Time to Introduce Myself

krzcooter · 10-12-2007, 08:12 PM

Hi all. I have been watching forum for awhile but have just started posting and asking questions since the time is getting near. I have Neurofibromatosis 2. I have many many tumors all over body. I have had many surgeries over years for tumor removals around spinal cord, but luckily my vestibular schwanomas were not growing. Then in 2004 I had to have one taken out. I am currently deaf on right side and have a PABI installed. That happened in January 2004. Now the one on the left side is too big so it has to come out. That is planned to take place on November 1, 2007. Since I will then be completely deaf I have been trying to prepare to ease the transition. Yes I will have the PABI to help, but it currently performs about like an ABI. You basically hear beeps and tones. Nothing easily understandable. I am ordering an HTC Mogul from my sprint relay store so that way I can communicate with friends and family since I won't be using a standard cell phone. I haven't taken any lip reading or asl classes, but I am looking into it. I am definitely going to study lip reading because in conjunction with the PABI, some communication is possible. Everybody on the forum has been great and I am learning lots.
I am a 24 year old geek. Computers are my life. I have an Associates in Networking Engineering and a Bachelors in Information Security Systems. I enjoy gaming - xbox (Gamertag: KrzCooter), computer, ds, wii, and gptx, boating, flying, and all radio control sports. I fly R/C Helicopters, airplanes, and cars. I race in the pro series in 1/8 scale buggy class. I am based out of St. Charles, MO.
I am also looking for deaf assistance or classes in the St. Louis area. I checked out Missouri Institute for the Deaf's website and they seem to be focused on preparing children to go to a standard nondeaf school. Any suggestions for places to go to in the St. Louis area would be greatly appreciated. Also and hints or tips that you can think of that I should do. Based on the friendly community I have experienced on this site I am sure I will be spending a lot of time here in the future.

Kaitin · 10-12-2007, 08:52 PM

Hi! Interesting introduction. What gaming do you do? I play Unreal Tournament with friends on two networked computers. During the summer we spent too much time with the sniper rifle and the short yellow gun (I can't remember what it is called)

. We thought we would have to drop out of college when classes started, but we stopped finally. I tried WoW, but it was boring and required too much time.

Good luck with ASL and lip reading. Lip reading is not the magic that many think it is. I tell people that everything has to be perfect...and then I will still just guess.

(I am HoH/deaf with two HAs and have always attended hearing schools). But ASL is wonderful, and I hope you feel the same when you learn it.

krzcooter · 10-13-2007, 01:04 PM

I do all kinds of gaming. I game on consoles and computer. Right now I am playing Halo 3, Civ IV, Forza 2, BioShock, and I am a huge flight simmer using Flight Simulator X.

Roadrunner · 10-13-2007, 04:03 PM

Hello and welcome to Alldeaf! Interesting and nice introduction--hope you'll enjoy your stay here in AD!

~RR

sequoias · 10-13-2007, 04:55 PM

to AD!

Lil_country_gal · 10-14-2007, 06:02 PM

~*WELCOME*~
TO ALLDEAF!!

shel90 · 10-14-2007, 06:05 PM

Hi and

to AD!

Good luck with taking ASL and lipreading classes. I have never known that there are lipreading classes. Interesting.

Liebling:-))) · 10-15-2007, 12:56 AM

Herzlich Willkommen in AD

Tousi · 10-15-2007, 12:58 AM

Hello, there and welcome to AD; I must say you're on an interesting journey.

SxySpicyGrrl · 10-19-2007, 08:26 PM

HI!!!

