they should KEEP the multihandicapped program open. It could serve as a public pediatric nursing home and a "group home" sort of place for kids with MR (some of whom have rather severe issues and can't live at home) Also, I mean I think that seperating the MR multihandicapped kids would be good, b/c it does take a lot of energy to educate those types of kids.
Hopefully the school won't close for awhile..........Ashely really does need the advantage of the specialized early intervention. Just general EI generally doesn't cut it too well.

ashleysmommy

I am hearing the same. I hope to be able to take advantage of their program. Off of the feeding topic. Do any parents have sleep issues with their little ones? Ashley hates to sleep as much as she hates to eat. She is a tough cookie. Very Stubborn!!!

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1

jillio

My son was a sleep fighter. Keeping a strict bedtime routine seemed to help some. He refused to take naps after a year old though. He was a high energy kid that hated sleep. A lot of the time, it was just a matter of hanging on until he finally exhausted himself. It it helps, at all, once he hit those teenaged years, I couldn't get him to wake up!

ashleysmommy

I hope she grows out of it soon. The doctor gave her Valium to help and it does nothing!!! She still wakes up 2 or 3 times a night. She gets maybe 7 hours sleep. I get maybe 5 or 6. She will take a nap sometimes but not often. Oh well, all part of being a mommy. Thanks for giving me hope for the future. She is a busy girl. She even tosses and turns when she sleeps. They think this could be throwing her eating off too.

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1

jillio

I understand. My son was also a tosser and turner. And I had trouble getting him on an eating schedule because he never wanted to stop what he was doing to take time to sit and eat. I resolved that by givving him a lot of finger foods that he could eat on the go. I guess some kids just have too much to investigate!

deafbajagal

Valium - makes me stay WIDE AWAKE, for hours. It has the opposite effect on me. Caffeine makes me very sleepy. I wonder if she's the same way...

shel90

Wow! I dont have any advice to offer cuz both of my kids are great sleepers. I hope u will get tons of advice from other people with the same experiences that u are experiencing and solve this problem.

I struggle with isomnia myself. To this day after 35 years, I cant sleep thru the night. Oh well.

__________________
~Shel~

jillio

Good point. I react differently to some meds, as well. And, Benedryl noramlly makes a kid sleep for hours, and my son would bounce off the walls if he took it!

ashleysmommy

It seems to take the edge off but not enough to make her want to sleep. She seems to absorb meds so fast. She bounces off the walls no matter what she has. One of those terrible 2 things maybe.

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1

Jolie77

I have been having sleep issues with my oldest son for a long time now. Since he's autistic, he also has ADHD as well. He would not sleep through the night and only would wake up after having 3 or 4 hours of sleep at least and he'd go back to sleep for another 2 or 3 hours, so and on. It became a cycle. I was eventually exhausted by having these broken/short sleeps. So, Clondine was recommended and he's been on clodine for about 2 years now. Clondine helps so much and it's been helping him sleep regularly through the night. You might want to look into that - Just a suggestion. Some medication works, some don't. It varies.

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ashleysmommy

I will ask about that med with her doc. Thank you !! That sounds exactly like Ashley's sleep cycle too. She only sleeps for 4 to 5 hours at a time. I never get any rest or good rest any way. If you don't mind me asking how old is your son?

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1

Jolie77

No problem. He's 8 years old. I hope it'll be a helpful insight for you and Ashley. Do keep us updated.

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ashleysmommy

Cool. Thanks. She seems to sleep better if she naps early or at all. Things have not been so bad this week. She has been going to sleep with a full tummy too. I am sure that helps.

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Right Side MED-EL Pulsar March 05, 2007
Activated April 05, 2007 with Tempo +
Left Side MED-EL Sonata February 13, 2008
Activated March 12, 2008 with Opus 1