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Unread 04-30-2011, 10:15 PM   #31 (permalink)
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I was born Profoundly deaf due to CMV
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Unread 04-30-2011, 11:07 PM   #32 (permalink)
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Why am I deaf?

kinda harsh, but.. was born Profoundly deaf. *nod*
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Unread 04-30-2011, 11:59 PM   #33 (permalink)
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The OP has been banned, so is this thread supposed to be locked, also?
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Unread 05-01-2011, 12:10 AM   #34 (permalink)
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The OP has been banned, so is this thread supposed to be locked, also?
The thread here is not going to be locked or the other thread in his introduction. Just keep on posting as long as no one said a bad things to say.
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I HAVE BEEN DEAF SINCE BIRTH, AND IT IS STILL AWESOME TO BE . (thumb up) (very happy)

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Unread 05-01-2011, 12:17 AM   #35 (permalink)
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OK, thanks. I wasn't sure how that worked.
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Unread 05-01-2011, 12:41 AM   #36 (permalink)
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The OP has been banned, so is this thread supposed to be locked, also?
No, why should it be? As long as the posters are being good little elves, it won't be locked.
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Unread 05-01-2011, 01:11 AM   #37 (permalink)
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I will answer the banned OP's question.

I am genetically HoH - I am clinically deaf without HA's. In fact, I would have been considered deaf before the invention of the modern hearing aid. Many of my ancestors were considered deaf and used signed communication - but that stopped when hearing aids were invented.

My father used to be HoH but is now clinically deaf even with the use of HA's. However, he is (ASL sign for hearing in front of forehead) "hearing". He does not sign and he began to lose his hearing when he was in College.

I started to lose my hearing when I was 4 years old. My neice also lost her hearing when she was 4. My sister just started to lose her hearing 3 years ago at the age of 33. My Uncle (dad's brother) is a CI candidate and he began losing his hearing when he was in his 20's as well.

My grandfather was honorably discharged from the service in WWII because he began to lose his hearing while in the war. His mother was deaf. His uncles were deaf.

It is a genetic weakness in our inner ear. It is inner ear progressive nerve damage. Tinnitis is a horrible thing.
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Unread 05-01-2011, 01:14 AM   #38 (permalink)
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meningitis when I was 2 years old.
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Unread 05-01-2011, 11:48 AM   #39 (permalink)
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My hearing loss is both hereditary and due to having ear inflamtion when a child. Started noticing it since high school. Constant hissing since then. hearing detoriorated gradually and is very severe now. Wear hearing aid in one ear but doesnt help much because the conductive loss became also nerve loss.Had stapedecotomy operations in both ears. One was successful only...
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Unread 05-01-2011, 12:00 PM   #40 (permalink)
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Prematurity and Ototoxic drugs and I'm sure this is a
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Unread 05-01-2011, 12:07 PM   #41 (permalink)
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I was born hearing and lost it at 2 and half to spinal meningitis.
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Unread 05-01-2011, 12:16 PM   #42 (permalink)
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A genetic gift from my family. Also the reason my husband is HOH. We have been fortunate to pass it on and are founding our own dynasty. Soon we will secede.

*Pinky and the Brain cartoon about taking over the world*
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Unread 05-01-2011, 12:19 PM   #43 (permalink)
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why am I deaf

Well was hearing til 7 yrs ago , came home from work, shwered went to bed woke up profoundly deaf. After 3 weeks in Hospital they discovered i carry an extra gene that has very recently been identified as a possible link to deafness...I have no structural deformaties...but hear nothing not even my own voice. UGH! I tried every HA out there, nothing worked and met with the
head of the CI program here at Johns hopkins. His comment was no guarantee..that was before the traumatic brain injury...now..I am just happy to be alive and walking and talking ..I feel blessed and have few complaints.
peace to you all..Midnight♥♥♥
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Unread 05-01-2011, 12:24 PM   #44 (permalink)
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I was born congenitally profoundly deaf. Don't know the cause. I'm a mutant basically.
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Unread 05-01-2011, 01:25 PM   #45 (permalink)
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Prematurity and Ototoxic drugs and I'm sure this is a
Yes, but we always get new people and it is fun to hear their stories.
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Unread 05-01-2011, 01:53 PM   #46 (permalink)
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What I really should have said before was: The reason why I am deaf? The Good Lawd made me this way and who am I to argue with him?
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Unread 05-01-2011, 02:28 PM   #47 (permalink)
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I was born Deaf and it is cos of deaf gene, I cannot spell it proper name.
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Unread 05-01-2011, 03:12 PM   #48 (permalink)
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Born Profoundly deaf for unknown reasons.

I have LARGE family who had NO hearing loss, Grandpa at 93 still can hear, Grandmother at 88 still can hear so is grand aunts/uncles in their 80's, all 12 aunts/uncles between 40 and 65 all can hear fine, 13 cousins plus once removed cousins are all hearing, Brother are hearing too.
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Unread 05-01-2011, 05:57 PM   #49 (permalink)
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Apparently born with a progressive hearing loss that was diagnosed when I was 13. I have a severe/profound loss now, reasons why are unknown.
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Unread 05-01-2011, 06:30 PM   #50 (permalink)
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Cmv.
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Unread 05-01-2011, 06:47 PM   #51 (permalink)
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Another mutant here!
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Unread 05-01-2011, 10:47 PM   #52 (permalink)
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X-men comes to mind. Is that awesome?
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Unread 05-02-2011, 11:03 AM   #53 (permalink)
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Suspected unknown viral infection...

Ears plugged up during a bad cold, the ringing started and I began to "Say What?" Two more noticeable declines over the next year and half or so to the point of being severly/Profoundly HOH/Deaf.

A precursor to the cold was a trip to the DR during which I was bitten by a mosquito. Could this have been the source of the virus??? We have always wondered but have been unable to see a virologist to findout for sure.

Last edited by ptcallaghan; 05-02-2011 at 11:04 AM. Reason: spelling
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Unread 05-02-2011, 11:26 AM   #54 (permalink)
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I have a progressive loss that they think is related to a genetic disorder I have, but has not been identified.
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Unread 05-02-2011, 12:56 PM   #55 (permalink)
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meningitis
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Unread 05-02-2011, 01:39 PM   #56 (permalink)
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Originally Posted by Beach girl View Post
The OP has been banned, so is this thread supposed to be locked, also?
Why where they ban?
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Unread 05-02-2011, 02:03 PM   #57 (permalink)
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Apparently he is the poster formerly known as "jasin" and was previously banned under that name for bad behavior, so was banned again. Long-timers know more about the history than I do.
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Unread 05-02-2011, 06:45 PM   #58 (permalink)
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Why am I bilaterally deaf. Genetic with having a sensorineural hearing loss over 40 years. I was at "Profound" level- almost 30 years.

Note: Neither my father or his brothers were deaf nor any of my cousins. My brother is deaf now and has the same Implant as I have, .

Implanted Sunnybrook Advanced Bionics-Harmony activated Aug/07
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Last edited by drphil; 05-02-2011 at 06:47 PM. Reason: additional note
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Unread 05-02-2011, 06:54 PM   #59 (permalink)
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Apparently he is the poster formerly known as "jasin" and was previously banned under that name for bad behavior, so was banned again. Long-timers know more about the history than I do.
Yep. He was perma-banned for violations, and has tried, I believe this is the second time, to sneak back in under another screen name.
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Unread 05-02-2011, 06:56 PM   #60 (permalink)
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NF2 has caused tumors to grow on both hearing nerves. Lost the right side to surgery to remove the tumor, and the left from the tumor just killing the nerve
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