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Unread 06-19-2007, 05:28 PM   #31 (permalink)
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She has always had to do things in her own time. She does not like to be pushed at all. Who does I guess. I just worry that she is not getting all of the nutrients that she needs to develop. She is so small for her age. We go to the feeding clinic this Friday so maybe they can help too. Thanks again for all of the advice.

She sounds like a fiesty little thing..makes me want to hold her.
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Unread 06-19-2007, 06:30 PM   #32 (permalink)
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She sure has a Mind of her own... hehehe.. she's sound soo cute!!! she surely is a fighter and she'll be fine.. People say kids won't starve they just will eat when it's time... smile hang in there!!

I could remember my two healthy nephews when they were younger refuse to eat anything, so today they are healthy as a horse... soo sometimes it just a matter of time... I use to hate vegetables till maybe in my 20's lol.. shhhhhh
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Unread 06-19-2007, 10:21 PM   #33 (permalink)
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I was looking at your avatar icon, she's adorable.
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Unread 06-20-2007, 03:23 PM   #34 (permalink)
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Ouch. I remember myself refused to eat anything for long time after I became deaf. Only thing I wanted was ice cream. I remembered I went to my godmother's house while my parents work. She made me a lunch and I refused to eat any of them so she made me sit in that chair everyday till I realized it I do not want to sit on the chair all day everyday. I finally started to eat slowly. Now I wish I was stay skinny forever. If I was you, I would not worry about her not eat enough. She was just being a stubborn as I was.
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Unread 06-20-2007, 11:37 PM   #35 (permalink)
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She does have sensory issues.. We ( all of her therapists and I) are trying to help with those. Bless her heart she has had to overcome so much. She in my eyes is doing great for a little girl with so may hurdles. She is a very determined little girl so I know she will be fine I just need to be patient. I just worry sometimes because I don't want her docs to suggest a feeding tube if we can't get her to gain a little here and there. I know sometimes she must feel bombarded.
I have a friend who's boy has sensory issues. He is older than mine by a year, but still weighs less, but is thriving well. She just fed in bits and pieces. She also found a therapist to work with him on the sensory issues. She was also fortunate to find a preschool who understood his needs. If you need someone to talk to about sensory, I can connect you with her via email. She is also a sign language interpreter.... Not sure where you are.

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Unread 06-29-2007, 10:46 AM   #36 (permalink)
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Thank you. That would be great. We went to the feeding clinic. Wow!!! They had some good points but they didn't have a program geared toward children with any hearing or vision impairments. Their program was reward based. That is great if the child is hearing and has good vision. Ashley could care less about that right now. They also wanted to put elbow restraints on her so she could not bring her hands to her face. That was a BIG HELL NO for me. Sorry for the language. Part of learning to eat is exploring and playing with food and being able to put her hands in her mouth to taste the food. That program is not for us. We have decided to up her OT to 2 times a week and work on this from home. In about a month I have her opening her mouth for the spoon more. In one week with calorie boosters she has gained almost a pound. It would take her over a month to gain a pound without any supplements. So to me we are on the right track. Thanks for all of the advice and helpful info. Sorry to ramble on.
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Unread 06-29-2007, 02:27 PM   #37 (permalink)
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I'm glad she's making some progress with her weight. Sorry the clinic didn't work out well, I can't imagine someone telling parents to put restraints on a young child..
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Unread 06-29-2007, 08:51 PM   #38 (permalink)
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Thank you. That would be great. We went to the feeding clinic. Wow!!! They had some good points but they didn't have a program geared toward children with any hearing or vision impairments. Their program was reward based. That is great if the child is hearing and has good vision. Ashley could care less about that right now. They also wanted to put elbow restraints on her so she could not bring her hands to her face. That was a BIG HELL NO for me.


There are programs like that out there? Putting restraints on the elbows seems like child abuse to me.

Plus reward based programs lead to ongoing problems in the long term. It makes eating unnatural and risks undesirable side effects such as adult obesity, bulima etc.
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Unread 07-01-2007, 11:05 PM   #39 (permalink)
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Thank you. That would be great. We went to the feeding clinic. Wow!!! They had some good points but they didn't have a program geared toward children with any hearing or vision impairments. Their program was reward based. That is great if the child is hearing and has good vision. Ashley could care less about that right now. They also wanted to put elbow restraints on her so she could not bring her hands to her face. That was a BIG HELL NO for me. Sorry for the language. Part of learning to eat is exploring and playing with food and being able to put her hands in her mouth to taste the food. That program is not for us. We have decided to up her OT to 2 times a week and work on this from home. In about a month I have her opening her mouth for the spoon more. In one week with calorie boosters she has gained almost a pound. It would take her over a month to gain a pound without any supplements. So to me we are on the right track. Thanks for all of the advice and helpful info. Sorry to ramble on.
Elbow restraints? Yikes. Did they say why they want to do that to prevent her from bringing her hands to her face? It just doesn't make sense to me. I would say HELL NO too!

