Seagirl

More explanation on the issue, I have been able to determine it isn't earwax (first thought to my mind to Kristinab), but my real concern is my left ear makes this bass like beep for about 2 seconds and then my hearing is gone. Sometimes it comes back quick and sometimes it doesn't.

Deafness

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Bottesini

You were checked for Meniere's disease?

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TXgolfer

That's what it sounds like. I have heard many with Menieres say they heard a low sound or roar besides their normal tinnitus right before a drop in hearing or a vertigo attack as well.

Seagirl

Dumb question what is Menieres? Growing up with hearing problems and even as an adult I do not understand much about it. As for your question I can garauntee I haven't been tested.

Bottesini

Meniere's Disease Information Center -- Symptoms of Meniere's Disease

Here is a good link for you to learn about it.

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Seagirl

Ok this is now really getting strange. I always thought when I got veritgo it was because of an ear infection, now I am not so sure. We don't have any ENT's where I am from. We only have ones who come in from time to time. Do I have to see an ENT or can I see a GP?

Seagirl

Btw the link was extremely enlightening. Bottesini

Bottesini

You are welcome, and I think you will need an ENT but your GP can refer you.

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DizzyDon62

Hi Seagirl
I have Meniere's disease myself and have since 2002 it started in my right ear and then went over to my right ear a few years later. Meniere's Disease is a rare disease only 2% of the worlds population get it and that unilateral out of that 30% go bilateral. Meniere's is not an easy disease for doctors to diagnose right away it can take years and not all ENTs have experience with the disease. I see an Ontonerologist who specializes in vestibular disorders like Meniere’s disease and he is one of nine doctors in Canada who do consult some ENTs. There is a great support site for people with Meniere’s Disease if you have questions or feel free to message me I would be happy to answer them here is that link MENIERES.ORG -- Coping support site for Meniere's Disease. You are not alone!

Take care, Don

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I have Bilateral Meniere's Disease I started showing signes of this disease in 2002 and I was totally deaf by 2007.I received my MED-EL Cochlear Implant on June 16th 2009 and was activated on July 26th 2009 London Health Sciences Centre University Hospital, London Ontario Canada Dr. Lorne Parnes

lunglover

I don't meant to derail any current discussions going on here, but I wanted to chime in with some of my thoughts if that's ok.

I'm 28, and like I said in my introductory post, I just found out that I'm HOH. I was ok about receiving the news - I think deep down I'd suspected it anyway. But now, a week after my hearing test, I'd almost swear my hearing was getting even worse! I'm hoping it's psychological? Psychosomatic? I kind of always ignored my hearing problems and just let myself believe that it was the fault of the speaker, not me.

Within the span of a few days, I'm suddenly having a LOT of trouble hearing people over the phone. I actually called my cell phone company to complain because I thought my phone was faulty. Also, it sounds like there is an echo sometimes when I'm watching tv. And the tinnitus has REALLY increased; it even wakes me up at night and then I can't go back to sleep. Also, I realized the other night that I can no longer hear the oven timer beeping with background noise, which is also new. I have an appt with my ENT in a couple of weeks, by the way.

I'm just wondering for people who started losing their hearing later in life, how fast it progressed. I understand that each person is different, and that each diagnosis is different, but I was just curious about other peoples' experiences. I wasn't expecting things to go downhill so fast (assuming this is not psychologically induced).

KristinaB

For some people it goes pretty quickly and for others it goes slowly. I wonder if, now that you are aware (for certain) you are allowing your body to relax and not thinking you are supposed to hear these things. I know when mine started to get worse, I would anticipate the sounds needed and would make sure that I heard them. I'm not sure how to explain it. Right now, I am more glad than before that I lost all of my hearing. I am more relaxed about a lot of things. (astill get stressed with others, but that's neither here nor there). As far as my hearing, I am glad I don't have to deal with it anymore.

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Taking life one day at a time.

sallylou

Speaking of progressive hearing loss, I finally got an audiogram. My good ear has gotten worse so that it now matches my bad ear. I had been compensating with my good ear. Now, I'm symmetrical. The audiologist reprogrammed my hearing aids. With the new programming, speech is less distorted. Cranking up the volume has me on sensory overload right now but I suppose that I'll adjust (or head back to the office for a change!). Not a surprise because it was pretty much what I expected.

I really like the new audiologist who tested me. She is young and nice. She did seem a bit clueless about genetic progressive hearing loss, though. The neighborhood practice is primarily elderly patients with age related hearing loss. She told me that she wants me to see an ENT for a consultation, which I consider a complete waste of time. When I asked her why, she said something about what might be coming up in the future. Ya'll send me a memo if that future cure becomes suddenly available. Until then, I'll be busy getting on with my life. LOL!

Good news is that my hubby is supportive and has offered to learn ASL. That means a lot to me.

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dogmom

glad to read about you and your husband, sally and that you like the new audi. I think finding "professionals" to have good working relationships with is so important and I haven't always been lucky that way. Except that she wants you to see the ENT...

