coolgirlspyer90

I was born hearing, but at age 3 I began to lose my hearing by Auto Immune Inner Ear Disease (AIED). And this is very rare, it usually happens to older adults. But It happened to me at 3 years old. I had hearing aids up until i was 8 years old, got a CI done on my left ear, and my right one done last year in september and activated in october.

Deafness

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HH scientist

I have 50% hearing in one ear and was diagnosed at the age of 4. No relative who is HOH or deaf except that caused by the aging process.

I grew up in an area in Sweden that was contaminated by Chernobyl. No, that was a cruel joke. I was already HOH by then and the radiation was far too small so far away from the nuclear plant (it increased the background level of radiation a little bit).

I used HA occasionally until ~5 years ago. I have never used CI. The doctor told me that it is not worthwhile for me. I do not remember the reason that he mentioned. I can just as well wait until our technology has reached a sufficient level of maturity to transfer signals much better from electronics to biological cells. The nervous system is complex indeed. Our knowledge of optics is much better. That is why glasses are fine and no one is bothered by wearing them.

Frisky Feline

aw you do not remember why doctor told you that CI is not worthwhile for you. I really like to know why, is it possible if the cochlea is dying or something inside? i understand.

HH scientist

I think that it was like this.

My cochlear nerve in my right ear is working (or I else would not have my 50% hearing). But it is risky to impose a CI there, because you sever the nerve (???), or the CI may make my hearing worse (CI is not as good as full hearing and as compared to 50% hearing, any comparison might be speculative).

The state of cochlear nerve in my left ear is unknown. Perhaps that there is some genetic disorder that makes it not to work, or it could be anything else. You cannot insert a CI before knowing the state of the nerve.

Thanks for you concern, Frisky Feline.

djchur

If you have 50% hearing in at least one ear you would not be a suitable candidate for a CI because you have too much hearing. CIs are usually fitted to people who are profoundly deaf in both ears and can get no benefit from the most powerful hearing aids because they have next to no residual hearing.

Also hearing loss is usually measured in decibels, percentages are not generally used. Do you know what your hearing loss is in decibels?

Abby Nicole

Ditto.

candybrowneyes

Meniere's! Oh the joys!

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SneakerNet

Why I'm Deaf? Cuz I ask for it.

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Bebonang

Never thought of that, very interesting, mbrek.

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SilentRider

meningitis when I was 3 years old.

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Latascha

I actually don't know for sure. My greatgrandmother was deaf, no one else we know of. My Mom has a hearing loss, but she still refuses HAs, and her two sisters both have problems with their hearing. So I think it is inherited.

We actually thought we would have deaf kids, since my husband and his brother both are deaf, but you daughter is hearing. I would love to have a deaf child as well as I would love to have another hearing child. Most important thing is health! As long as our children are healthy I don't care if they are deaf or not.

DeafRaptor

I have progressive moderate (lower frequencies) to profound (higher frequencies) sensorineural hearing loss in my left ear & progressive moderately-severe (lower frequencies) to 100% deaf (higher frequencies) sensorineural hearing loss in my right ear that is congenital. It was due to my genetics and complications at birth. I am a twin and we were born about a month premature. I was in breech position (they had to make my father leave and put my mother out, so there is some we don't know), I had my cord around my neck and loss of oxygen, and I had jaundice, all of which has been connected to hearing loss.

I believe God gave me grace in giving me hearing loss. I have hyperacusis which is painful when hearing sounds with my hearing aids but fine without. A lot of times it seems people develop it and have normal if not better hearing and therefore cannot get the relief I can. One of the only treatments I have heard of is very long (can easily take years), involves exposure to some noise (while adjusted so that it is more tolerable and it progresses slowly, can still be uncomfortable and sounds somewhat torturous to me), and only partially works and not for everyone. I could have been one of those. Instead, I got to enjoy hearing sounds with the use of HAs for more than twenty-five years and since I always knew my hearing loss was progressive (even though the doctors wanted to deny knowing it due to risk of getting sued for a false positive, and I am more angry/annoyed at them for the false negative in a sense), got plenty of time to get comfortable with that. I appreciate my hearing loss so much more now that I have hyperacusis, hahaha.

cmdrwhitewolf

Being a natural fighter, I got into fighting germ warfare before I was even born!

