Frisky Feline

First of all, you complain about ASL language, not english that embarrase you and second you complain that you wish you had CI in your earlier age. so what is it so important to have English in your eye is my question. English is important, true but you got my attention about English.

Glad to know that you have job and family. So why don't you get a CI? my hub got a CI at around age 33. If it bothers you so much then go for CI that you might be glad to have it now and take speech therapy, sure it takes a lot of times but same thing for small kids who takes speech therapy and miss out of their free time like 1 to 2 hours or longer. Same deal for small kids or adults.

Deafness

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Frisky Feline

Ask him why he brought up about ASL users who have different grammar (in his word lack of engish) while asl users people have jobs and family. so what does it do with ASL users with English?

GISJason

I'd rather not go into detail about it as it may offend a handful of members here but hearing people and ones that were raised in a heavy ESL background with English then ASL can relate to what I'm talking about otherwise they cannot see or relate to what I'm saying.

Yeah I'm considering doing the CI only after I've exhausted the HA technology available for me...I'm not keen on ruining my hearing with HAs if the CI seems to botch it for my hearing. Cause there's no going back to just HAs if CI fails then I'd be just stone deaf for life not really what I want.

Frisky Feline

gisjason,

Agree, Let the OP have this thread. Me too, i do not wish to go far any details.

by the way, like you mention the earlier the best to have a CI. so its better for you to have CI now than waiting BUT you do have fears. same thing for any hearing parents fear for kids with good leftover residual hearing. I know several kids when were born who are the same DB as mine and they went for CI.. unfortunately dr did perform mistakely and destroyed kids' cochlea and kids cant hear NOTHING either CI or HAs. Hard decisions.. i am more comfortable for the full toolbox to access to the language by ASL, and speak/listen.

green427

You are right.


Another fine example of how we are welcoming new members.....

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Warning: Anything I post may not make any sense. All advice is for entertainment value only. Sarcasm might be present. Interpret at your own risk.

GISJason

Yeah very hard decison to make! Lots of factors to consider like Doctor's experince and success rates etc. Brand used, device upkeep and mapping appts and the fact its not activated at implant really irks me..Have to wait a few weeks before they turn it on.. Wish it was like implant, activate, and map done all in one day! Hopefully all these kids that doctor made mistakes on were paid an handsome settlement not that it'd make up for that at all!!

Yes I seem to be more comfortable with the full toolbox but find myself wanting to hear even more and clearer experince...But in time hopefully HAs get better with technology growing at a rapid rate or have they reached their maxinum potential nowdays? Only time can tell...

CSign

If children have some auditory access, whether it be through HA's/CI/whatever, and receive appropriate speech therapy in their early developmental years, the need for speech therapy is not as crucial as it was in the earlier years.

In other words, children aren't going to necessarily require "1-2 hours or longer"- I'm not sure if you're talking about per day or per week.

It depends on the individual needs of the child. With appropriate speech therapy in the early years, the child has theoretically already integrated most of the speech sounds with their spoken language.

For some children or people, intelligible speech is not a possibility and there is nothing wrong with that. The key is giving them the opportunity to develop spoken and signed language, and follow their lead as they grow. Early access is a crucial part of that.

GrendelQ

FF, can you please post the name of the doctor who did this to these several kids (or the hospital)? I know I've researched our surgeon very carefully, and CI parents typically share feedback on any specific doctors they've encountered, but wouldn't want someone to miss taking note of this guy. Issues are available for review in the MAUDE database. But if a CI surgeon has on multiple occasions destroyed cochleas, making them unfit for use with CIs, this info. would be important to get out to the publics others could avoid him. Not that it's any comfort for these once just deaf and now even more deaf children, but I imagine all 3, 4 (? you mentioned several, how many did this doctor destroy?) must have won one heck of a lawsuit against the doctor.

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KarissaMann05

So, English is easy and ASL is hard as this posts suggest...

Uh, okay.

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"Pragmatic language is a vital social skill that enables the school-aged child to navigate their way through demanding social situations." -- R. Owens

GrendelQ

I don't think I've ever heard anyone claim that learning English is easy before Who said that?

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Frisky Feline

I am not going in there with you. There is ONE, not 3 or 4 but few of them had to get surgery twice in order to correct them withthe spirl in the cochlea, and they are ok. If you haven't found the link then the doctors are lucky. it was something with the law settlement.
However, i dont know what rockdrummer's son's cochlea was damaged by doctor or it is damage already? do you?

