candybrowneyes

This thread will be for anyone who wants to discuss Menieres, who has it, wants to know about it, take out your frustrations about it.

I personally know what this disease does as I was diagnosed in 2008 with it. I was one of the lucky people who was diagnosed bilaterally =/

This thread will be a sticky.

Post as you wish.

__________________
Love is the force that transforms and improves the soul of the world...

Deafness

__________________
This advertising will not be shown in this way to registered members.
Register your free account today and become a member on AllDeaf.com

TiaMarie

I too was a lucky one that got it bilateral. I was told many times by my ENT that I would never get it in my other ear. Well last Aug I went bilateral. My ENT said he had never seen someone so young get it in both ears, so I was sent to see a specialist 2 hours away that I now see every month.

candybrowneyes

What meds do they have you taking?

__________________
Love is the force that transforms and improves the soul of the world...

saywhatkid

I have "enjoyed" Meniere's for over 10 years. Finally diagnosed in 2002 after a couple of years of hearing changes. My "version" has less vertigo than typical, but the hearing loss and fullness are unpleasant enough. I am not jealous of those that have the vertigo.
I take Dyazide and watch my sodium intake. I also quit ciggies in 2002. I find that stress is a trigger. I also get episodes when I have a hearing test. Imagine that.

__________________
"We ask you, brothers, to respect those who labor among you and are over you in the Lord and admonish you, and to esteem them very highly in love because of their work. Be at peace among yourselves." ~ 1 Thessalonians 5:12-13

candybrowneyes

Yeah, Stress is a trigger for me as well. When I am all emotional it seems as though it is definitely worse. Dyazide is practically the same as Maxide which is what my doctor has changed my script too. But now I also take promethazine for nausea and meclizine for vertigo. I also take an anti inflammatory called Naproxen.

__________________
Love is the force that transforms and improves the soul of the world...

saywhatkid

Do you get episodes when you have your hearing tested? It is always bad news for me: "You have lost this much; you will keep losing at an unknown rate. Learn ASL" kind of thing. For some reason, this almost always gives me about 2-3 weeks of the roaring/ringing with drastic hearing loss.

__________________
"We ask you, brothers, to respect those who labor among you and are over you in the Lord and admonish you, and to esteem them very highly in love because of their work. Be at peace among yourselves." ~ 1 Thessalonians 5:12-13

TiaMarie

I have never had an attack during a hearing test. That would be horrible, seeing is how I get them at least once a month. They told me the same thing. " I don't know how much hearing you will lose, but you should learn ASL." They have me on Ativan and Valium. I also take a diuretic Triamterene and hudrochlorothiazide, which is maxzide and Dyzide.

saywhatkid

It is not a full-on episode until afterwards. I can feel it beginning as I sit in the booth, hearing words so loud they hurt my head, but no idea what the word is. It is a slow anger in me, I think, building as the test progresses. In my line of work, I am often tested while on the job, and the testers are usually fascinated by someone with my loss; testing me over and over, then telling me to wear plugs. Grrrrr.

__________________
"We ask you, brothers, to respect those who labor among you and are over you in the Lord and admonish you, and to esteem them very highly in love because of their work. Be at peace among yourselves." ~ 1 Thessalonians 5:12-13

TiaMarie

I hate when I get tested and it's a male that is doing the testing. Come on, I have mostly low range hearing loss. They are just setting me up for failure. lol

VacationGuy234

I have it and I think promoting a healthy lifestyle has prevented me from getting dizzy. I usually don't eat processed foods and I use the Eating for Life cookbook as a guide. I also don't cook with non-stick pans as they have Teflon coating. Because of this, I think, I've not had an attack in years.

It's a tough thing to go through, but hang in there, it's not your whole life, just a part of it.

TiaMarie

I do the same thing. I only shop the outer sides of the store, and everything I make from scratch, so I know how much sodium is in it. I had some really good years with no attacks at all. Then I went bilateral and it's starting all over again. Crap!

VacationGuy234

That's pretty impressive. I don't necessarily think it is all sodium related as I've tried different things. However, I haven't ruled out that the processed foods which use sodium has an affect. I eat more fruits and vegetables today, I had watermelon as a snack this afternoon, I try to keep everything low fat.

