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Unread 12-12-2011, 07:38 PM   #181 (permalink)
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Thanks for explaining
Regardless of what the big medical honchos will say,

please do go to the hearing aid dispensers and see for yourself how much
of a help would hearing aid would be to you. make sure it's TWO.
You'll never know until you try it on.

When I was 18, I was told with the amount of the hearing loss I have no hearing aid will help me anymore.
And it was told this by the head of the otolaryngology department! The 'authority' and all...

Now I am 54, and not only they DO help but they help enormously.
I can't imagine my life w/o the HAs.

So you'll never know until you see for yourself personally.

As for the CI - there is no rush, but my take on this is as follows- since you were hearing before, there is an excellent chance
that you will have no problem at all adjusting to the CI.

Statistic show the late deafened have little trouble adjusting to CI because they learned to hear and speak BEFORE their hearing loss,
as opposed to the born deaf. That makes a huge difference.

Nor, the CI surgery.
Once again, there is no rush. The CI surgery is nothing however to what you just went thru.
First of all, this is elective, which means it's not a sudden, life threatening disease, non emergency, with unknown outcome.
It is much, much simpler and less invasive.
The hospital stay is at most a few hrs.
You have your basic information about it here:
Cochlear Implant Surgery - Surgery for Cochlear Implants for Deaf and Hard of Hearing People


I would like to encourage you to ask some general info about the CI tomorrow, though, just so you know more or less what to expect
for yourself in your situation, with what you just went thru,

just so you won't be so anxious about it for the future - just so you know,
and in time you will make the decision either way - calmly.

Regardless of if you will or not have the CI and HAs, I would strongly advise to start learning ASL together with your husband.
Together because it makes sense since how are going to communicate with your immediate family, right?
and why not, the more the merrier- and together is fun!


Good luck with your appmnt tomorrow!


Fuzzy
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Unread 12-12-2011, 07:47 PM   #182 (permalink)
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Thanks

Quote:
Originally Posted by Audiofuzzy View Post
Thanks for explaining
Regardless of what the big medical honchos will say,

please do go to the hearing aid dispensers and see for yourself how much
of a help would hearing aid would be to you. make sure it's TWO.
You'll never know until you try it on.

When I was 18, I was told with the amount of the hearing loss I have no hearing aid will help me anymore.
And it was told this by the head of the otolaryngology department! The 'authority' and all...

Now I am 54, and not only they DO help but they help enormously.
I can't imagine my life w/o the HAs.

So you'll never know until you see for yourself personally.

As for the CI - there is no rush, but my take on this is as follows- since you were hearing before, there is an excellent chance
that you will have no problem at all adjusting to the CI.

Statistic show the late deafened have little trouble adjusting to CI because they learned to hear and speak BEFORE their hearing loss,
as opposed to the born deaf. That makes a huge difference.

Nor, the CI surgery.
Once again, there is no rush. The CI surgery is nothing however to what you just went thru.
First of all, this is elective, which means it's not a sudden, life threatening disease, non emergency, with unknown outcome.
It is much, much simpler and less invasive.
The hospital stay is at most a few hrs.
You have your basic information about it here:
Cochlear Implant Surgery - Surgery for Cochlear Implants for Deaf and Hard of Hearing People


I would like to encourage you to ask some general info about the CI tomorrow, though, just so you know more or less what to expect
for yourself in your situation, with what you just went thru,

just so you won't be so anxious about it for the future - just so you know,
and in time you will make the decision either way - calmly.

Regardless of if you will or not have the CI and HAs, I would strongly advise to start learning ASL together with your husband.
Together because it makes sense since how are going to communicate with your immediate family, right?
and why not, the more the merrier- and together is fun!


Good luck with your appmnt tomorrow!


Fuzzy
Thanks Fuzzy. Great information. Do you think they might try a HA on me tomorrow to see if it works? If not can I go to any HA store and try on HA if I show my hearing test? Really want to find a ASL tutor to come to my house since I have other health issues that seem to get in the way. Hubby and I promised to learn ASL for the start of the New Year.
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Unread 12-12-2011, 08:32 PM   #183 (permalink)
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Quote:
Thanks Fuzzy. Great information. Do you think they might try a HA on me tomorrow to see if it works? If not can I go to any HA store and try on HA if I show my hearing test?
My pleasure

Hard to say. what's hopeful you've said you will have long appmnt - 3hrs,
so perhaps they'll have the time to see how you fare with HAs on.
The main question is - how they will do that in the dr's office
since the digital aids require programming? well, you'll see tomorrow.

Certainly you can show your latest hearing test at any HAs centre/dispenser
and ask if they could show you their best model for you.
If they say "nothing for your hearing loss- say you'd like to try out the most powerful model anyway - it's your money"
And then you'll see

There is nothing to lose by just trying it out. Remember,
you don't have to pay for just try them on.

