Does CI affect some nerves? - Page 4

**Oddball** · 02-09-2012, 09:47 PM

Cloggy and Rick...

I know the story about mother and her son both had CI surgeries. Her son eventually had some severe CI issues that lead to near death. Turned out they both have genetics disorder, so they sued CI company for punitive damages because they were misleading by a CI company that CI could cure their Deafness and whatnots. Their CIs were removed at the expenses of CI company due to the court order.

True story. I am not bullshitting you.

**Cheetah** · 02-09-2012, 09:47 PM

Quote:

Originally Posted by rick48

Yes indeed you did and if you had checked your source you would have known it is outdated, in fact its ten years old:

NIH Publication No. 00-4393
April 2000
Updated October 2002

And it was so nice of you to cite your source... (sarcasm intended)

AlleyCat · 02-09-2012, 10:02 PM

Quote:

Originally Posted by rick48

Yes indeed you did and if you had checked your source you would have known it is outdated, in fact its ten years old:

Rick, I got the 70,000 from the very link I gave you: http://www.nidcd.nih.gov/health/hearing/pages/coch.aspx

On their very home page, quoted is:

Quote:

According to the U.S. Food and Drug Administration (FDA), as of December 2010, approximately 219,000 people worldwide have received implants. In the United States, roughly 42,600 adults and 28,400 children have received them.

In December 2010, that's 70,000. That's 14 months ago.

**Beowulf** · 02-09-2012, 10:13 PM

Quote:

Originally Posted by AlleyCat

Rick, I got the 70,000 from the very link I gave you: Cochlear Implants

On their very home page, quoted is:

In December 2010, that's 70,000. That's 14 months ago.

Meh. I know quite a few people who quit using their CI's. It seems about a third of them did that, so those numbers are questionable to me at least.

AlleyCat · 02-09-2012, 10:17 PM

Right. I don't really care whether its 70,000 or 100,000 as Rick said. They are calling on Shel to discuss how many kids she's seen with surgical issues, and Shel is a teacher to what, 10 of those many thousands? They don't need to be picking on Shel for the mere few kids she sees.

rockin'robin · 02-09-2012, 10:20 PM

Quote:

Originally Posted by Beowulf

Meh. I know quite a few people who quit using their CI's. It seems about a third of them did that, so those numbers are questionable to me at least.

True that!...Several intrepretors have told me that so many of their clients took their CI off...would not even wear them. For what reasons, I don't know.

kokonut · 02-09-2012, 10:37 PM

I personally know of a deaf father and mother who had their son get CI. The parents are also CI users, too, and Deaf.

Audiofuzzy · 02-09-2012, 10:56 PM

Quote:

Originally Posted by DeafCaroline

Have you ever thought about getting a CI?

I would love to have CI, but I am worried it will increase my migraine episodes
as noise is a huge trigger for me.

Fuzzy

Audiofuzzy · 02-09-2012, 11:01 PM

Quote:

Originally Posted by AlleyCat

There are some 70,000 people in the U.S. who have CIs. How many does Shel see? Even 10?

Excuse me, but Shel had no problem referring to these children when she was saying this:

Quote:

Originally Posted by shel90

I never noticed that with any of the children with CIs that I have worked with... Usually if a noise is too loud, they would inform the school's audiologist but I work with the older ones. My brother's girlfriend is a PreK teacher at the same deaf program I work at. I can ask her about the little ones.

Still, for me even referring to just 10 from her own experience,
is good enough.

Fuzzy

Audiofuzzy · 02-09-2012, 11:06 PM

Quote:

Originally Posted by AlleyCat

Right. I don't really care whether its 70,000 or 100,000 as Rick said. They are calling on Shel to discuss how many kids she's seen with surgical issues, and Shel is a teacher to what, 10 of those many thousands? They don't need to be picking on Shel for the mere few kids she sees.

Who is picking and why? We are just asking normal, valid question.
She has certain authority in the matter since she IS a teacher, she IS with direct contact with a number of CI kids, (longer and more than you or me probably)
and thus she does have first hand information on the subject.

Asking her for information on this is NOT picking.

Fuzzy

**shel90** · 02-10-2012, 10:17 PM

Quote:

Originally Posted by rick48

Good point she seems to have no qualms posting all over AD about how she hates those F****** cis and the ignorant hearing parents of kids with those F******* cis (Wonder if the parents of her ci students know how she actually feels about them?) but when asked to refute something negative about those F********* cis, she suddenly has nothing to say. Just like how she never talks about her students who are actually doing well with their F******* cis.

But in reality, given her anti-ci bias she is the last person, no wait, the next to last (forgot about her leader) to offer a credible opinion as to those F********* cis.

I will tell you that based on my experiences which far exceeds hers, while I do not personally know anyone who sustained permanent facial nerve damage I am aware of a few who had temporary nerve damage and a few who experienced twitching during mappings but had it corrected through the mapping procedure.

