Hello everyone xXx - Page 2

Sarfarigirl2011 · 02-10-2012, 04:52 PM

same here when I was a baby, ended up using a hearing aid at 6 months old

anyways welcome to AD!

candybrowneyes · 02-10-2012, 04:55 PM

Yeah, but it was so basic... Took like 5 minutes, everyone took them. They would call like 5 kids at a time and when you finished we went back with a slip calling the next 5...

**shel90** · 02-10-2012, 08:23 PM

Quote:

Originally Posted by DeafCaroline

Huh. I didn't know schools performed any hearing tests at all.

I was never tested in school but then again, I was diagnosed before entering school.

Yes, schools perform hearing tests but not the intensive as the ones we all have endured. My son was borderline on "failing" his hearing test at school in the Fall so we took him to the ENT and they said that he has a very very very mild hearing loss. Of course the doctors said it was because of me. lol

**shel90** · 02-10-2012, 08:24 PM

To TimothysMOm...welcome to AD! I was born with a severe profound deafness. My mom discovered it when I was 7 months old. I am also a Deaf Ed teacher.

**Smithtr** · 02-11-2012, 06:51 PM

welcome to alldeaf

deafdyke · 02-11-2012, 09:34 PM

Quote:

Originally Posted by DeafCaroline

Huh. I didn't know schools performed any hearing tests at all.

I was never tested in school but then again, I was diagnosed before entering school.

They do in the States...It's a hearing screen. I never had to take it b/c I'm HOH.

deafdyke · 02-11-2012, 09:41 PM

Quote:

Originally Posted by Timothy's Mum

Hi, everyone, I am Timothy's Mum, Sheryl..... Timothy is five & has failed his two hearing tests at school, plus she shouts a lot. I think his speech is ok but does often miss here words. He failed both hearing tests when he was one as well but they said he was fine when he went for a "special" hearing test..... Does anyone have any idea what is going to happen next... I have been to the Dr today & they are going to refer us again which is good. I am just a little worried as this is Five hearing tests he has failed but he seems to be able to hear, even though I said from birth I thought he had some hearing loss as he only jumped to load noises & vibrations xXx

Timothy's Mum, if he IS HOH, maybe contact your state/province's School for the Deaf. See if they could refer you to local educational resources. Don't let the fact that your son is HOH keep you from investigating Deaf stuff. Most Deaf Schools are VERY HOH friendly.

Timothy's Mum · 02-15-2012, 06:51 AM

Hi everyone, thank you all for your replies.... I had to take Timothy to the doctor this morning as he had earache since last night, doctor said he has very narrow ear canals the left is smaller than the right & it is also curved & at the moment is slightly red but not very red. The doctor gave me antibiotics but said not to collect unless it got worse as the paracetamol seems to be helping, or collect if he gets a temperature because then he has an ear infection.
I am still waiting for call that I will getting on the 20th from a lady that will let me know what's going to happen next & she is going to sort me an appointment at the hospital to see the ENT.
I am also very perplexed with the school as I did ask them to show & explain what the letter meant, they just told me to go see my doctor, which i did straight away.
Does anyone else has this problem & what normally happens? I hope everyone had a good weekend xXx

**Cheetah** · 02-15-2012, 06:56 AM

Quote:

Originally Posted by Timothy's Mum

Hi everyone, thank you all for your replies.... I had to take Timothy to the doctor this morning as he had earache since last night, doctor said he has very narrow ear canals the left is smaller than the right & it is also curved & at the moment is slightly red but not very red. The doctor gave me antibiotics but said not to collect unless it got worse as the paracetamol seems to be helping, or collect if he gets a temperature because then he has an ear infection.
I am still waiting for call that I will getting on the 20th from a lady that will let me know what's going to happen next & she is going to sort me an appointment at the hospital to see the ENT.
I am also very perplexed with the school as I did ask them to show & explain what the letter meant, they just told me to go see my doctor, which i did straight away.
Does anyone else has this problem & what normally happens? I hope everyone had a good weekend xXx

What does "collect" mean? Does it mean to worry?

