pink-studs

hey ya'll

was wandering if anyone here share the same fate with ppl who suffer from NF2 =( or have u even heard of this illness.
its a very rare condition n only affect 1 in 40 000 or 50 000 person in US, dats how rare it is... but dats the US alone, jus bcoz u dun live in the states doesnt mean ur not a possibility. it is a genetic disorder and has been believed to already be in your system when u were born u cant catch it it- is a genetic thing, but the funny thing is (unlike breast cancer or other genetic cases) it will only strike dat one unlucky person in the entire family tree and wont strike again till several generation later, hence there is a 50 % chance that the child/childrens of the primary sufferer with b effected to,o but if they then so will their offsprings cos it wont strike again till several generation later. but because this desease is so rare and different, not many information has been collected about it because every case of NF2 is different and all the sufferers has different but yet similar effects. One of those is dat they all become deaf at some point in life when the tumours are removed. This is because the tumours grows on the hearin nerves and in most cases not only do the patient results in deafness but they also have some paralyse in the facial nerves and lost of their balance sense. thank God those awful destructive tumours are benign and not cancerous.

i dont know much about NF2, if u want to read more maybe google it up or something. and let me know wat uve found out too, im interested. If u know anyone with NF2 or simply u would like to chat about it. Please, feel free to do so, lets share what we know aye...

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-:¦:-((~.....•´*.....pink-studs.....*´•.....~)) -:¦:-

Deafness

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~SG~

Mod's Note:

Thread's moved to proper location.

I just googled up what is NF2: Neurofibromatosis; is this what you are talking about?.

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pink-studs

yep that it,
what r u thiking about it now... it sux hey?

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-:¦:-((~.....•´*.....pink-studs.....*´•.....~)) -:¦:-

pink-studs

Neurofibromatosis Type 2

there is also type one, ppl suffering from type 1 has really bad skins b stuff....
i heard theres another one Schwannomatosis is a similar disorder in which affects individuals, have similar manifestations to NF2 except that they do not have bilateral Acoustic Neuromas.

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-:¦:-((~.....•´*.....pink-studs.....*´•.....~)) -:¦:-