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#31 (permalink) | |
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Let It Snow!!!!
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She sounds like a fiesty little thing..makes me want to hold her.
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"Wine improves with age. The older I get, the better I like it." --- Anonymous |
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#32 (permalink) |
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Registered User
Join Date: Feb 2007
Location: Ontario (I'm a Proud Canadian)
Posts: 863
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She sure has a Mind of her own... hehehe.. she's sound soo cute!!! she surely is a fighter and she'll be fine.. People say kids won't starve they just will eat when it's time... smile hang in there!!
I could remember my two healthy nephews when they were younger refuse to eat anything, so today they are healthy as a horse... soo sometimes it just a matter of time... I use to hate vegetables till maybe in my 20's lol.. shhhhhh |
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#34 (permalink) |
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Registered User
Join Date: Jun 2004
Location: High desert in Calif
Posts: 4,208
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Ouch. I remember myself refused to eat anything for long time after I became deaf. Only thing I wanted was ice cream. I remembered I went to my godmother's house while my parents work. She made me a lunch and I refused to eat any of them so she made me sit in that chair everyday till I realized it I do not want to sit on the chair all day everyday. I finally started to eat slowly. Now I wish I was stay skinny forever. If I was you, I would not worry about her not eat enough. She was just being a stubborn as I was.
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#35 (permalink) | |
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Registered User
Join Date: May 2007
Location: Rome, GA
Posts: 42
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Quote:
A |
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#36 (permalink) |
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Thank you. That would be great. We went to the feeding clinic. Wow!!! They had some good points but they didn't have a program geared toward children with any hearing or vision impairments. Their program was reward based. That is great if the child is hearing and has good vision. Ashley could care less about that right now. They also wanted to put elbow restraints on her so she could not bring her hands to her face. That was a BIG HELL NO for me. Sorry for the language. Part of learning to eat is exploring and playing with food and being able to put her hands in her mouth to taste the food. That program is not for us. We have decided to up her OT to 2 times a week and work on this from home. In about a month I have her opening her mouth for the spoon more. In one week with calorie boosters she has gained almost a pound. It would take her over a month to gain a pound without any supplements. So to me we are on the right track. Thanks for all of the advice and helpful info. Sorry to ramble on.
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Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#37 (permalink) |
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Registered User
Join Date: Mar 2007
Posts: 965
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I'm glad she's making some progress with her weight. Sorry the clinic didn't work out well, I can't imagine someone telling parents to put restraints on a young child..
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"She thinks... she can make people do what she wants or needs, what is right, by the sheer force of her own talent, not by forcing them... she can teach them and persuade them... that they'll catch it from her. This is still faith in their rationality, in the omnipotence of reason. The mistake? Reason is not automatic. Those who deny it cannot be conquered by it. Do not count on them." |
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#38 (permalink) | |
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Registered User
Join Date: Dec 2005
Location: Australia
Posts: 2,605
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Quote:
![]() ![]() There are programs like that out there? Putting restraints on the elbows seems like child abuse to me. Plus reward based programs lead to ongoing problems in the long term. It makes eating unnatural and risks undesirable side effects such as adult obesity, bulima etc.
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Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths |
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#39 (permalink) | |
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Registered User
Join Date: May 2006
Location: San Antonio, Texas
Posts: 7,733
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Quote:
Just do what you feel is right for your child. Ashley looks great to me in the pictures, so obviously you are doing something right.
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![]() ![]() "Those who cannot remember the past are condemned to repeat it." - Philosopher George Santayana. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom My own CI experience, my views on CI and ASL and Deaf Culture and Society DeviantArt |
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#40 (permalink) |
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Registered User
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Ashley tends to push away things badly. They said if they kept her from pushing it away they could get her to eat. It will only make her more determined to NOT do what they want. She hates to be held down or restrained. They have a good program for the most part but they had nothing different to offer me as a mom of a child that is deaf and visually impaired. Their treatment is so general and would not work for us. We are getting OT 2 times a week now and Ashley has gained a whole pound in a month. YEA!!!!! Thanks for all of the input. Seems we may have found a combination of things that work for her.
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Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#41 (permalink) |
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Registered User
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We have had a breakthrough. Ashley is not only opening her mouth for the spoon but leaning forward to meet if I don't get it there fast enough. She is eating whole 4 oz jars of baby food and sometimes about 2 oz of pudding too. She is doing so good now. She has gained a little more weight. She is on her way. Thanks for all of the advice.
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Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#42 (permalink) | |
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Registered User
Join Date: May 2006
Location: San Antonio, Texas
Posts: 7,733
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Quote:
![]() I'm so happy for you and Ashley!
__________________
![]() ![]() "Those who cannot remember the past are condemned to repeat it." - Philosopher George Santayana. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom My own CI experience, my views on CI and ASL and Deaf Culture and Society DeviantArt |
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#44 (permalink) |
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Registered User
Join Date: Nov 2006
Location: Area 1, Korea
Posts: 980
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Congrates, just need to wait and as long as they stay playful and learning, then they are fine. Docs can tell if a baby is not being feed or not. If she gets sluggish, tired and just spacing, then she is not getting enough food. If she is driving you nuts and everything, and not gaining wieght, then that is how she is. Not all kids are textbook kids. I know, my wife and I have 2 kids that do their own thing. My son will be 5 in a couple weeks and don't weigh over 35 lbs and my daughter will be 2 in Oct and still fits in some 12 month old baby clothes
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#45 (permalink) |
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Thanks for the encouragement. I haven't been on in a while. Ashley is eating a little better. We are still at about 17 1/2 to 18 pounds though. She will be 2 in a week. She is so active it is hard to get weight on her. I just keep on trying.