Timothy's Mum · 02-15-2012, 06:59 AM

Pick the prescription up, to collect it from the chemist xXx

**Cheetah** · 02-15-2012, 07:05 AM

Quote:

Originally Posted by Timothy's Mum

Pick the prescription up, to collect it from the chemist xXx

That makes sense. I was over analyzing again!

Timothy's Mum · 02-15-2012, 07:09 AM

That's ok, do you have any ideas on the narrowing & the curve? When I go see the ENT, I would like to know a little, thank you xXx

**Cheetah** · 02-15-2012, 07:16 AM

Quote:

Originally Posted by Timothy's Mum

That's ok, do you have any ideas on the narrowing & the curve? When I go see the ENT, I would like to know a little, thank you xXx

I went back and re read. Sorry, not sure of the medical relevance of a narrow or curved ear canal.

Timothy's Mum · 02-15-2012, 07:31 AM

Thank you.... I never like to Google to find things out as I feel, sometimes, examples are complicated. Would like to know, what may be going on though & from people that may be going through the same thing xXx

deafdyke · 02-15-2012, 09:02 PM

Quote:

Originally Posted by Timothy's Mum

That's ok, do you have any ideas on the narrowing & the curve? When I go see the ENT, I would like to know a little, thank you xXx

*you called?* The condition is called stenosis/atresia. Meaning very narrow/non existent ear canals.
That is what I have. It's seen sometimes in isolation (but VERY VERY VERY rare) but is also the cause of the hearing loss in Treacher Collins and 18q- syndrome. (a chromosome abornality where there's a hunk missing from the end of the 18th chromosome)

deafdyke · 02-15-2012, 09:13 PM

Oh and I just wanted to say....if he DOES turn out to be HOH, look into a partial hearing unit or a deaf school....see what's available in your area.
Thing is, the doc is just going to refer you guys to an audi. Dhh doc stuff is NOT all that complicated or complex. It's basicly just referring to an audi...and then if you want to find out the cause of the loss, further tests may be warrented.

Anij · 02-16-2012, 12:17 PM

Most school screening are just that - very basic 5min tests often NOT performed by a lisensed Aud. Audiologist (rather a volunteer parent, or a school/division/district hoh/deaf co-ordinator etc).

These tests are almost useless ... They're done in an open room, with headphone and a portable testing machine where they test a few tones per ear and call it a day. The reason they aren't often able to give results is they aren't actually legally allowed to because the test wasn't performed by an actual AuD. (so they aren't actually allow to give any numbers etc, because their often very wrong).

I'm competely deaf on my right side +120db loss ... And I was able to "pass" the school hearing tests for years .... I just watched when they pressed their button and then raised my hand

Really, it's very very important that you push to have him properly evaluated by a proper AuD. (Audiologist with a doctorate or more in audiology). Keep signing with him, and perhaps consider taking some additional classes because it can do not harm whatso ever, but can be a great help.
Also, make sure when you talk to him that you face him, do call from other rooms etc, or turn your back when you talk.

Once he goes for a prper audiogram, demand a copy of the results (you have a right to them!) So that you can see exactly what is going on (we can help you read them)

HTH

Timothy's Mum · 02-28-2012, 04:23 PM

I am still waiting for the ENT people to get in touch, I have phoned the hospital but with no luck we have to wait in the que..... The teacher is now sitting him in front of her when she talks & makes sure he can read her lips.
Deafdyke, I tried to send you a message but it would not let me.... I understand from my daughter that dogs & cats have curved ear cancels but humans are meant to have straight..... Could you hear when you were born & is there a chance in your experience that it's going to get worse, as his body is going to grow (he's five) isn't the inside of the ear supposed to grow with him & could that be why his hearing is getting worse? Also how rare is this condition? xXx

DeafCaroline · 02-28-2012, 04:25 PM

Quote:

Originally Posted by Timothy's Mum

I am still waiting for the ENT people to get in touch, I have phoned the hospital but with no luck we have to wait in the que..... The teacher is now sitting him in front of her when she talks & makes sure he can read her lips.
Deafdyke, I tried to send you a message but it would not let me.... I understand from my daughter that dogs & cats have curved ear cancels but humans are meant to have straight..... Could you hear when you were born & is there a chance in your experience that it's going to get worse, as his body is going to grow (he's five) isn't the inside of the ear supposed to grow with him & could that be why his hearing is getting worse? xXx

Its better that you ask your ENT about these things as they are the ones who are actually taking a look at your son's ears to make a medical diagnosis of his hearing conditions. None of us here has ever met your son and none of us are doctors. At this point, any answers we give would be pure speculation and nothing more.