Just do what you feel is right for your child. Ashley looks great to me in the pictures, so obviously you are doing something right.
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Unread 07-09-2007, 02:05 PM   #40 (permalink)
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Ashley tends to push away things badly. They said if they kept her from pushing it away they could get her to eat. It will only make her more determined to NOT do what they want. She hates to be held down or restrained. They have a good program for the most part but they had nothing different to offer me as a mom of a child that is deaf and visually impaired. Their treatment is so general and would not work for us. We are getting OT 2 times a week now and Ashley has gained a whole pound in a month. YEA!!!!! Thanks for all of the input. Seems we may have found a combination of things that work for her.
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Unread 07-23-2007, 04:59 PM   #41 (permalink)
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We have had a breakthrough. Ashley is not only opening her mouth for the spoon but leaning forward to meet if I don't get it there fast enough. She is eating whole 4 oz jars of baby food and sometimes about 2 oz of pudding too. She is doing so good now. She has gained a little more weight. She is on her way. Thanks for all of the advice.
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Unread 07-24-2007, 07:16 PM   #42 (permalink)
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We have had a breakthrough. Ashley is not only opening her mouth for the spoon but leaning forward to meet if I don't get it there fast enough. She is eating whole 4 oz jars of baby food and sometimes about 2 oz of pudding too. She is doing so good now. She has gained a little more weight. She is on her way. Thanks for all of the advice.
I'm so happy for you and Ashley!
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Unread 07-24-2007, 09:58 PM   #43 (permalink)
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Yeah, I'm happy to see that she's making progress now!
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Unread 07-28-2007, 07:33 AM   #44 (permalink)
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Congrates, just need to wait and as long as they stay playful and learning, then they are fine. Docs can tell if a baby is not being feed or not. If she gets sluggish, tired and just spacing, then she is not getting enough food. If she is driving you nuts and everything, and not gaining wieght, then that is how she is. Not all kids are textbook kids. I know, my wife and I have 2 kids that do their own thing. My son will be 5 in a couple weeks and don't weigh over 35 lbs and my daughter will be 2 in Oct and still fits in some 12 month old baby clothes
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Unread 09-10-2007, 08:37 PM   #45 (permalink)
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Thanks for the encouragement. I haven't been on in a while. Ashley is eating a little better. We are still at about 17 1/2 to 18 pounds though. She will be 2 in a week. She is so active it is hard to get weight on her. I just keep on trying.
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Unread 09-11-2007, 01:37 AM   #46 (permalink)
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Thanks for the encouragement. I haven't been on in a while. Ashley is eating a little better. We are still at about 17 1/2 to 18 pounds though. She will be 2 in a week. She is so active it is hard to get weight on her. I just keep on trying.
If she is really active and mentally alert then it shows that she is getting what she needs. As others have said, if she was sluggish, always tired and not able to concentrate then that is more worrying.
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Unread 09-11-2007, 10:25 AM   #47 (permalink)
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I know or feel she is fine. Her dad is 5'10 and weighs a whopping 125lbs socking wet. He and his granddad are small frames and thin. It is her gastro doc that has me worried. He is pushing a g tube if she doesn't gain weight at the rate he thinks she should. I am fighting it all the way. I feel as long as she is growing learning and not loosing weight she will be fine. If she starts to loose then I will worry. We get about a 1/2 to a pound a month. I think that is good for a child that never sits still. She even tosses and turns in her sleep. Thanks for all of the encouragement and reassurance. I am a worry wort at times.
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Unread 09-11-2007, 10:41 AM   #48 (permalink)
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it sound like your daughter is fussy eater
i was very fussy eater when i was baby my mom tried everything to get me to eat but i did eat banana, mush potatoes and etc.. but i grew up and begin to eat just like everybody still i am little fussy on some of the foods

but i am glad that ashley is doing well smile
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Unread 09-14-2007, 02:12 AM   #49 (permalink)
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I know or feel she is fine. Her dad is 5'10 and weighs a whopping 125lbs socking wet. He and his granddad are small frames and thin. It is her gastro doc that has me worried. He is pushing a g tube if she doesn't gain weight at the rate he thinks she should. I am fighting it all the way. I feel as long as she is growing learning and not loosing weight she will be fine. If she starts to loose then I will worry. We get about a 1/2 to a pound a month. I think that is good for a child that never sits still. She even tosses and turns in her sleep. Thanks for all of the encouragement and reassurance. I am a worry wort at times.
I tend to agree with your thoughts - you know your daughter better than the doctor does. As long as she is putting on weight and is acting as a healthy, active, curious, learning toddler then you can't be doing too much wrong. I would go for a second opinion with another doctor before opting for the g tube. From what you have described of her, she'd probably not be too impressed and would want to yank it out and pull it apart to see how it works LOL!
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Unread 09-14-2007, 02:29 AM   #50 (permalink)
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Ashley's mom.. You have to remember... You live with her 24/7 and know her very well, The doctors dont' know her like you do. So do what YOU feel is best for Ashley. Doctors can recommend ways to help her, but in the end, it's really up to you.