Mom and I went to see movie today. I no longer need ear plugs for in the theater

shel90

That is so great! It will have a postive impact on yoru already strong marriage!

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"Wine improves with age. The older I get, the better I like it."

--- Anonymous

LDNanna

Hi! I am so excited. I am finally getting a new earmold. Its going to be blue and white marble sparkles. Yay! I am so impressed with the selection these days. No more ugly putty colored ones.

My audiologist signs with me a bit now. It seems that she used to teach asl somewhere. (couldnt make it out)

Oh, and I doubt you guys will remember, but I told a few people about the misfortunes my young interpretor friend had. He is back now and doing much better. Thanks to everyone who sent their support. He came over to the house Saturday and we had a very nice visit. It was so nice to have someone to sign with again. Its not like being my everyday wallflower me.

Daft

Am I the only person who had the attitude of "I really don't care too much" about my hearing loss? When I noticed my hearing was starting to get bad, I simply signed up for an ASL class and started to hang out with the Deaf. Best thing I ever did.

KristinaB

There's a bunch of us late deafened people who have gotten to the point that we can handle it. But like anything, most of us had to go through a grieving process as we lost something that at the time was very important to us. There are some who may not have had the advantage that I did. I at least knew from the time I was 6 or 7 that I would lose all of my hearing and so I had 30-35 years to go through and prepare myself.

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Taking life one day at a time.

Tousi

That's great about your husband. Should I assume that you are an ASL user now or will you, too, be taking the class?

sallylou

Tousi, I'm learning, too, so we can learn together.

Yea for sparkly ear molds!

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Bottesini

Tousi has sparkly ear molds??????? The things you learn everyday.

hohDougRN

Sorry, but its just not that easy. you must have no previous life. Its a little different when everything is already invested into mainstream life and hearing world is all you ever known. Its impossible to just change everything "the matter of factly" It takes a while to understand the changes in sensory perception and then to obtain the appropriate skills and assistive technologies to where one can have completely adapted. Unless you lived in a box your whole life, its just not as simple as signing up for an ASL class and hanging out with deaf....there is much much more involved and it AINT always easy

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Doug

Tousi

Hahaha, Botti; I think Sal was speaking about herself. That said, I do have a hearing aid but it is far, far from sparkly. That just isn't me.

Thanks, Sallylou.

Bottesini

Bummer. I had this really great image in my head.

My shoelaces today say "I <3 Zombies."

Daft

Yeah, right. Whatever, dude.

sallylou

Botti, I can always count on you for a laugh!

LDNana is getting the sparklies! Tousi is just secretly jealous.

It was that easy for me, too. I am/was heavily invested in the hearing world. A family history of deafness may have influenced me; I believe, however, that it's because I'm generally very open to new things. I have interests in several communities and I love my eclectic group of friends.

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deafskeptic

Awww. I'm jealous of LDNana for getting sparklies.. <---- green with envy. I've always had plain earmolds before I got my CI.

While deafness is all I have ever known, I'm sure i would have a difficult time adjusting to being blind as well as deaf.

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Left ear implanted with Med-El on April 24 2007.
Activated on May 9th.
Upgraded to Opus 2 9/10/2010
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dogmom

it is true I am not late-deafened. But since I have started losing my hearing, I have just pretty much looked around for Deaf socials and started going to them, and looked for an ASL Class and found one etc. There happens to be that available in my area and I can do it. So for me it has been kind of a "just like that" thing. I was involved with Deaf people prior to this however, having some d/Deaf friends and having worked with Deaf kids some years ago.
Also, I kinda am used to looking at things differently, as someone with LD, and who is open to various things, like sally was talking about-

CJB

I don't think it's fair to assume that just cause someone handles hearing loss well that they have no life. Hearing loss is harder on some people than others. Some people are more attached to their hearing than others, some have better coping skills than others, and some people have more support than others.

LDNanna

It would have been easier for me to cope if there was a deaf community here. Alas. There is one ASL class. I have taken it twice. It is ASL one. I did take further classes from two terps. the teacher and the younger terp are now friends. My young terp friend came over again tonight to have supper with us. It is sooooo nice to sign, not having to say HUH so often, and to enjoy the conversation.

I agree, circumstances and support from family, friends and community is key to the transition. (of hearing loss or deafness) Whatever support is there, go there, learn, make friends. Some folks keep focusing on the past and feel a heavy burden of loss. Grieving is ok and healthy. Other folks can focus better on acceptance. These folks can go on with their life, making a smoother transition. Everyone is different.

TXgolfer

No DougRN is exacly right. Many of us were on a career path that required hearing so in addition to dealing with and preparing for deafness we had to adjust our career plans as well. Also LD also often comes with other complications as well like vertigo that makes it tough to deal with.

It seems your assertion is that all lives are the same. And that all causes of deafness are the same. Therefore the way people adjust should be the same. That line of thinking is just......well.....daft.