Timothy's Mum · 02-28-2012, 04:58 PM

Yes I understand that & thank you..... I just feel so helpless & it seems to be taking so long...... I do not want to go in there with nothing as I find people tend to fob me off..... I am not saying that is what is going on & I will not look it up as the internet I think just makes matters worse..... I have no idea about the narrowing of the ear passage & it being curved but that has been noted by the Doctor & I would like to know a little more from people that are living with hearing problems or that are deaf xXx

deafdyke · 02-28-2012, 07:29 PM

Quote:

Originally Posted by Timothy's Mum

I am still waiting for the ENT people to get in touch, I have phoned the hospital but with no luck we have to wait in the que..... The teacher is now sitting him in front of her when she talks & makes sure he can read her lips.
Deafdyke, I tried to send you a message but it would not let me.... I understand from my daughter that dogs & cats have curved ear cancels but humans are meant to have straight..... Could you hear when you were born & is there a chance in your experience that it's going to get worse, as his body is going to grow (he's five) isn't the inside of the ear supposed to grow with him & could that be why his hearing is getting worse? Also how rare is this condition? xXx

Well the condition is a HOH condition. Meaning we can hear somewhat. We're not totally deaf. I remember I fooled the docs at Children's Hospital.
Atresia/stenosis isn't progressive although we can go deaf if we have a cold or whatever.

Timothy's Mum · 03-26-2012, 09:41 AM

Timothy now says he can hear the sea.... Have his appointment soon, will see what they say..... Hope everyone had a good weeeknd xXx

Sarfarigirl2011 · 03-27-2012, 05:14 PM

Quote:

Originally Posted by Timothy's Mum

Timothy now says he can hear the sea.... Have his appointment soon, will see what they say..... Hope everyone had a good weeeknd xXx

that's great and good luck at the appointment soon!

02-10-2012, 04:52 PM	#31 (permalink)
Sarfarigirl2011 Registered User Join Date: Jun 2010 Posts: 1,981	same here when I was a baby, ended up using a hearing aid at 6 months old anyways welcome to AD! Angel1989 likes this. __________________ 18 yr old girl with a moderate/severe in the right and severe on the left. currently wearing purple Oticon Safari P 600s

02-10-2012, 04:55 PM	#32 (permalink)
candybrowneyes Registered User Join Date: Oct 2008 Location: Iowa Posts: 1,358 Blog Entries: 1	Yeah, but it was so basic... Took like 5 minutes, everyone took them. They would call like 5 kids at a time and when you finished we went back with a slip calling the next 5... __________________ Love is the force that transforms and improves the soul of the world...

02-10-2012, 08:24 PM	#34 (permalink)
shel90 Let It Snow!!!! Join Date: Sep 2006 Location: A place where crabs are popular Posts: 40,290 Blog Entries: 3	To TimothysMOm...welcome to AD! I was born with a severe profound deafness. My mom discovered it when I was 7 months old. I am also a Deaf Ed teacher. __________________ "Wine improves with age. The older I get, the better I like it." --- Anonymous

02-11-2012, 06:51 PM	#35 (permalink)
Smithtr Siberian Husky Join Date: Jun 2006 Location: Canada Posts: 14,656	welcome to alldeaf Timothy's Mum likes this. __________________

02-15-2012, 06:51 AM	#38 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	Sorry been busy...... Hi everyone, thank you all for your replies.... I had to take Timothy to the doctor this morning as he had earache since last night, doctor said he has very narrow ear canals the left is smaller than the right & it is also curved & at the moment is slightly red but not very red. The doctor gave me antibiotics but said not to collect unless it got worse as the paracetamol seems to be helping, or collect if he gets a temperature because then he has an ear infection. I am still waiting for call that I will getting on the 20th from a lady that will let me know what's going to happen next & she is going to sort me an appointment at the hospital to see the ENT. I am also very perplexed with the school as I did ask them to show & explain what the letter meant, they just told me to go see my doctor, which i did straight away. Does anyone else has this problem & what normally happens? I hope everyone had a good weekend xXx Angel1989 likes this.