Good luck with your all endeavors!
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Unread 12-15-2011, 10:48 PM   #184 (permalink)
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Quote:
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I am deaf because I was born dumb.

you were not born dumb!!!! Period!
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Unread 12-15-2011, 10:51 PM   #185 (permalink)
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from my generation has deaf people my family
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Unread 12-15-2011, 11:18 PM   #186 (permalink)
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im deaf because god hate me
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Unread 12-16-2011, 08:17 AM   #187 (permalink)
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I am deaf because God made me hearing and later realized his misstake. He fixed it and now I am better!
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Unread 12-16-2011, 08:43 AM   #188 (permalink)
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Quote:
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I lost all my hearing overnight. Was sick with Sepsis, then had seizures and diagnosed with P.R.E.S. was deaf before I arrived to the hospital. Doctors have no idea why. Sepsis has a very high fatality rate. One month in the hospital. 10 days in ICU. I'm just glad I survived!!
Me too!
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Unread 12-16-2011, 08:45 AM   #189 (permalink)
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I'm a Rubella baby from the 60s.
Me too!
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Unread 12-16-2011, 08:45 AM   #190 (permalink)
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Uh oh! Somebody has been in the moonshine!
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Unread 12-16-2011, 08:24 PM   #191 (permalink)
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Meniere's caused inflammation in the cochlea and the tissues surrounding my auditory nerve.
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Unread 01-18-2012, 11:38 PM   #192 (permalink)
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Quote:
Originally Posted by LoveBlue View Post
Apparently inherited a gene where pregnancy/child birth causes progressive hearing loss. This is my own diagnosis from something I read somewhere and the fact that my mother started losing her hearing around the same time frame. My mother started noticing her hearing loss about 7 years after her first child was born. Mine was diagnosed (through routine hearing test at work) less than a year after my first child was born, but I did not notice the hearing loss until about 7 years later.
Call it a gene or tendency to have hearing loss in various degrees. None of my family members were born deaf or with hearing problems except one niece. My yougest sister was the youngest of all since she lost hers at 6 months so was prelingual. I was 7 and the high fever I had at age 5 that caused nerve damage and result in a very slight loss was complicated with emotional trauma at age 7 which hasten loss. Mother had a bout of pneumonia that stole the last of hers at 32 My brother is now severly hard of hearing after having normal hearing all his life. My middle sister still has her hearing but all 3 of her kids started losting their hearing after high school. My deaf sister has a deaf daughter but the daughter was born deaf and her paternal side of the family has genetic deafness where Deafness is the norm.
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Unread 01-22-2012, 07:31 PM   #193 (permalink)
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My dad thinks i'll be fixed if i get a CI dont want to be fixed. altho wearing HA's are itchy at times.
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Unread 01-22-2012, 07:53 PM   #194 (permalink)
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My dad thinks i'll be fixed if i get a CI dont want to be fixed. altho wearing HA's are itchy at times.
My GF mother is trying to do the same thing to her. She is finally starting to see that I am not "fixed" and I have a CI. Take it from me, if you get benefit from HA, don't go with CI. If you used to benefit from a HA and no longer benefit from HA, then a CI might be an option for you. But it will not "fix" you at all.
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Unread 01-23-2012, 06:57 AM   #195 (permalink)
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Sometimes I wonder If the people who go around telling people that they need to be fixed, ever had other people wander up to them then insist that they need to be fixed as well. Probably would get very interesting!
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Unread 01-23-2012, 07:12 AM   #196 (permalink)
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I've built up enough good karma in previous lives to be born as deaf in this one. Nothing comes free!
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Unread 01-23-2012, 08:59 AM   #197 (permalink)
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Sometimes I wonder If the people who go around telling people that they need to be fixed, ever had other people wander up to them then insist that they need to be fixed as well. Probably would get very interesting!
You make a good point. I might have to add a new service to my business...

Fixing the population, one herrie at a time!
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Unread 01-23-2012, 06:14 PM   #198 (permalink)
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I was born with congenital hearing loss in low frequencies of about 30dB. Over the past year or so, I've lost more than 40dB in the low frequencies for no apparent reason. They except that I will lose high frequencies as well, and possibly be profoundly deaf by the time I'm 30.
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Unread 01-24-2012, 10:29 AM   #199 (permalink)
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I know my dad needs to be fixed but not me im fine with HA i just need new ones because these are too low any more.
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Unread 02-05-2012, 12:39 AM   #200 (permalink)
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Rh-Incompatibility--Hyperbilirubinemia(Jaundice)

