CI users and the Deaf community

[Frisky Feline]

actually CI Circle forum those people SHUNNED me out because i dont have CI. Nice.

[deafdyke]

Originally Posted by JDHammer

I agree - I hate it when ppl try and say that that would be better for you and all but I give them the all knowing universal sign then tell them to bite me.



Seriously? hmm I suppose I could agree thats how it was... kinda sad really.

I became deaf when I was 5 - one punch in the head did it and at a time, I really didn't like being deaf, but i eventually got used to it. I've always had a hearing aid and never anything else. But besides that... Mom sent me to hearing schools with support for the deaf, but it wasn't all that great up till I hit 6th grade.

Before that, I never had an interpreter, not once. I don't know how i got through school....I really can't remember much of anything, except having to play in music class... and when i look back on it...it's like the biggest WTF thing in my life, but after 6th grade, thats when things turned out to be awesome! Getting interpreter support was better, way better than anything i've had, but going to NTID was the biggest shock of my life. All during HS, i took my own notes, I did not have a note taker at all and hitting College was a big change because as the professors always told us to pay attention and go over the notes later - they always handed out notes anyway so we could all but watch and discuss, but jeez... there have been times when I wished things could have been different. Different as in a deaf school, but I guess things happen for a reason...

Wow JD....and you're postlingally dhh! I do think that even postlingally dhh kids can benifit from deaf school services, as opposed to a minimal accomondations set up. I think that says something!

[Oceanbreeze]

Originally Posted by Frisky Feline

actually CI Circle forum those people SHUNNED me out because i dont have CI. Nice.

You do realize that CICircle caters mostly to parents whose children have CI, don't you?

[Frisky Feline]

i am a parent, so are you?

[JanatheShort]

Originally Posted by deafdyke

Back even in the 70's and 80's, it took awhile for kids to develop speech skills. That was the argument for oral first and waiting til speech developed...b/c it took so long for deaf kids to develop speech, that they HAD to go to deaf school to learn how to speak.

Umm... wouldn't that be a better arguement for ASL? I mean... that would leave children with no language for years and years... and that seems really frustrating and umm... bad.

[Bottesini]

Originally Posted by JanatheShort

Umm... wouldn't that be a better arguement for ASL? I mean... that would leave children with no language for years and years... and that seems really frustrating and umm... bad.

No, in that mindset, once exposed to ASL, any motivation to learn speech to communicate would be gone, as ASL is much easier.

And that argument was around since the Milan conference.

Study a little deaf history. These stragegies are well documented.

[AlleyCat]

Originally Posted by Frisky Feline

actually CI Circle forum those people SHUNNED me out because i dont have CI. Nice.

And you originally went there because you were looking for a replacement CI processor for the one your husband lost, right? And you couldn't even get any help with that from them. Did you ever get a chance to find anything out about a replacement processor?

[Oceanbreeze]

This should help clear up any misconceptions regarding CiCircle... This is taken from the groups discription...

This listserv was established in January of 1998 by Karen Biernat of Bristol, Connecticut (USA) and Naomi Higgs of Adelaide, Australia. The CI Circle is a discussion forum originally intended for parents of children with cochlear implants and for parents looking for information about cochlear implants. Over the years, others have joined the list from around the world. Besides parents, members include adults who are deaf/hoh, extended family members, professionals,cochlear implant manufacturers. The forum is primarily for parents of children with implants or looking at getting an implant. Example discussion threads are educational placements, candidacy/insurance issues for children and parenting issues with a focus on children with cochlear implants.This forum is unsuitable for adults looking to discuss implants, and other adult CI experiences.
We ask that members of the group respect parents' choices regarding brands of cochlear implants, language methodologies and educational placements. Please offer advice based on your personal experiences and/or published research. Manufacturers may not post on the CI Circle, but are welcome to read any and all messages. Parent Volunteers with an affiliation with an implant manufacturer are requested to add "parent volunteer" to the signature line of their email post. Parent Volunteers are requested not to post on any implant brands other than the one they are affiliated with. Under no circumstances are the comments on this list to be used for research, publication, etc., without the express consent of the person who posted. Researchers are asked to seek the permission of the list owners before posting research questionnaires on the CI Circle. Please refrain from using the CI Circle for purposes other than the discussion of cochlear implants. Questions regarding the CI Circle to Karen Biernat at: biernatfamily@yahoo.

[JanatheShort]

Originally Posted by Bottesini

No, in that mindset, once exposed to ASL, any motivation to learn speech to communicate would be gone, as ASL is much easier.

Hmm... I want to reply to this with an intelligent question... but none of the things I'm wondering seem very intelligent. I'll think about this a bit and reply later.

[DeafCaroline]

Originally Posted by Bottesini

No, in that mindset, once exposed to ASL, any motivation to learn speech to communicate would be gone, as ASL is much easier.