But seriously. It's kinda is an interesting story. My mother caught rubella (German Measles) when she was pregnant with me back in 60's. The doctors tried giving my mother the vaccine hoping it would help mitigate the damage to me via fetal shunting. So I was born immune to rubella but had live rubella germs in the back of my throat and thus had to be segregated from the other babies after I was born.
I used to have a good portion of my hearing early on, but started losing it over time. Now I have profound hearing loss on my right side, moderate on my left side. Plus the 'normal' Doc's kept misdiagnosing me with so many things while I was young, that my parents made regular visits down to the mayo clinic and I wound up becoming part of one the specialists long term studies amongst ton's of other medical annoyances.

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Angel1989

I lost all my hearing overnight. Was sick with Sepsis, then had seizures and diagnosed with P.R.E.S. was deaf before I arrived to the hospital. Doctors have no idea why. Sepsis has a very high fatality rate. One month in the hospital. 10 days in ICU. I'm just glad I survived!!

Angel1989

Deaf is better than dead. At least to me!!!!!

Cheetah

I agree with you Angel! But sadly there are some (some? make that many) hearing folks out there that simply could not handle life without their hearing.

mbrek

...or ugly, fat, poor, able-bodied, etc.

For those whose lives would be better unlived than to be the above, I say "good riddance". The weak don't have much of a place in my life.

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Angel1989

Becoming deaf has opened a whole new word to me. Met many nice people and figured out pretty fast the ones in my life who were "true friends". Turned out, not very many. It's their loss. I think I'm worth the little effort to talk to.

rebeccalj

I'm a Rubella baby from the 60s.

Angel1989

Hello morning......
Goodbye bed.......
Welcome music in my head......
I am deaf......
But I can see.....
Thank the Lord.....
And let it be!!!!!

Cheetah

Uh oh! Somebody has been in the moonshine!

Angel1989

No just red jello!!
Your so funny. This is something new that has happened. I can't stop with the rhymes. My husband jokes that I should get a job with Hallmark!!!

Cheetah

Absolutely! They don't hold a candle to your deaf rhymes!

Angel1989

You made my day. I really can't stop. Over these last few weeks, I've made up hundreds. I think it started with not being able to hear my Christmas music that I enjoy so much. Brain has found a "creative" or not "so creative" response! !!!

Cheetah

Wirelessly posted (Backberry)

That's good! I write. We all have our emotional outlets.

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dogmom

rebecca - my husband is the same-

Angel1989

Some of my rhymes are not printable!! Man I'm weird!!! Just found out that my appointment with the "specialist" is tomorrow. I don't know what to expect. Unfortunately, I've been using Afrin the last 2days(don't use for more than 3) but my head is so "full" and my nasal passages are sore. I hope I didn't screw me up more. I'll let you all know the outcome of this appointment, if you care since many of you have been my support system for this whole adventure. Is there any last minute advice????

Audiofuzzy

I apologize as I am very very late to the thread - what kind of "specialist"?

Fuzzy

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Mohandas Gandhi
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shel90

I am deaf because I was born dumb.

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Angel1989

Since I was so sick the focus has been on getting over the brain swelling and just getting healthy in general. Had one appointment with ENT. Now I finally have an appointment with the, I think it's called an Otic Neurologist(?). So now I can learn and understand more about my deafness. It took almost 6 months to finally get to see him. I was, and am,hoping I might be able to get a hearing aid. So far my research says with my amount of hearing loss, which is all of it , that hearing aids won't work. If anybody knows this to be not the case please let me know. I don't want the appointment to be all about CI, since I'm not interested in that. Thanks for asking.