Welcome to AD. Have fun

10-12-2007, 08:12 PM	#1 (permalink)
krzcooter Registered User Join Date: Oct 2007 Location: St. Charles, MO Posts: 10	Time to Introduce Myself Hi all. I have been watching forum for awhile but have just started posting and asking questions since the time is getting near. I have Neurofibromatosis 2. I have many many tumors all over body. I have had many surgeries over years for tumor removals around spinal cord, but luckily my vestibular schwanomas were not growing. Then in 2004 I had to have one taken out. I am currently deaf on right side and have a PABI installed. That happened in January 2004. Now the one on the left side is too big so it has to come out. That is planned to take place on November 1, 2007. Since I will then be completely deaf I have been trying to prepare to ease the transition. Yes I will have the PABI to help, but it currently performs about like an ABI. You basically hear beeps and tones. Nothing easily understandable. I am ordering an HTC Mogul from my sprint relay store so that way I can communicate with friends and family since I won't be using a standard cell phone. I haven't taken any lip reading or asl classes, but I am looking into it. I am definitely going to study lip reading because in conjunction with the PABI, some communication is possible. Everybody on the forum has been great and I am learning lots. I am a 24 year old geek. Computers are my life. I have an Associates in Networking Engineering and a Bachelors in Information Security Systems. I enjoy gaming - xbox (Gamertag: KrzCooter), computer, ds, wii, and gptx, boating, flying, and all radio control sports. I fly R/C Helicopters, airplanes, and cars. I race in the pro series in 1/8 scale buggy class. I am based out of St. Charles, MO. I am also looking for deaf assistance or classes in the St. Louis area. I checked out Missouri Institute for the Deaf's website and they seem to be focused on preparing children to go to a standard nondeaf school. Any suggestions for places to go to in the St. Louis area would be greatly appreciated. Also and hints or tips that you can think of that I should do. Based on the friendly community I have experienced on this site I am sure I will be spending a lot of time here in the future. __________________ Deaf in Right Ear - January 2004 PABI Installed - January 2004 Deaf in Left Ear - November 1, 2007 ABI Installed - November 1, 2007

10-12-2007, 08:52 PM	#2 (permalink)
Kaitin Registered User Join Date: Oct 2007 Posts: 845 Blog Entries: 23	Hi! Interesting introduction. What gaming do you do? I play Unreal Tournament with friends on two networked computers. During the summer we spent too much time with the sniper rifle and the short yellow gun (I can't remember what it is called) . We thought we would have to drop out of college when classes started, but we stopped finally. I tried WoW, but it was boring and required too much time. Good luck with ASL and lip reading. Lip reading is not the magic that many think it is. I tell people that everything has to be perfect...and then I will still just guess. (I am HoH/deaf with two HAs and have always attended hearing schools). But ASL is wonderful, and I hope you feel the same when you learn it. Last edited by Kaitin; 10-12-2007 at 08:53 PM. Reason: Added the shooting smiles :)

10-13-2007, 01:04 PM	#3 (permalink)
krzcooter Registered User Join Date: Oct 2007 Location: St. Charles, MO Posts: 10	I do all kinds of gaming. I game on consoles and computer. Right now I am playing Halo 3, Civ IV, Forza 2, BioShock, and I am a huge flight simmer using Flight Simulator X. __________________ Deaf in Right Ear - January 2004 PABI Installed - January 2004 Deaf in Left Ear - November 1, 2007 ABI Installed - November 1, 2007

10-13-2007, 04:55 PM	#5 (permalink)
sequoias Railfan 4 life! Join Date: Jun 2004 Location: The Evergreen State Posts: 11,799	to AD! __________________

10-14-2007, 06:02 PM	#6 (permalink)
Lil_country_gal Cowgirl Join Date: Sep 2005 Location: Saint Joseph, MN Posts: 2,309	~WELCOME~ TO ALLDEAF!! __________________ Put some excitement between your legs.... Ride a Horse Laicy Always and Forever

Today
Deafness	Sponsored Links __________________ This advertising will not be shown in this way to registered members. Register your free account today and become a member on AllDeaf.com

10-13-2007, 04:03 PM	#4 (permalink)
Roadrunner Registered User Join Date: Dec 2003 Location: Ohio Posts: 7,090	Hello and welcome to Alldeaf! Interesting and nice introduction--hope you'll enjoy your stay here in AD! ~RR

10-14-2007, 06:05 PM	#7 (permalink)
shel90 Sun Whorshipper Join Date: Sep 2006 Location: A Desert Rat that has found herself in Maryland Posts: 14,832 Blog Entries: 1	Hi and to AD! Good luck with taking ASL and lipreading classes. I have never known that there are lipreading classes. Interesting. __________________ ~Shel~

10-15-2007, 12:56 AM	#8 (permalink)
Liebling:-))) Hiiiiiii it's meeeeee Join Date: Jan 2004 Location: Germany Posts: 25,574	Herzlich Willkommen in AD __________________ sniffing you

10-15-2007, 12:58 AM	#9 (permalink)
Tousi Registered User Join Date: Apr 2003 Posts: 7,497	Hello, there and welcome to AD; I must say you're on an interesting journey.

10-19-2007, 08:26 PM	#10 (permalink)
SxySpicyGrrl Cannot wait for spring!!! Join Date: Apr 2006 Location: California Posts: 1,109 Blog Entries: 1	HI!!! Welcome to AD. Have fun

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