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*Starfish87* *Starfish87* is offline

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Showing Visitor Messages 1 to 9 of 9
  1. ~♥~Pinky~♥~
    06-28-2008 09:27 AM - permalink
    ~♥~Pinky~♥~
    Yeah, I was born with RP and profoundly deaf. My doctor found it out that I has RP when I was 15. It scared me. I was so depress and can't drive.
  2. ~♥~Pinky~♥~
    06-27-2008 12:56 AM - permalink
    ~♥~Pinky~♥~
    Hi. I have a Retina since I was born. My RP isn't real bad one. It's not getting worse. What is yours? I can see anything during daytime. I can't see the dark at night. How did you become an usher syndrome?
  3. giftlove14
  4. Hear Again
    06-12-2008 10:27 PM - permalink
    Hear Again
    I should clarify...My CI center gives those who have one CI two processors and those who have two CIs four processors.
  5. Hear Again
    06-12-2008 09:55 PM - permalink
    Hear Again
    My guess is they do it in case one (or both) of your processors need to be sent in for an exchange.
  6. Hear Again
    06-12-2008 03:28 PM - permalink
    Hear Again
    I have a Nucleus 24 Contour Advance (Cochlear)CI for my left ear and the Nucleus Freedom (Cochlear) CI for my right ear. My CI center gives us 4 processors, so I have two 3Gs and two Freedoms.
  7. NorCal20
    06-11-2008 10:03 PM - permalink
    NorCal20
    Salem and Portland.
  8. JClarke
    06-11-2008 09:52 PM - permalink
    JClarke
    I can't say their names, but they are known as KarissaMann05 and PiypPuyo (this guy is in greece atm)
  9. Hear Again
    06-11-2008 06:37 PM - permalink
    Hear Again
    I was 34 when I received my first CI and 35 when I received my second CI. Out of curiosity, what CI brand do you have?

    Hear Again

About Me

  • About *Starfish87*
    Biography
    I am profoundly deaf in both ears caused by Usher Syndrome (type one). I love animals. I am friendly and easygoing person. :)
    Location
    Oregon
    Interests
    I like to learn many new things, loves to do outdoors, seeing movies at the theatres, chat with friends on computer (IM, e-mails,, etc). I like to listen to all kinds of music (depends on the songs) except rap.
    Occupation
    College Student

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  • Last Activity: 08-07-2008 02:44 PM
  • Join Date: 06-11-2008

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Latest Entry

Posted 06-11-2008 at 01:11 PM Comments 0
Posted in Uncategorized
I want to get know people who have Usher Syndrome because I have Usher Sydnrome and I don't have a lot friends who have it.

Posted 06-11-2008 at 12:04 PM Comments 0
Posted in Uncategorized
Hi! I am new here. I'm from Oregon. I'm 21 years old, attend to college. I have Usher Syndrome. I speak very well with two cochlear implants. The first cochlear implant when I was three and half years old. The second one when I was 17 years old. I cannot wear the hearing aids because they don't work for me. I went to pravite school for deaf for about 13 years, then went to public middle school for eighth grade, after that went to public high school for four years. Now, I am a college student. I...

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