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02-15-2012, 06:59 AM	#40 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	Pick the prescription up, to collect it from the chemist xXx

02-15-2012, 07:09 AM	#42 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	That's ok, do you have any ideas on the narrowing & the curve? When I go see the ENT, I would like to know a little, thank you xXx

02-15-2012, 07:31 AM	#44 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	Thank you.... I never like to Google to find things out as I feel, sometimes, examples are complicated. Would like to know, what may be going on though & from people that may be going through the same thing xXx

02-15-2012, 09:13 PM	#46 (permalink)
deafdyke Registered User Join Date: Mar 2003 Location: Trebekistan Posts: 13,082	Oh and I just wanted to say....if he DOES turn out to be HOH, look into a partial hearing unit or a deaf school....see what's available in your area. Thing is, the doc is just going to refer you guys to an audi. Dhh doc stuff is NOT all that complicated or complex. It's basicly just referring to an audi...and then if you want to find out the cause of the loss, further tests may be warrented. Timothy's Mum likes this.

02-16-2012, 12:17 PM	#47 (permalink)
Anij Registered User Join Date: Jun 2005 Location: Canada Posts: 2,087	Most school screening are just that - very basic 5min tests often NOT performed by a lisensed Aud. Audiologist (rather a volunteer parent, or a school/division/district hoh/deaf co-ordinator etc). These tests are almost useless ... They're done in an open room, with headphone and a portable testing machine where they test a few tones per ear and call it a day. The reason they aren't often able to give results is they aren't actually legally allowed to because the test wasn't performed by an actual AuD. (so they aren't actually allow to give any numbers etc, because their often very wrong). I'm competely deaf on my right side +120db loss ... And I was able to "pass" the school hearing tests for years .... I just watched when they pressed their button and then raised my hand Really, it's very very important that you push to have him properly evaluated by a proper AuD. (Audiologist with a doctorate or more in audiology). Keep signing with him, and perhaps consider taking some additional classes because it can do not harm whatso ever, but can be a great help. Also, make sure when you talk to him that you face him, do call from other rooms etc, or turn your back when you talk. Once he goes for a prper audiogram, demand a copy of the results (you have a right to them!) So that you can see exactly what is going on (we can help you read them) HTH Timothy's Mum likes this. __________________ Hoh/Deaf ~ +120db deaf right , mild/mod flux left & APD English & ASL ...PAH!! Ignorance is NOT Bliss

02-28-2012, 04:23 PM	#48 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	I am still waiting for the ENT people to get in touch, I have phoned the hospital but with no luck we have to wait in the que..... The teacher is now sitting him in front of her when she talks & makes sure he can read her lips. Deafdyke, I tried to send you a message but it would not let me.... I understand from my daughter that dogs & cats have curved ear cancels but humans are meant to have straight..... Could you hear when you were born & is there a chance in your experience that it's going to get worse, as his body is going to grow (he's five) isn't the inside of the ear supposed to grow with him & could that be why his hearing is getting worse? Also how rare is this condition? xXx

02-28-2012, 04:58 PM	#50 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	Yes I understand that & thank you..... I just feel so helpless & it seems to be taking so long...... I do not want to go in there with nothing as I find people tend to fob me off..... I am not saying that is what is going on & I will not look it up as the internet I think just makes matters worse..... I have no idea about the narrowing of the ear passage & it being curved but that has been noted by the Doctor & I would like to know a little more from people that are living with hearing problems or that are deaf xXx

03-26-2012, 09:41 AM	#52 (permalink)
Timothy's Mum Registered User Join Date: Feb 2012 Location: Stevenage Posts: 14	Timothy now says he can hear the sea.... Have his appointment soon, will see what they say..... Hope everyone had a good weeeknd xXx

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