And that argument was around since the Milan conference.

Study a little deaf history. These stragegies are well documented.

Indeed. That was why I was kept apart from the deaf community and ASL - because of that belief that exposure to ASL would hinder my progress in acquiring speech.

[Bottesini]

Originally Posted by JanatheShort

Hmm... I want to reply to this with an intelligent question... but none of the things I'm wondering seem very intelligent. I'll think about this a bit and reply later.

Your partial quote makes it look like this is my opinion.

I am explaining the theory of years past in deaf education, not endorsing it.

Oh, and I was giving a directive, not inviting questions. Read deaf history.

[Frisky Feline]

Originally Posted by AlleyCat

And you originally went there because you were looking for a replacement CI processor for the one your husband lost, right? And you couldn't even get any help with that from them. Did you ever get a chance to find anything out about a replacement processor?

Part of it yes, and i want to see everything how kids turn out with CI so i can share with my friends who have deaf kids with pros and cons with the factual information. But i dont have anything about it. I start to think that hearing parents are embarrassed for some reasons.

Oh, by the way, any CI users dont share or are useful about what to do with CI or no exchange about CI information. ONE member here on AD did offer me about CI possible free or small amount of $$ or something but this member stopped responding to me. i dont know why this member offered a CI for me in the first place then this member avoided me now.

[DeafCaroline]

Originally Posted by Frisky Feline

Part of it yes, and i want to see everything how kids turn out with CI so i can share with my friends who have deaf kids with pros and cons with the factual information. But i dont have anything about it. I start to think that hearing parents are embarrassed for some reasons.

No, they were just smart enough to keep contentious flaming members out. If only we can do the same here.

[JDHammer]

Originally Posted by deafdyke

Wow JD....and you're postlingally dhh! I do think that even postlingally dhh kids can benifit from deaf school services, as opposed to a minimal accomondations set up. I think that says something!

you know.... thats the first time i've heard of such a word...at first i was completely reading it wrong till i actually went back and looked at it again.... so thanks for makin my brain hurt hehe ;-)

Sometimes i still wish i had better services tho!

[JanatheShort]

Originally Posted by Bottesini

Your partial quote makes it look like this is my opinion.

I am explaining the theory of years past in deaf education, not endorsing it.

Oh, and I was giving a directive, not inviting questions. Read deaf history.

I was not suggesting it was an opinion... and my questions weren't about history, they were about how things are now.

I replied, with a reply, to show you that I listened to your comment and was thinking about it. I really hate it when I explain something or answer a question, and the person I am saying it to never says anything back. I feel like I wasted my time. I try to make sure if someone explains something to me, I at least let them know that I DID listen to the answer. And since a thousand questions were swimming in my brain, obviously I AM thinking about it.

I'm sorry if I broke quoting etiquette, and if the way I quoted you made it look like you were giving an opinion.

[JDHammer]

I'm curious... just how much does a CI really help? I know theres no magic pill or anything that would immediately make me be able to hear on the phone or what not. I'm just wondering how this differs from a hearing aid because i can't really see much difference, but how in the world does it help you?

I don't know if i'd be required to take some therapy sessions or some special training or something?

And is it the only implant available because my buddy was saying something about "surgery" to correct a hearing loss like permanently?

[green427]

Originally Posted by JDHammer

I'm curious... just how much does a CI really help? I know theres no magic pill or anything that would immediately make me be able to hear on the phone or what not. I'm just wondering how this differs from a hearing aid because i can't really see much difference, but how in the world does it help you?

I don't know if i'd be required to take some therapy sessions or some special training or something?

And is it the only implant available because my buddy was saying something about "surgery" to correct a hearing loss like permanently?

We have a whole subforum that discusses everyone's experiences with CI's.

You might want to google "Cochlear Implants" and read all about them before asking questions.

[deafdyke]

Originally Posted by JDHammer

Sometimes i still wish i had better services tho!

I hear ya!!!!! Like I think one of the problems with inclusion/mainstreaming/auditory verbal is that it assumes that services are good at ALL mainstream schools. And I hear you. I really do think that if I'd gone to a high school with a dhh program, I prolly would have ended up at Smith or something.

[JDHammer]

Originally Posted by deafdyke

I really do think that if I'd gone to a high school with a dhh program

I did, it's the elementary years that i didn't get much to little service at all.

And jeez... I HAD music class! How was i supposed to follow? =(

[deafdyke]

Originally Posted by JDHammer

I did, it's the elementary years that i didn't get much to little service at all.

And jeez... I HAD music class! How was i supposed to follow? =(

Oh lucky duck with the high school placement at least.
And yeah.....I remember music class, and although I liked listening to music, I still have no clue how to read music. ...and I remember sitting doing a page in my workbook about long and short vowels and syllabels and having no clue what the **** I was supposed to even be doing.

[jessicatian]

I agree with you.thanks for your sharing