Celiac/Deaf Connection?

MoniDew · 02-25-2010, 10:52 AM

I have the genetic autoimmune disorder celiac/sprue. (an intollerance to grains and dairy products - more than a simple allergy - these foods become deadly toxins in my body. my body's reaction to them destroys my digestive tract, blood cells, brain cells, thyroid gland, causes cancer, etc.)

My daughter grew in my womb and is now becoming deaf.

I have another friend on a celiac message board who was born deaf and is celiac. We are both wondering how high the connection is between celiac disease and deafness.

Anyone else here both celiac and deaf? (or have both in the family, etc.)

**Bottesini** · 02-25-2010, 11:11 AM

I am. But celiac is not uncommon. I have hearing relatives who have it too. I think it is just a coincidence.

souggy · 02-25-2010, 11:36 AM

Not uncommon among the GENERAL population. Got nothing to do with deafness; it's just how the dices rolled. It's becoming a trend in the food blogosphere to offer gluten-free, dairy-free modification alternatives to their recipes.

Lighthouse77 · 02-25-2010, 12:23 PM

I'm deaf, and I have relatives who are deaf too. None of us have this. In fact, our health seem to be on the normal side (that is, if we go to a doctor, we find nothing wrong with us... no diseases whatsoever) .. except maybe asthma and allergies.

sara1981 · 03-06-2010, 01:31 AM

im deaf also but im also Meningitis

Steinhauer · 03-06-2010, 01:40 AM

I am hereditarily HoH -it is progressive and I will become completely deaf during the course of my life.

Currently my dB loss in right ear is 87 left is 89.

My father is clinically deaf, my sister and her daughter HoH, uncle is deaf and it goes waaaay back in my family.

My mother, older brother and youngest sister are hearing. None of us are celiac.

Mrs Bucket · 03-06-2010, 01:41 AM

Quote:

BACKGROUND: Celiac disease (CD) can be associated with a variety of extraintestinal manifestations, including neurological diseases. A new neurological correlation has been found between CD and sensorineural hearing loss (SNHL). OBJECTIVE: To verify the association between SNHL and CD, and to establish whether the neurological hearing impairment in CD is related to nonorgan-specific and antineuronal antibodies, as well as the presence of autoimmune disorders. METHODS: A sample of 59 consecutive biopsy- and serologically proven CD patients were studied. Among CD patients, 11 were newly diagnosed and 48 were on a gluten-free diet. Hearing function was assessed by audiometric analysis in all CD patients as well as in 59 age- and sex-matched controls. Patients were tested for a panel of immune markers including nonorgan-specific autoantibodies and antineuronal antibodies. RESULTS: SNHL was detected in five CD patients (8.5%) and in two controls (3.4%). In one patient, the SNHL was bilateral, whereas the remaining four had a monolateral impairment. The prevalence of SNHL was not significantly different between CD patients and controls. At least one of the antibodies tested for was positive in two of the five CD patients with SNHL and in 12 of the 54 CD patients without SNHL. Antineuronal antibodies to central nervous system antigens were consistently negative in the five CD patients with SNHL. Only one of the five CD patients with SNHL had Hashimoto thyroiditis. CONCLUSIONS: SNHL and CD occur coincidentally. Hearing function should be assessed only in CD patients with clinical signs of hearing deficiency.

BIOMED

I really caution the OP about comparing CD and hearing loss together because there is just no connection between the two.

CD does not cause deafness & vice versa.

Lighthouse77 · 03-06-2010, 07:11 AM

I have couple of hearing friends who have no deafness in their family, not even Hard-of-Hearing, and they have celiac diseases. In fact, their children have it too. So this tend to be more genetic, I think.

Buffalo · 03-06-2010, 09:29 PM

Quote:

Originally Posted by MoniDew

My daughter grew in my womb and is now becoming deaf.

How do you know that she become deaf due to your celiac? What if it was caused by something different like CMV???

MoniDew · 03-07-2010, 03:28 PM

well, that is exactly what I'm trying to resolve... is her deafness connected to my celiac disease, or is it not?

I think Mrs Bucket has provided the most objective analysis that it is not. Thank you to all who participated.

MoniDew · 03-07-2010, 03:31 PM

Quote:

Originally Posted by Buffalo

How do you know that she become deaf due to your celiac? What if it was caused by something different like CMV???