Rick

It is your audist views that I f***************** hate not the CIs. themselves. You and your fabulous 4 keep forgetting that. Oh, did I forget to mention boobs too?

**shel90** · 02-10-2012, 10:19 PM

Quote:

Originally Posted by Audiofuzzy

Excuse me, but Shel had no problem referring to these children when she was saying this:

Still, for me even referring to just 10 from her own experience,
is good enough.

Fuzzy

I am not going to feed yours and others agenda. I posted what I said but I know what you and the other fabulous 4 are up to. Not gonna fall for it.

**shel90** · 02-10-2012, 10:21 PM

Quote:

Originally Posted by Audiofuzzy

Well Shel, you participated in this discussion with no problem earlier, didn't you?
And you do have more experience with CI children, don't you, comparing to some of us.

I for one, would be interested in your opinion - so, how many CI children
have you seen with "damaged nerves", please?

Fuzzy

You and the others are trying to twist what I posted into something that will fit your and the others' agenda. Not gonna fall for it this time.

**deafskeptic** · 02-10-2012, 10:54 PM

Quote:

Originally Posted by shel90

It is your audist views that I f***************** hate not the CIs. themselves. You and your fabulous 4 keep forgetting that. Oh, did I forget to mention boobs too?

Speaking of the boobs, I've heard rumors that one of the fab 4 is an exhibitionist.

Audiofuzzy · 02-10-2012, 11:54 PM

Quote:

Originally Posted by shel90

You and the others are trying to twist what I posted into something that will fit your and the others' agenda. Not gonna fall for it this time.

Nobody is trying to twist what you posted.
YOU wrote what you wrote, and I only QUOTED it.

YOU stated you have seen a number of children with CI, and YOU stated that so far YOU have NOT seen or witnessed any nerve damage
to the best of my understanding.

You were asked in regards in this statement the most straightforward follow up question that would NOT discriminate anybody,
but would only SHED LIGHT on this whole ****ed up matter for everybody.

Why would you withhold such a material piece of information that would serve everybody - most of all those who are confused what REALLY CI
can or can NOT do,

in other words, that would help DISPEL some myths that are plenty in this unfortunate community -

is beyond me.

Fuzzy

**Cheetah** · 02-11-2012, 11:30 AM

Quote:

Originally Posted by flip

Nerve damaged people don't tend to exposure themselves in the public anyway. Know one that has withdrawn. Her face is not balanced anymore.

I've seen two so far. It really makes it challenging to engage in social interaction so these folks don't go out as often as they don't like getting stared at all the time. If it happens to me, I don't know how I will handle it.

Oceanbreeze · 02-11-2012, 11:33 AM

Quote:

Originally Posted by shel90

Why are you bringing me in this?

Maybe because you've worked with these children? You also said you've never seen someone with issues. ..

AlleyCat · 02-11-2012, 11:51 AM

I didn't realize you were considering a CI or worried about the surgical risks.

Cloggy · 02-11-2012, 01:41 PM

Quote:

Originally Posted by Oddball

Nah, that video is the perfect example.

Its not an example of anything...he can move his arm...

Frisky Feline · 02-11-2012, 01:47 PM

Quote:

Originally Posted by Cloggy

Its not an example of anything...he can move his arm...

one side of his face paralyzed and his eye. So he cares about the others. =/

Cloggy · 02-11-2012, 01:53 PM

Quote:

Originally Posted by Cheetah

I've seen two so far. It really makes it challenging to engage in social interaction so these folks don't go out as often as they don't like getting stared at all the time. If it happens to me, I don't know how I will handle it.

I've seen no children having facial paralysis...The only person I have seen with CI having spasms was a child with CP, who was able to communicate with his parents after he received CI..
Not a child who I would place in your "****ed up wearing CI" category..

Cloggy · 02-11-2012, 01:55 PM

Quote:

Originally Posted by Frisky Feline

one side of his face paralyzed and his eye. So he cares about the others. =/

Joking about a surgery that takes away te sense of a child is not my way of caring, or humor..
Taking away a sense would be an example of "****ed up without CI"

**Bottesini** · 02-11-2012, 02:04 PM

Quote:

Originally Posted by Cloggy

I've seen no children having facial paralysis...The only person I have seen with CI having spasms was a child with CP, who was able to communicate with his parents after he received CI..
Not a child who I would place in your "****ed up wearing CI" category..

Here is one picture of a kid with facial paralysis due to CI, and the site link.

Quote:

Ginger and Elana (in case you can't tell here, Elana IS smiling, she has some facial paralysis so she doesn't smile with her whole mouth. Also if you're wondering what the black straps she has on are, it's for her cochlear implant so she can hear...)

golden retriever forums How are golden retrievers with little children - Page 2 - Top Golden Retriever Sites Discussion Forums

As a person with facial paralysis that was a side effect from damage to my auditory nerve, I can say that it isn't fun or a joking matter.

Cloggy · 02-11-2012, 03:35 PM

Quote:

Originally Posted by Bottesini

Here is one picture of a kid with facial paralysis due to CI, and the site link.
...
As a person with facial paralysis that was a side effect from damage to my auditory nerve, I can say that it isn't fun or a joking matter.