Frisky Feline

First of all, i am not going in there with you or any hearing parents becuase all kids are different.
i was in a speech therapy when i was 3 for years and know what it felt like being stuck in a speech therapy lesson. Ok.

Bottesini

There's also the girl here from Palm Beach who was implanted in spite of wispy auditory nerve and is seeking explant.

It's not really a secret that CI isn't a cure all or that bad things sometimes happen.

Maude database doesn't have everyone who failed or had problems in it. It's a lot more specific.

I also know personally more than one person implanted for whom it did not work.

It's counter productive for you to imply that deaf people are lying.

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GrendelQ

Wow, that's a pretty defensive post. Do you really feel like I'm implying you are lying about something?

I know someone for whom it doesn't work, too. And I agree that a CI isn't a "cure-all."

I'm asking about the several children implanted by a surgeon who destroyed their cochleas and could therefore not benefit from CIs -- this sounds like something caused by a surgeon's medical malpractice rather than by a person eager to implant despite and with knowledge of obstacles that might impact success rate. I'd like to know who this dr. is and ensure this doesn't happen to another potential ci recipient.

I don't think this info should be kept secret or alluded to without doing something about it.

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GrendelQ

Oh, you are referring to Rockdrummer's child as the one whose doctor destroyed the cochlea, I thought you meant you knew several to whom this happened. I think RD mentioned that his son had an already ossified cochlea and that they knew going in it was a longshot but tried anyway. Unsuccessfully.

I know quite a few people who have had surgery to reposition or replace the implant, but fortunately I don't believe any of them have had their cochleas destroyed in the process.

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GrendelQ

I thought it was your husband who has a CI, do you (or did you) as well?

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Bottesini

Not at all. I feel that you are very manipulative. And that you twist things to make them say what was not intended to be said.

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Frisky Feline

My hub has a CI. I am not. What does CI relates with being in speech therapy?

Frisky Feline

Like I asked you if you remember and you did remember that doctor did not damage rockdrummers son. So, its all clear up and thats relief to know. My friend is in 40s. He didnt say why or what happened about his CI that was not working that something doctor performed mistakely. He had it when he was 5. He still speaks, and ASL. That's all I know. I learned about it during our college years which was over 15 years ago.

Other friends who had re surgery due to the wire that didn't get in the right position somewhere in cochlea something with going into the spiral shaped that hurt her real bad when the sound turns on. Now shes OK.

GrendelQ

Oh. I see. I feel that you are very bitter and sad and look for nastiness where it doesn't exist.

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GrendelQ

I'd think that whether or not you had access to speech sounds via a CI or not would have a great deal of impact on how speech therapy is conducted and what it's like for the person trying to learn to speak.

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Frisky Feline

why are you feeling threatened by her honest.

KarissaMann05

That's pure bullshit.

This thread is nothing but to jab OP for not chose CI and to suggest ASL is a difficult route.

Yeah, don't bother to try double speak me. Sure, you don't say English is easy but you did suggest otherwise.

So, whatever.

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"Pragmatic language is a vital social skill that enables the school-aged child to navigate their way through demanding social situations." -- R. Owens

Frisky Feline

He speaks pretty good with HAs until he first got CI when he was 33 or 34. People thought he was hearing due to his voice. He had to be in speech therapy that his mom wanted it. He really work hard in his speech therapy for years.

I was being a rebel girl when it came to the speech therpay. It was my choice.

On a side note, i hear better than my hub for HAs.

deafmusic

Hey! Can you PLEASE tell me how I can post on this site to ask a question?? Thank you SO much!

Bottesini

Decision is Made Your post #16 in this thread kind of shows your motivations here.

The bolded tends to show you people are in here for what you can get out of your CI companies.

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GrendelQ

I'm suggesting that he tell of his own direct experience rather than argue about brand marketing messages. How is that a negative or something I'm getting out of a ci company?

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Frisky Feline

Is your daughter in speech therapy? How many times per week did she attend speech therapy?

AlleyCat

And there's Smithr who has been trying for eons to have his explanted.

Maybe he could post about his experiences with his CI, as well.

GrendelQ

No. She has not had speech therapy. But we may consider it, so I don't mean to imply that I'm against it.

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