CMV - I had to look it up, I didn't know what it is. My daughter DID have mononucleosis as a teenager, in her senior year of high school. Perhaps this could be the cause of her progressive hearing loss? I had no idea of this connection. I'm glad you mentioned it.

**sallylou** · 03-07-2010, 04:00 PM

Unless there is a dominant genetic cause, you may never know the cause of your daughter's hearing loss. A dominant gene will be evident in successive generations (50% chance of inheritance). In the future, perhaps more genetic testing will be available, although I feel uneasy about that. I understand that exploring the reasons is part of the process of accepting the situation. You may not find an answer, though.

**KarissaMann05** · 03-07-2010, 04:45 PM

Wirelessly posted (Sidekick LX: Mozilla/5.0 (Danger hiptop 4.6; U; rv:1.7.12) Gecko/20050920)

No I don't have it. I was just born deaf by an unknown cause.

Buffalo · 03-07-2010, 08:03 PM

Quote:

Originally Posted by MoniDew

CMV - I had to look it up, I didn't know what it is. My daughter DID have mononucleosis as a teenager, in her senior year of high school. Perhaps this could be the cause of her progressive hearing loss? I had no idea of this connection. I'm glad you mentioned it.

Oh, I thought your daughter is a toddler, my mistake. One becames deaf when the pregnant mother came down with CMV. I don't think one becames deaf when one came down with CMV as an adult.

You had me googling for causes of hearing loss. I found this link which lists 966 causes of hearing loss at: Hearing impairment - WrongDiagnosis.com

deafdyke · 03-07-2010, 08:17 PM

Quote:

I really caution the OP about comparing CD and hearing loss together because there is just no connection between the two.

Well yes, unless the hearing loss was caused by autoimmune factors. A lot of times if you have one autoimmune disorder in a family, there will be a lot of others seen. (eg autism, Alizheimers, celiac etc)

Buffalo · 03-07-2010, 08:47 PM

Quote:

Originally Posted by deafdyke

Well yes, unless the hearing loss was caused by autoimmune factors. A lot of times if you have one autoimmune disorder in a family, there will be a lot of others seen. (eg autism, Alizheimers, celiac etc)

Are you saying that Alzheimer's is caused by autoimmune disorder??? I thought it was caused by genes that one inherited.

Mrs Bucket · 03-07-2010, 09:18 PM

Quote:

Originally Posted by deafdyke

Well yes, unless the hearing loss was caused by autoimmune factors. A lot of times if you have one autoimmune disorder in a family, there will be a lot of others seen. (eg autism, Alizheimers, celiac etc)

Quote:

Originally Posted by Buffalo

Are you saying that Alzheimer's is caused by autoimmune disorder??? I thought it was caused by genes that one inherited.

Buffalo,

I would not take Deafdyke's comments seriously. She has been known to make sweeping statements without backing them up with a source.

Alzheimer's is not caused by an autoimmune disorder. source

Alzheimer's disease is a progressive, degenerative disease of the brain, which causes thinking and memory to become seriously impaired. It is the most common form of dementia. (Dementia is a syndrome consisting of a number of symptoms that include loss of memory, judgment and reasoning, and changes in mood, behaviour and communication abilities. source

hohDougRN · 03-07-2010, 09:37 PM

Wirelessly posted (BlackBerry9630/4.7.1.61 Profile/MIDP-2.0 Configuration/CLDC-1.1 VendorID/105)

There is no medical connection whatsoever between Celiac's and Deaf

souggy · 03-08-2010, 09:40 PM

Quote:

Originally Posted by Mrs Bucket

Buffalo,

I would not take Deafdyke's comments seriously. She has been known to make sweeping statements without backing them up with a source.

Alzheimer's is not caused by an autoimmune disorder. source

Alzheimer's disease is a progressive, degenerative disease of the brain, which causes thinking and memory to become seriously impaired. It is the most common form of dementia. (Dementia is a syndrome consisting of a number of symptoms that include loss of memory, judgment and reasoning, and changes in mood, behaviour and communication abilities. source

Merci...

It's annoying when she dabble in autism, Asperger's and ADD.

MoniDew · 03-09-2010, 08:16 AM

Quote:

Originally Posted by sallylou

I understand that exploring the reasons is part of the process of accepting the situation. You may not find an answer, though.