I'm sorry you are having issues with it, but I do believe you'll get back to normal in time.

TiaMarie

Thank you, I sure hope so

VacationGuy234

Do you drink coffee or alchohol? And, what about exercise?

I don't drink coffee, but I do drink alcohol. I also exercise 5 times a week.

candybrowneyes

Well it seems like I get the attacks during that time of the month more. I changed my diet up and my daily symptoms have been so much better as well as exercising!

Tia I was wondering what your loss is? I have a guy for an audi too but that doesnt really have anything to do with my test scores... the beeps need to be changed up a bit though because of the tinnitus.

saywhatkid, yes I just get nervous for the tests, but im not sure its ever caused an attack

__________________
Love is the force that transforms and improves the soul of the world...

TiaMarie

It's not really the beeps, its more when he says words and I have to repeat them and he lowers the volume after each word.

I will have to find my test scores and I will most them, if I can read it correctly. lol

TiaMarie

It's not really the beeps, its more when he says words and I have to repeat them and he lowers the volume after each word.

I will have to find my test scores and I will most them, if I can read it correctly. lol

Smithtr

highly more cocern your issues symption terrible on your suffer pain because your have probelm disease how long your health problem on menierse

__________________

candybrowneyes

Im not sure about everyone else Travis but I was diagnosed in 2008.

__________________
Love is the force that transforms and improves the soul of the world...

AlleyCat

How have you been feeling, CBE? Hope better these days!

TXgolfer

I was diagnosed in 1990 I think... Close to then anyway. I took dyazide and Antivert. I don't take anything now. They surgerys cured most of the vertigo.

__________________
Ps 109:8 let his days be few,and let another take his office -KJV-

Smithtr

sorry hear you happened! you have weak ,many people have problem issues suffer pain your! It is difficult not enough strong! I don't understand on meginse I research more deep!

__________________

candybrowneyes

Thanks Alley, I have been better, it was bad for a week there, seriously wanted to beat my head into the wall. But what can ya do? I get the vertigo daily, tinnitus 24/7... Its just something I live with now... I just keep in the back of my mind it can be worse...

__________________
Love is the force that transforms and improves the soul of the world...

deafbajagal

Daily?!! Wow, I had no idea it can get that bad. Is there anything the doctors can do for it? glad you're doing better, as can be expected.

VacationGuy234

I think exercise can go a long way to helping it. I'd get into something like Beach Body or Body for Life. Healthy living can help the immune system. In the beginning it will be hard, but I think a lot of the symptoms will subside.

candybrowneyes

Yeah it has been better since I started a work out plan a couple months ago... Also, gent injections may be in the future.

__________________
Love is the force that transforms and improves the soul of the world...

Lily7

My doctors thought I had bilateral Meniere's (and a really severe case of it too) and diagnosed me as such when I was 4 years old. Then when I was 23 years old I got a cat scan or MRI of my ears, not sure which one, but they found a birth defect in both of my middle ears - apparently, all this time I really had "Large Vestibular Aqueduct Syndrome" as a result of those birth defects - however, it didn't make much of a difference in my life other than changing the name of "what I have" and having actual physical proof of having it. The symptoms and difficulties are exactly the same between LVAS and Meniere's. Frustrating, either way.

candybrowneyes

Lily that must be frustrating, Im surprised they didnt do the MRIs and tests before hand when you were younger? They did all that stuff with me also to rule out brain tumors etc... Hope you are alright

__________________
Love is the force that transforms and improves the soul of the world...

TiaMarie

I was diagnosed about 1998. I had an MRI to rule out tumors also. The last week and a half I have had 8 attacks, but I wish the damn ringing would go away!

dotcomkari

I do not have Menieres but i have WTF (who knows?)...*L* it mimics Menieres a lot and I have a lot of the same issues.. dizziness to the point of throwing up, balance off... hearing loss.. ringing in my ears..

my doctor has me on valium and Dyazide, but truthfuly it doesn't seem to be donig the job.

My veritgo has gotten worse in the past few weeks, I have been missing work because of it. I spend days in bed and am so sick to my stomach I can not eat sometimes.. not to mention deal with my children.

The doctor recently recommended Phyiscal therapy saying it helps some of his pacients with dizziness? anyone try that?

__________________
"There is no normal, just different" - Kari Smith