My blood type is A negative and my 2 kids are A positive--developed antibodies to Rh factor with firstborn and those antibodies attacked my daughter all through high-risk pregnancy. Blood transfusions before and after birth saved her life, but the severe jaundice and anemia are probably what caused her hearing loss. I think the bilirubin built up and went into her cochlea, damaging some of the cillia...she has a moderate to severe loss that is more of a mild loss with digital hearing aids. She says she is "not fully deaf"--but she is proud of her deaf identity. BTW: I had the Rhogam shot that should have prevented this problem, but apparently it did not work--very rare in the 90s and beyond. My daughter is happy with hearing aids, does not think she would ever want or need a cochlear implant(assuming she won't lose all of her hearing--may change mind if that happened)--BUT...if hair cell regeneration ever becomes an option, that may interest her(or maybe not)(because that is the reason she lost her hearing, we think--damaged hair cells in cochlea). The reason I think it is interesting to identify the cause--I think it is interesting to meet someone who went through the same experience(Rh-incompatability--and the intrauterine blood transfusions--and the total exchange blood transfusions)--my daughter would also like to meet someone with a similar birth story--just interesting, really. But beyond that: my daughter is awesome EXACTLY as she is!
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Unread 02-05-2012, 10:10 AM   #201 (permalink)
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Severe ear infections when I was 4 years old. Long story, but the doctor mis-diagnosed me and told my parents "don't worry, he will be fine". The true cause was never found, since a long time has passed.

My father likes to tell people that I am deaf because he accidentally hit me with a piece of wood....with a nail in it. Hardy har har.
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Unread 02-05-2012, 10:26 AM   #202 (permalink)
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heredity

Allmost all family members decended from my great grandmother are hearing-impaired. By age 30 maybe 80% hearing loss. Age 40 maybe 90% loss. I can hear very low tones some, but not much else.
As I could hear well-enough in school until I was about 14 years old I didn't learn ASL or have any deaf friends. Now that I am basically deaf I feel left out of both cultures. Reading how many deaf divorced or single guys there are on this website I see I am not alone with relationship problems.

Last edited by deafwelder; 02-05-2012 at 06:30 PM.
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Unread 02-05-2012, 10:31 AM   #203 (permalink)
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Allmost all family members decended from my great grandmother are hearing-impaired. By age 30 maybe 80% hearing loss. Age 40 maybe 90% loss. I can hear very low tones some, but not much else.
As I could hear well-enough in school until I was about 14 years old I didn't learn ASL or have any deaf friends. Now that I am basically deaf I feel left out of both cultures. Reading how many deaf or divorced single guys there are on this website I see I am not alone with relationship problems.
So, at family reunions does everyone sign, or do they all walk around saying "what!".
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Unread 02-05-2012, 11:30 AM   #204 (permalink)
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So, at family reunions does everyone sign, or do they all walk around saying "what!".
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Unread 02-05-2012, 11:37 AM   #205 (permalink)
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Ear infections....but my becoming deaf is actually the surgeon's fault. He damaged the nerves while operating, tried to correct it, and basically butchered me....several surgeries afterward also....totally deaf, no ear drums and dead nerves. The horror of that 1st surgery sticks with me to this day.....
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Unread 02-05-2012, 11:59 AM   #206 (permalink)
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Ear infections....but my becoming deaf is actually the surgeon's fault. He damaged the nerves while operating, tried to correct it, and basically butchered me....several surgeries afterward also....totally deaf, no ear drums and dead nerves. The horror of that 1st surgery sticks with me to this day.....
Wow! I hope you got a settlement out of it.
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Unread 02-05-2012, 01:23 PM   #207 (permalink)
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Sometimes I wonder If the people who go around telling people that they need to be fixed, ever had other people wander up to them then insist that they need to be fixed as well. Probably would get very interesting!
No one has evern came up to me and said that "You need to be fixed"....if they did, I would say..."well, you need to be neutured!"
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Unread 02-05-2012, 01:28 PM   #208 (permalink)
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Wow! I hope you got a settlement out of it.
Nope....not a dam red cent!....When I "questioned" my siblings after my Mother died....the only response I got was...."well, you know Mamma wasn't the smartest person in the world"....and the surgeon died about 5 years later. I even found out there is a time limit to file a malpractice suit...and this was many, many years ago.....I was only a pre-teen then....but still am wondering "why" somebody had not intervened on my behalf!....But, all that aside...bitterness isn't good for the soul....
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Unread 02-05-2012, 06:35 PM   #209 (permalink)
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disgruntled family members

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So, at family reunions does everyone sign, or do they all walk around saying "what!".
This is on my mom's family and I haven't seen any of them for years. My uncles and mom had a big fallout years ago over inheritance. Several of the men have gone into bankruptcy at least once and were looking for a boatload of gold from the "estate". None of the guys ever learned sign language. It didn't fit in with their suit and tie lifestyle.
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Unread 02-16-2012, 11:25 AM   #210 (permalink)
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Meningitis at 45 years old.
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