I think you're right, SallyLou. I think I'm just dealing with a little bit of survivor's guilt and trying to absolve myself of that guilt a little bit. I should have never started this thread. I wish I could take it all back now. I hope the mods will close this thread or better yet, remove it entirely. (Please, Mods?)

Lighthouse77 · 03-11-2010, 12:06 PM

My mom used to blame herself for our deafness. She say, "maybe I left the window open too long" or "I should have made sure I did this and that"

None of it is your fault, it just happen.

**Bottesini** · 03-11-2010, 12:08 PM

Quote:

Originally Posted by MoniDew

I think you're right, SallyLou. I think I'm just dealing with a little bit of survivor's guilt and trying to absolve myself of that guilt a little bit. I should have never started this thread. I wish I could take it all back now. I hope the mods will close this thread or better yet, remove it entirely. (Please, Mods?)

If you only want to post things where everyone will agree with you,

not possible.

jillio · 03-13-2010, 11:23 PM

Quote:

Originally Posted by MoniDew

CMV - I had to look it up, I didn't know what it is. My daughter DID have mononucleosis as a teenager, in her senior year of high school. Perhaps this could be the cause of her progressive hearing loss? I had no idea of this connection. I'm glad you mentioned it.

No, the mono didn't cause it. With CMV, the exposure would have had to be through you when you were pregnant. At approx. the 5th month gestation. The way it works is that the pregnant woman is exposed to CMV, develops antibodies, and the antibodies reach the fetus through the blood supply. Those antibodies interrupt the development of the 8th cranial (auditory) nerve.

Lighthouse77 · 03-14-2010, 07:30 AM

I do have RH- and I was told that would attack the baby if not properly treated.

jillio · 03-15-2010, 12:06 AM

Quote:

Originally Posted by Lighthouse77

I do have RH- and I was told that would attack the baby if not properly treated.

You were told correctly. But for many years, they have been giving Rh- mothers a shot of Rhogam if they give birth to an Rh+ baby. There is no danger to the first baby, but any susequent babies are in danger because the mother's blood builds up antibodies against the Rh factor when the maternal and fetal blood are exchanged during birth. Then when the second pregnancy occurs, the mother;s antibodies recognizes the baby's Rh+ blood as a foreign body.

Lighthouse77 · 03-15-2010, 07:56 AM

yes, this is why they give RHogam in the middle of pregnancy and at the end rather if the baby is RH- or RH positive. You need it if you miscarried too.

View Poll Results: Celiac AND Deaf?
Yes, I have celiac disease and am deaf myself.	1	7.14%
Yes, there is celiac disease in my family, and I am deaf myself.	0	0%
Yes, there is deafness in my family and I have celiac disease myself. (I am a hearing person.)	1	7.14%
I am deaf. There is no celiac disease connection.	12	85.71%
Multiple Choice Poll. Voters: 14. You may not vote on this poll

02-25-2010, 10:52 AM	#1 (permalink)
MoniDew Registered User Join Date: Feb 2010 Location: Broken Arrow, Oklahoma Posts: 95	Celiac/Deaf Connection? I have the genetic autoimmune disorder celiac/sprue. (an intollerance to grains and dairy products - more than a simple allergy - these foods become deadly toxins in my body. my body's reaction to them destroys my digestive tract, blood cells, brain cells, thyroid gland, causes cancer, etc.) My daughter grew in my womb and is now becoming deaf. I have another friend on a celiac message board who was born deaf and is celiac. We are both wondering how high the connection is between celiac disease and deafness. Anyone else here both celiac and deaf? (or have both in the family, etc.) __________________ PODA - parent of a late-deafened adult daughter ASL student, hopeful one-day interpreter

02-25-2010, 11:36 AM	#3 (permalink)
souggy Registered User Join Date: Jul 2009 Location: Pacific Northwest Posts: 9,541	Not uncommon among the GENERAL population. Got nothing to do with deafness; it's just how the dices rolled. It's becoming a trend in the food blogosphere to offer gluten-free, dairy-free modification alternatives to their recipes. __________________ "It is my task to convince you not to turn away because you don’t understand it." - Richard Freynman

02-25-2010, 12:23 PM	#4 (permalink)
Lighthouse77 Registered User Join Date: Mar 2009 Posts: 4,167	I'm deaf, and I have relatives who are deaf too. None of us have this. In fact, our health seem to be on the normal side (that is, if we go to a doctor, we find nothing wrong with us... no diseases whatsoever) .. except maybe asthma and allergies. __________________ Good thing about standards is that there are so many of them to choose from.