Definitely not.. That's why I wasn't joking.
How do you figure it's due to CI operation?

Operations have a risk. So does driving a car.
So does being deaf..

Audiofuzzy · 02-11-2012, 06:15 PM

Quote:

Originally Posted by shel90

I havent seen any kids at my work with that problem but then again, there are many that I dont work closely with on a day to day basis so who knows? All I just said that I havent seen any so far. Doesnt mean that they never had any problems with their CIs.

That is the problem with trying to suck me into saying something like what I said and make it sound like another poster is lying. I have had several friends who have told me of knowing people with CIs who have nerve damage even paralysis but because I havent seen that myself, doesnt mean that they are liars.

That is how I see getting my name brought into it ...by using what I said to say that other ADers are liars.

Not going to get sucked into it. I am tired of this.

Now what Shel

if you come from a sure place, you don't have a problem with answering simply and honestly,
and without precipitating a plethora of possible outcome from who knows where, nor predicting unsure outcomes.

You were simply asked what did YOU and only YOU saw, period.

All you had to say was at most 5 possible variables:

a/ none of CI children had nerve damage
b/ less than half had nerve damage
c/ 50-50 had nerve damage
d/ more than half had nerve damage
e/ all of the CI children had nerve damage

Who cares what your friends told you?
You personally can't neither confirm nor debunk it, so it's irrelevant.

We asked YOU for an opinion, and an honest response is either yes or no.
And you know what?
If you truly believe in what you believe, you are NOT afraid of your answers,
for you know nothing will shake the truth of what you stand for.

Is that simple.

Fuzzy

AlleyCat · 02-11-2012, 06:19 PM

She's already stated numerous times. In fact, you already quoted one of her answers.

Audiofuzzy · 02-11-2012, 06:25 PM

Quote:

Originally Posted by AlleyCat

She's already stated numerous times. In fact, you already quoted one of her answers.

Then it's safe to assume none of the CI children Shel personally saw had a nerve damage, yes?

case closed.

Fuzzy

AlleyCat · 02-11-2012, 06:52 PM

Finally you can read Shel's answers.

Yes, case closed for the few kids Shel sees.

For 70,000 others?

Audiofuzzy · 02-11-2012, 06:53 PM

Quote:

Originally Posted by AlleyCat

Finally you can read Shel's answers.

Yes, case closed for the few kids Shel sees.

For 70,000 others?

What 70, 000 others?
Do you know exactly that many implanted?

Fuzzy

AlleyCat · 02-11-2012, 06:55 PM

Quote:

Originally Posted by Audiofuzzy

What 70, 000 others?
Do you know exactly that many implanted?

Fuzzy

Yes. I gave the links earlier.

02-09-2012, 10:17 PM	#95 (permalink)
AlleyCat Registered User Join Date: Jun 2005 Location: In my time zone Posts: 10,795	Right. I don't really care whether its 70,000 or 100,000 as Rick said. They are calling on Shel to discuss how many kids she's seen with surgical issues, and Shel is a teacher to what, 10 of those many thousands? They don't need to be picking on Shel for the mere few kids she sees. deafskeptic likes this.

02-09-2012, 10:37 PM	#97 (permalink)
kokonut Registered User Join Date: Jul 2006 Posts: 15,348	I personally know of a deaf father and mother who had their son get CI. The parents are also CI users, too, and Deaf. __________________ Before AD. After AD. "Restriction on free thought and free speech is the most dangerous of all subversions. It is the one un-American act that could most easily defeat us." -Thurgood Marshall, former Supreme Court Justice "... turns out they are telling the truth."

02-11-2012, 06:19 PM	#116 (permalink)
AlleyCat Registered User Join Date: Jun 2005 Location: In my time zone Posts: 10,795	She's already stated numerous times. In fact, you already quoted one of her answers. Banjo, deafskeptic and KristinaB like this.

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02-09-2012, 09:47 PM	#91 (permalink)
Oddball Premium Member Join Date: Apr 2003 Location: The Toxic State Posts: 4,569	Cloggy and Rick... I know the story about mother and her son both had CI surgeries. Her son eventually had some severe CI issues that lead to near death. Turned out they both have genetics disorder, so they sued CI company for punitive damages because they were misleading by a CI company that CI could cure their Deafness and whatnots. Their CIs were removed at the expenses of CI company due to the court order. True story. I am not bullshitting you.

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02-11-2012, 11:51 AM	#108 (permalink)
AlleyCat Registered User Join Date: Jun 2005 Location: In my time zone Posts: 10,795	I didn't realize you were considering a CI or worried about the surgical risks.

02-11-2012, 06:52 PM	#118 (permalink)
AlleyCat Registered User Join Date: Jun 2005 Location: In my time zone Posts: 10,795	Finally you can read Shel's answers. Yes, case closed for the few kids Shel sees. For 70,000 others?