AlleyCat

That's just yucky. I can understand not wanting to endure another surgery. I wish you all the best for yours.

Deafness

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Cheetah

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deafskeptic

I wish the same thing for you,Cheetah.

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Audiofuzzy

You know, I for one am tired of this speaking in generalities.
Links, please.

re: highlighted red:
So? it's merely pain and discomfort, not "nerve damage".
A thing that's temporary and that might be corrected.

HOW much higher?

re" highlighted blue:
again, so?

ever heard of heart pacemakers, for example?
these been recalled, too.
And unlike CI, pacemaker is something people need to actually LIVE.
One would think a pacemaker recall is something worse than CI recalls
as you can DIE from malfunctioning heart pacemaker, from a malfunctioning CI - not.

FDA Alerts Patients to Medtronic Pacemaker Recall

So, while CI recall is certainly not to be taken lightly, let's also keep it in perspective.
Nobody invented a contraption that was perfect right from the START.

And that is enough. What more do you need from babies?
A Harvard level half an hr soliloquy describing in detail every squeak, hum,
stab, ring, twitch and whatever?

It's a baby, for crissake.


Fuzzy

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saywhatkid

I thought I spoke clearly; what number, above zero, is acceptable for infant deaths due to CI surgeries? Is that a generalization? Do you need links and charts?

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Audiofuzzy

No, but there is a record kept of such accidental deaths, absolutely.
Any death during surgery is investigated, the record kept.

What do you think?
That if people die under knife nobody is kept responsible?

These deaths are scrutinized, if any negligence found, the person responsible
goes to trial.
Cases like that are kept in archives.

Death during CI surgery, particularly if this was a baby, would hit at least local community, Deaf most of all. I wouldn't be surprised if local media, even.

A baby contracting deadly meningitis from CI surgery is right away in the newspaper, isn't it?

How many times we read about that?

A high numbers of deaths from CI, and such number Alley Cat with her remark implies - "many has died" - certainly wouldn't go unnoticed.

Do you imagine the parents of deceased babies wouldn't make it well known how "many babies has died" from CI surgeries if it was so common,
not only to help people responsible for their babies deaths but also
in order to keep greedy companies from killing even more babies?

Just use your common sense.

So, yeah, any time someone gives vague statements like "many has died"
I will ask for some reliable data behind such statements.
It's only a responsible thing to do, to back up what you claim with facts.

Otherwise, you just spread misinformation which is doing harm.


Fuzzy

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A 'No' uttered from the deepest conviction is better than a 'Yes' merely uttered to please, or worse, to avoid trouble.
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Audiofuzzy

YES.

Fuzzy

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saywhatkid

You are the expert. Dig. I refuse to do it. If you are telling me it never happens, so be it. I am saying even one death is too many for an infant that does not have a choice.

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The Highlander

I don't know it's common. Her doctor told her it's rare happen. Yes, She is fine and she got taste everything like old times.

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Frisky Feline

From what I ve witnessed with my friends and my hub, and it seems to me that it is common for any one who lose the taste for from 1 to 3 months and it comes back to normal again. i guess its common. its rare for anyone who lose the taste forever. i think.

Cheetah

It is very common but not well explained. I don't know if the drs down play it or intentionally not mention it, but it's a side effect of stimulating the facial nerves. The facial nerve is stimulated during the surgery as a way of monitoring that nerve. I don't know exactly how stimulating the nerve prevents them from cutting it, but if they do cut it they will know immediately. The problem with stimulating this facial nerve is sometimes this bruises the nerve and the sense of taste is part of that nerve bundle. It takes 3 to 12 months for the nerve to repair itself and function again. It took me 12 month ish for my sense of taste to return to normal.

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Frisky Feline

yes.

I had a surgery but it wasn't on my head. somewhere is in my body and it took about couple of years later, it came return but some area didn't come back at all. I can image about the head being numb for some times or forever.

AlleyCat

Cheetah, for the 12 months that your sense of taste wasn't normal, what was it like? Just curious! No taste at all, or everything tasted different (good? Bad?)

Cheetah

Wirelessly posted (Backberry)

Everything tasted metalic. Especially meats so could not eat any meat because it tasted like it was spoiled. I also could only eat other foods while hungry, once my hunger was satisfied I couldn't stand the taste. Also my own sliva tasted nasty. Just very unplesant.

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mbrek

Wow... I never imagined CIs surgery could make foods taste differently! The interesting things I am learning here.

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AlleyCat

Wow. Did it ever help to eat sweet things to cover up the metallic taste? How about liquids? Did coffee (if you drink it) taste like coffee? Thanks for sharing with us!

Cheetah

No liquids don't like to stay on one side. I can usually keep solids to one side for a while. But once some of it moves over or saliva starts in, I get the powerful metallic taste again. Also my jaw gets tired of chewing on only one side all the time.

Every person has a different experience. But I think the taste thing is very common. For some it's just a mild inconvenience. For me, it totally ruined my enjoyment of food for a year. Today it's all normal again.

Good GOD almighty! I'm thinking of doing this to myself again??? Aye!

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Frisky Feline

hahah my hub said, one ci is sufficient for him. He wasnt crazy about going through the whole thing deal and don't want to go there again. me too. I was there helping him the whole time and don't want to go through this whole thingy again! lol.

drphil

I wondering how I missed an alteration in taste after almost 5 years of having a Cochlear implant?
So far no change whatsoever. Perhaps the surgeon did "everything" correctly. Right-lucky to be referred to him.

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Cheetah

Drphil, you are a one-in-a-million. And I mean that in a very nice way.

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zajko

Interesting, I don't remember any problems with taste. But I remember my leg was "tingling" (found that word in a dictionary, no idea if you can understand it correctly ) for one or two days

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Cheetah

Stress can add complications to any surgery. stress on the body can produce weird things. It can even uncover issues that might be hiding in the background.

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Frisky Feline

yeah.