03-06-2010, 01:31 AM	#5 (permalink)
sara1981 Registered User Join Date: Apr 2004 Location: North Little Rock,Ar Posts: 7,061	im deaf also but im also Meningitis __________________

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02-25-2010, 11:11 AM	#2 (permalink)
Bottesini Joe's Friend Join Date: Mar 2008 Location: With Owl Sock Posts: 37,642 Blog Entries: 1	I am. But celiac is not uncommon. I have hearing relatives who have it too. I think it is just a coincidence.

03-06-2010, 01:40 AM	#6 (permalink)
Steinhauer Registered User Join Date: Aug 2009 Posts: 8,191 Blog Entries: 1	I am hereditarily HoH -it is progressive and I will become completely deaf during the course of my life. Currently my dB loss in right ear is 87 left is 89. My father is clinically deaf, my sister and her daughter HoH, uncle is deaf and it goes waaaay back in my family. My mother, older brother and youngest sister are hearing. None of us are celiac.

03-06-2010, 07:11 AM	#8 (permalink)
Lighthouse77 Registered User Join Date: Mar 2009 Posts: 4,167	I have couple of hearing friends who have no deafness in their family, not even Hard-of-Hearing, and they have celiac diseases. In fact, their children have it too. So this tend to be more genetic, I think. __________________ Good thing about standards is that there are so many of them to choose from.

03-07-2010, 03:28 PM	#10 (permalink)
MoniDew Registered User Join Date: Feb 2010 Location: Broken Arrow, Oklahoma Posts: 95	well, that is exactly what I'm trying to resolve... is her deafness connected to my celiac disease, or is it not? I think Mrs Bucket has provided the most objective analysis that it is not. Thank you to all who participated. __________________ PODA - parent of a late-deafened adult daughter ASL student, hopeful one-day interpreter

03-07-2010, 04:00 PM	#12 (permalink)
sallylou Potterhead and Janeite Join Date: Jun 2009 Location: My own private Idaho Posts: 6,653	Unless there is a dominant genetic cause, you may never know the cause of your daughter's hearing loss. A dominant gene will be evident in successive generations (50% chance of inheritance). In the future, perhaps more genetic testing will be available, although I feel uneasy about that. I understand that exploring the reasons is part of the process of accepting the situation. You may not find an answer, though. __________________

03-07-2010, 04:45 PM	#13 (permalink)
KarissaMann05 Premium Member Join Date: May 2007 Location: Salem, Oregon Posts: 6,440	Wirelessly posted (Sidekick LX: Mozilla/5.0 (Danger hiptop 4.6; U; rv:1.7.12) Gecko/20050920) No I don't have it. I was just born deaf by an unknown cause. __________________ "Pragmatic language is a vital social skill that enables the school-aged child to navigate their way through demanding social situations." -- R. Owens Last edited by KarissaMann05; 03-07-2010 at 04:46 PM.

03-07-2010, 09:37 PM	#18 (permalink)
hohDougRN Registered User Join Date: Aug 2006 Location: utah Posts: 3,257	Wirelessly posted (BlackBerry9630/4.7.1.61 Profile/MIDP-2.0 Configuration/CLDC-1.1 VendorID/105) There is no medical connection whatsoever between Celiac's and Deaf __________________ *Doug*

03-11-2010, 12:06 PM	#21 (permalink)
Lighthouse77 Registered User Join Date: Mar 2009 Posts: 4,167	My mom used to blame herself for our deafness. She say, "maybe I left the window open too long" or "I should have made sure I did this and that" None of it is your fault, it just happen. __________________ Good thing about standards is that there are so many of them to choose from.

03-14-2010, 07:30 AM	#24 (permalink)
Lighthouse77 Registered User Join Date: Mar 2009 Posts: 4,167	I do have RH- and I was told that would attack the baby if not properly treated. __________________ Good thing about standards is that there are so many of them to choose from.

03-15-2010, 07:56 AM	#26 (permalink)
Lighthouse77 Registered User Join Date: Mar 2009 Posts: 4,167	yes, this is why they give RHogam in the middle of pregnancy and at the end rather if the baby is RH- or RH positive. You need it if you miscarried too. __________________ Good thing about standards is that there are so many of them to choose from.

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