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Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#46 (permalink) |
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Registered User
Join Date: Dec 2005
Location: Australia
Posts: 2,605
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If she is really active and mentally alert then it shows that she is getting what she needs. As others have said, if she was sluggish, always tired and not able to concentrate then that is more worrying.
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Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths |
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#47 (permalink) |
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I know or feel she is fine. Her dad is 5'10 and weighs a whopping 125lbs socking wet. He and his granddad are small frames and thin. It is her gastro doc that has me worried. He is pushing a g tube if she doesn't gain weight at the rate he thinks she should. I am fighting it all the way. I feel as long as she is growing learning and not loosing weight she will be fine. If she starts to loose then I will worry. We get about a 1/2 to a pound a month. I think that is good for a child that never sits still. She even tosses and turns in her sleep. Thanks for all of the encouragement and reassurance. I am a worry wort at times.
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Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#48 (permalink) |
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Registered User
Join Date: Jul 2005
Location: Washtenaw County, Michigan
Posts: 5,762
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it sound like your daughter is fussy eater
i was very fussy eater when i was baby my mom tried everything to get me to eat but i did eat banana, mush potatoes and etc.. but i grew up and begin to eat just like everybody still i am little fussy on some of the foods but i am glad that ashley is doing well smile |
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#49 (permalink) | |
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Registered User
Join Date: Dec 2005
Location: Australia
Posts: 2,605
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Quote:
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Left ear implanted 9th June 2006 Activated 29th June 2006 Right ear implanted 31st August 2007 Activated 18th September Both Nucleus Freedom Cochlear implant myths |
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#50 (permalink) |
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Registered User
Join Date: Sep 2006
Posts: 818
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Ashley's mom.. You have to remember... You live with her 24/7 and know her very well, The doctors dont' know her like you do. So do what YOU feel is best for Ashley. Doctors can recommend ways to help her, but in the end, it's really up to you.
I don't agree with putting a tube in her if you've said she's very active, and gaining slowly. I know it can be worrysome. But remember, she's your daughter, as long as she's happy and You're happy, then things will work out. |
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#51 (permalink) |
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Registered User
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Thanks to you all for the encouragement. I hope the doc doesn't push the issue. I don't want to seem like I don't care but that is it I do very much so. And yes, Ashley would be one to pull at it and try to get it out. She is so curious. I love that about her. That tells me she is wanting to learn about things. BTW she turned the big 2 yesterday. She was full of her self all day.
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Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#52 (permalink) |
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Registered User
Join Date: Sep 2007
Posts: 609
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Happy Birthday Ashley! I have just read this thread and wanted to give you a big hug and tell you what a great job you are doing! I am a single parent of a eight year old and know how challenging it can be at times. I am so happy that you let your daughter be who she is, that stubborn streak will serve her well in life! Hugs!
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#54 (permalink) | |
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Registered User
Join Date: May 2006
Location: San Antonio, Texas
Posts: 7,733
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Quote:
__________________
![]() ![]() "Those who cannot remember the past are condemned to repeat it." - Philosopher George Santayana. Implanted left ear 10/11/06, activated 10/16/06 - Nucleus Freedom My own CI experience, my views on CI and ASL and Deaf Culture and Society DeviantArt |
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#55 (permalink) |
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V.I.P. Member
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Hi,
I think sometimes it's better to have a curious and active child rather than a listless kid. Though, that bouts of stubborn streak must have driven you up the walls at times, but I believe it'll help her fight for herself while growing up. By the sound of it she's doing her own things at her own pace. I hope she'll gain the necessary weights soon. Happy Birthday to her. ![]() Remember doctors do not always know the best for your child. Believe me, my mother have had to fight against some experts' suggestions for me when I was young and she won the battles.
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"Walking with a friend in the dark is better than walking alone in the light." - Helen Keller |
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#56 (permalink) |
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Registered User
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Just a quick update. Ashley is now 18 lbs and 10 ounces. She is gaining weight better and also eating much better. The docs are impressed with what we have been doing with her. They said she is gaining around 7 to 8 grams a day which is very good. She is getting so big. She is walking every where and climbing all over the furniture. She will be starting preschool on Monday. I am so proud of her. Thanks for all of the advice.
__________________
Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#57 (permalink) | |
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Banned
Join Date: Jun 2006
Posts: 60,296
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#58 (permalink) |
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Registered User
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Thank You. Hope you have an enjoyable Christmas too.
__________________
Smile ! It adds to your face valueRight Side MED-EL Pulsar March 05, 2007 Activated April 05, 2007 with Tempo + Left Side MED-EL Sonata February 13, 2008 Activated March 12, 2008 with Opus 1 Upgraded to Opus 2 both sides December 29, 2008 |
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#59 (permalink) |
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Registered User
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oh other idea.. whats are her favorite tv chars.. i.e.. Dora, Disney chars, or colors.. then buy silverwares for toddlers..
I have problem with feeding my last daughter Marsha, shes 3.. she is SO picky.... so i bought her favorite char.. Dora, etc.. now she eatting food with them.. ![]() or something comes with plate, silverware, cup.. that something she can look at or feeling great to have them and eat with it..
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