I don't agree with putting a tube in her if you've said she's very active, and gaining slowly. I know it can be worrysome. But remember, she's your daughter, as long as she's happy and You're happy, then things will work out.
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Unread 09-17-2007, 11:35 AM   #51 (permalink)
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Thanks to you all for the encouragement. I hope the doc doesn't push the issue. I don't want to seem like I don't care but that is it I do very much so. And yes, Ashley would be one to pull at it and try to get it out. She is so curious. I love that about her. That tells me she is wanting to learn about things. BTW she turned the big 2 yesterday. She was full of her self all day.
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Unread 09-18-2007, 07:22 PM   #52 (permalink)
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Happy Birthday Ashley! I have just read this thread and wanted to give you a big hug and tell you what a great job you are doing! I am a single parent of a eight year old and know how challenging it can be at times. I am so happy that you let your daughter be who she is, that stubborn streak will serve her well in life! Hugs!
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Unread 09-18-2007, 07:25 PM   #53 (permalink)
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Happy Birthday to Ashley! Sounds like she has come a long way and is doing well. I agree with BearBeauty.
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Unread 09-20-2007, 01:38 AM   #54 (permalink)
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Thanks to you all for the encouragement. I hope the doc doesn't push the issue. I don't want to seem like I don't care but that is it I do very much so. And yes, Ashley would be one to pull at it and try to get it out. She is so curious. I love that about her. That tells me she is wanting to learn about things. BTW she turned the big 2 yesterday. She was full of her self all day.
Give her a birthday hug from me!!! She is just so cute and adorable!!! I would love to meet her someday!
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Unread 09-20-2007, 05:46 AM   #55 (permalink)
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Hi,
I think sometimes it's better to have a curious and active child rather than a listless kid. Though, that bouts of stubborn streak must have driven you up the walls at times, but I believe it'll help her fight for herself while growing up. By the sound of it she's doing her own things at her own pace.
I hope she'll gain the necessary weights soon. Happy Birthday to her.

Remember doctors do not always know the best for your child. Believe me, my mother have had to fight against some experts' suggestions for me when I was young and she won the battles.
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Unread 12-07-2007, 01:42 PM   #56 (permalink)
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Just a quick update. Ashley is now 18 lbs and 10 ounces. She is gaining weight better and also eating much better. The docs are impressed with what we have been doing with her. They said she is gaining around 7 to 8 grams a day which is very good. She is getting so big. She is walking every where and climbing all over the furniture. She will be starting preschool on Monday. I am so proud of her. Thanks for all of the advice.
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Unread 12-07-2007, 03:28 PM   #57 (permalink)
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Just a quick update. Ashley is now 18 lbs and 10 ounces. She is gaining weight better and also eating much better. The docs are impressed with what we have been doing with her. They said she is gaining around 7 to 8 grams a day which is very good. She is getting so big. She is walking every where and climbing all over the furniture. She will be starting preschool on Monday. I am so proud of her. Thanks for all of the advice.
Another milestone....ready for preschool. Glad to hear that she has continued to eat better and gain weight. Enjoy your Christmas with your little miracle.
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Unread 12-07-2007, 03:40 PM   #58 (permalink)
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Another milestone....ready for preschool. Glad to hear that she has continued to eat better and gain weight. Enjoy your Christmas with your little miracle.
Thank You. Hope you have an enjoyable Christmas too.
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Unread 12-07-2007, 05:47 PM   #59 (permalink)
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oh other idea.. whats are her favorite tv chars.. i.e.. Dora, Disney chars, or colors.. then buy silverwares for toddlers..
I have problem with feeding my last daughter Marsha, shes 3.. she is SO picky.... so i bought her favorite char.. Dora, etc.. now she eatting food with them..
or something comes with plate, silverware, cup.. that something she can look at or feeling great to have them and eat with it..
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Unread 12-07-2007, 06:02 PM   #60 (permalink)
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that is great progress with feeding issues and ashley is doing good i am glad and have good holidays smile

i am glad that ashley is goind well eating smile
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